Osteoporosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is osteoporosis?

Osteoporosis is a disease of bone that leads to an increased risk of fracture. In osteoporosis the bone density is reduced leading to deterioration of bone structure.

Common symptoms reported by people with osteoporosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with osteoporosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Fosamax)
Type
Prescription Drug
How many have tried
43
Tried for
osteoporosis (43)
Treatment name(s)

(Cal-600)
Type
Supplement
How many have tried
16
Tried for
osteoporosis (16)
Treatment name(s)

(Calcium 600 plus D)
Type
Supplement
How many have tried
16
Tried for
osteoporosis (16)
Treatment name(s)

(Prolia)
Type
Prescription Drug
How many have tried
15
Tried for
osteoporosis (15)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
12
Tried for
pain (12)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
12
Tried for
pain (12)
Treatment name(s)

(Zometa)
Type
Prescription Drug
How many have tried
12
Tried for
osteoporosis (12)
Treatment name(s)

(Forteo)
Type
Prescription Drug
How many have tried
11
Tried for
osteoporosis (11)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
9
Tried for
depressed mood (8) pain (2)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
9
Tried for
pain (9)

Data from patients with osteoporosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with osteoporosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Fosamax)
Perceived effectiveness
for osteoporosis (62 evaluations)
Side effects
bone pain aching hands 14 more
Total evaluations
67
Tried for
osteoporosis (43)
Treatment name(s)

(Cal-600)
Perceived effectiveness
for osteoporosis (3 evaluations)
Side effects
Total evaluations
3
Tried for
osteoporosis (16)
Treatment name(s)

(Calcium 600 plus D)
Perceived effectiveness
for osteoporosis (3 evaluations)
Side effects
Total evaluations
3
Tried for
osteoporosis (16)
Treatment name(s)

(Prolia)
Perceived effectiveness
for osteoporosis (13 evaluations)
Side effects
heartburn bone pain 4 more
Total evaluations
13
Tried for
osteoporosis (15)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (27 evaluations)
Side effects
dizziness drowsiness 3 more
Total evaluations
28
Tried for
pain (12)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (26 evaluations)
Side effects
sleepiness nausea
Total evaluations
26
Tried for
pain (12)
Treatment name(s)

(Zometa)
Perceived effectiveness
for osteoporosis (2 evaluations)
Side effects
allergic reaction flu like symptoms
Total evaluations
3
Tried for
osteoporosis (12)
Treatment name(s)

(Forteo)
Perceived effectiveness
for osteoporosis (13 evaluations)
Side effects
muscle pain nausea
Total evaluations
13
Tried for
osteoporosis (11)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (20 evaluations)
Side effects
chronic fatigue tremor in hands 1 more
Total evaluations
21
Tried for
depressed mood (8) pain (2)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (1 evaluation)
Side effects
drowsiness
Total evaluations
1
Tried for
pain (9)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with osteoporosis, who reported starting treatments within the last 5 years.
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Who has osteoporosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 4
20s 21
30s 106
40s 266
50s 621
60s 832
70+ 325
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 24
20-29 years 54
30-39 years 121
40-49 years 175
50-59 years 180
60-69 years 51
70+ years 9

Distribution of sex

Sex
Sex Proportion # of patients
Male 251
Female 1933

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1197
Not Diagnosed 56

These charts show data from osteoporosis patients who have completed their condition history
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