Lichen sclerosus

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What is lichen sclerosus?

Lichen sclerosus is an uncommon autoimmune condition that creates patchy, white skin that's thinner than normal. Lichen sclerosus may affect skin on any part of your body, but most often involves skin of the vulva, foreskin of the penis or skin around the anus.

Common symptoms reported by people with lichen sclerosus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with lichen sclerosus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Clobex)
Type
Prescription Drug
How many have tried
8
Tried for
lichen sclerosus (8)
Treatment name(s)

(Abilify)
Type
Prescription Drug
How many have tried
2
Tried for
Depressed mood (2)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1)
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
1
Tried for
Fatigue (1)
Treatment name(s)

(Essential Oils)
Type
Procedures
How many have tried
1
Tried for
Anxious mood (1)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
1
Tried for
Depressed mood (1)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1)
Treatment name(s)

(Estrace Vaginal Cream)
Type
Prescription Drug
How many have tried
1
Tried for
lichen sclerosus (1)
Treatment name(s)

(Cortizone-10)
Type
Prescription Drug
How many have tried
1
Tried for
lichen sclerosus (1)
Treatment name(s)

(Advil)
Type
Over the Counter Drug
How many have tried
1
Tried for
Pain (1)

Data from patients with lichen sclerosus, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with lichen sclerosus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Clobex)
Perceived effectiveness
for lichen sclerosus (4 evaluations)
Side effects
Burning sensation
Total evaluations
4
Tried for
lichen sclerosus (8)
Treatment name(s)

(Abilify)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Depressed mood (2)
Treatment name(s)

(Xanax)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Anxious mood (1)
Treatment name(s)

(Adderall)
Perceived effectiveness
for Fatigue (2 evaluations)
Side effects
Frequent urination Nervousness
Total evaluations
2
Tried for
Fatigue (1)
Treatment name(s)

(Essential Oils)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Anxious mood (1)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Depressed mood (1)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
Anxious mood (1)
Treatment name(s)

(Estrace Vaginal Cream)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
lichen sclerosus (1)
Treatment name(s)

(Cortizone-10)
Perceived effectiveness
for lichen sclerosus (1 evaluation)
Side effects
Total evaluations
1
Tried for
lichen sclerosus (1)
Treatment name(s)

(Advil)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
Pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with lichen sclerosus, who reported starting treatments within the last 5 years.
Last updated:

Who has lichen sclerosus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 5
30s 15
40s 30
50s 45
60s 39
70+ 9
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 10
20-29 years 7
30-39 years 17
40-49 years 20
50-59 years 20
60-69 years 5
70+ years 0

Sex

Distribution of sex

92% Female
8% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 99
Not Diagnosed 7

These charts show data from lichen sclerosus patients who have completed their condition history
Last updated: