Publications & talks

Bibliography of PatientsLikeMe

Featured Research

How Patients Understand and Define “Good” Care

Completed with Funding from RWJF

RWJF funded PatientsLikeMe research to capture patient perspectives about and develop new ways to measure provider effectiveness in delivering health care. Previous studies on the same topic have relied on clinical and researcher input with little patient involvement. This research included several components: one study applied patient-generated health data to groups developing outcome measures; another developed a patient-generated model of good care; a third compared physician and patient perspectives on accountability. Collectively, these studies help us to understand and define good care from the patient point of view. Following are all the reports, posters and videos related to the research.

Developing Patient Reported Outcome Measures Relevant and Meaningful to Patients

(RWJF Grant 73040)