Lichen Sclerosus

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What is Lichen Sclerosus?

Lichen sclerosus is an uncommon autoimmune condition that creates patchy, white skin that's thinner than normal. Lichen sclerosus may affect skin on any part of your body, but most often involves skin of the vulva, foreskin of the penis or skin around the anus.

Common symptoms reported by people with Lichen Sclerosus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Lichen Sclerosus

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Clobex)
Type
Prescription Drug
How many have tried
8
Tried for
Lichen Sclerosus (8)
Check to add this treatment to your profile
Treatment name(s)

(Protopic)
Type
Prescription Drug
How many have tried
2
Tried for
Lichen Sclerosus (2)
Check to add this treatment to your profile
Treatment name(s)

(Testosterone Cypionate)
Type
Prescription Drug
How many have tried
2
Tried for
Lichen Sclerosus (2)
Check to add this treatment to your profile
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
1
Tried for
Fatigue (1)
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Treatment name(s)

(Essential Oils)
Type
Procedures
How many have tried
1
Tried for
Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
1
Tried for
Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Celexa)
Type
Prescription Drug
How many have tried
1
Tried for
Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Estrace Vaginal Cream)
Type
Prescription Drug
How many have tried
1
Tried for
Lichen Sclerosus (1)

Data from patients with Lichen Sclerosus, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Lichen Sclerosus

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Clobex)
Perceived effectiveness
for Lichen Sclerosus (5 evaluations)
Side effects
None Skin thinning
How many evaluations
5
Tried for
Lichen Sclerosus (8)
Check to add this treatment to your profile
Treatment name(s)

(Protopic)
Perceived effectiveness
for Lichen Sclerosus (2 evaluations)
Side effects
Burning Pain
How many evaluations
2
Tried for
Lichen Sclerosus (2)
Check to add this treatment to your profile
Treatment name(s)

(Testosterone Cypionate)
Perceived effectiveness
for Lichen Sclerosus (4 evaluations)
Side effects
How many evaluations
4
Tried for
Lichen Sclerosus (2)
Check to add this treatment to your profile
Treatment name(s)

(Xanax)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Adderall)
Perceived effectiveness
for Fatigue (2 evaluations)
Side effects
Frequent urination Nervousness
How many evaluations
2
Tried for
Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Essential Oils)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Celexa)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Anxious mood (1 evaluation)
Side effects
How many evaluations
1
Tried for
Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Estrace Vaginal Cream)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Lichen Sclerosus (1)

Data from patients with Lichen Sclerosus, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Lichen Sclerosus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 4
30s 15
40s 23
50s 44
60s 28
70+ 10

Sex

Distribution of sex

91% Female
9% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 9
20-29 years 6
30-39 years 16
40-49 years 18
50-59 years 16
60-69 years 4
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 86
Not Diagnosed 7

These charts show data from Lichen Sclerosus patients who have completed their condition history
Last updated: