Osteoporosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is osteoporosis?

Osteoporosis is a disease of the bone that lowers bone density. This decrease in bone density may result in deterioration of bone structure and strength leading to an increased risk of fractures.

Common symptoms reported by people with osteoporosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for osteoporosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Fosamax)
Type
Prescription Drug
How many have tried
368
Tried for
osteoporosis (14)
Treatment name(s)

(Prolia)
Type
Prescription Drug
How many have tried
5
Tried for
osteoporosis (13)
Treatment name(s)

(Calcium 600 plus D)
Type
Supplement
How many have tried
366
Tried for
osteoporosis (7)
Treatment name(s)

(Cal-600)
Type
Supplement
How many have tried
227
Tried for
osteoporosis (3)
Treatment name(s)

(Boniva)
Type
Prescription Drug
How many have tried
5
Tried for
osteoporosis (3)
Treatment name(s)

(Actonel)
Type
Prescription Drug
How many have tried
114
Tried for
osteoporosis (2)
Treatment name(s)

(Zometa)
Type
Prescription Drug
How many have tried
70
Tried for
osteoporosis (2)
Treatment name(s)

(Tymlos)
Type
Prescription Drug
How many have tried
0
Tried for
osteoporosis (1)
Treatment name(s)

(Fortical)
Type
Prescription Drug
How many have tried
3
Tried for
osteoporosis (1)
Treatment name(s)

(Estrace)
Type
Prescription Drug
How many have tried
21
Tried for
osteoporosis (1)

Data from patients with osteoporosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Compare treatments taken by people with osteoporosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Fosamax)
Perceived effectiveness
for osteoporosis (17 evaluations)
Side effects
gastroesophageal reflux disease
Total evaluations
17
Tried for
osteoporosis (14)
Treatment name(s)

(Prolia)
Perceived effectiveness
for osteoporosis (4 evaluations)
Side effects
injection site pain
Total evaluations
4
Tried for
osteoporosis (13)
Treatment name(s)

(Calcium 600 plus D)
Perceived effectiveness
for osteoporosis (1 evaluation)
Side effects
Total evaluations
1
Tried for
osteoporosis (7)
Treatment name(s)

(Cal-600)
Perceived effectiveness
for osteoporosis (2 evaluations)
Side effects
constipation
Total evaluations
2
Tried for
osteoporosis (3)
Treatment name(s)

(Boniva)
Perceived effectiveness
for osteoporosis (1 evaluation)
Side effects
joint stiffness lower back pain on waking
Total evaluations
1
Tried for
osteoporosis (3)
Treatment name(s)

(Actonel)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
osteoporosis (2)
Treatment name(s)

(Zometa)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
osteoporosis (2)
Treatment name(s)

(Tymlos)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
osteoporosis (1)
Treatment name(s)

(Fortical)
Perceived effectiveness
for osteoporosis (1 evaluation)
Side effects
Total evaluations
1
Tried for
osteoporosis (1)
Treatment name(s)

(Estrace)
Perceived effectiveness
for osteoporosis (1 evaluation)
Side effects
Total evaluations
1
Tried for
osteoporosis (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with osteoporosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has osteoporosis on PatientsLikeMe?

  • 7 new patients joined this month
  • 495 say osteoporosis is their primary condition

Age
Age Proportion # of patients
<20 2
20s 28
30s 116
40s 319
50s 840
60s 1415
70+ 890

Distribution of sex

Sex
Sex Proportion # of patients
Male 396
Female 3261

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1290
Not Diagnosed 52

These charts show data from osteoporosis patients who have completed their condition history
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