Lichen sclerosus

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What is lichen sclerosus?

Lichen sclerosus is an uncommon autoimmune condition that creates patchy, white skin that's thinner than normal. Lichen sclerosus may affect skin on any part of your body, but most often involves skin of the vulva, foreskin of the penis or skin around the anus.

Common symptoms reported by people with lichen sclerosus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with lichen sclerosus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Clobex)
Type
Prescription Drug
How many have tried
9
Tried for
lichen sclerosus (9)
Treatment name(s)

(Abilify)
Type
Prescription Drug
How many have tried
2
Tried for
depressed mood (2)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)
Treatment name(s)

(Cortizone-10)
Type
Prescription Drug
How many have tried
2
Tried for
lichen sclerosus (2)
Treatment name(s)

(Protopic)
Type
Prescription Drug
How many have tried
2
Tried for
lichen sclerosus (2)
Treatment name(s)

(R-lipoic Acid)
Type
Supplement
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Betnovate)
Type
Prescription Drug
How many have tried
1
Tried for
lichen sclerosus (1)
Treatment name(s)

(Cannabidiol oil)
Type
Other
How many have tried
1
Tried for
pain (1)

Data from patients with lichen sclerosus, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with lichen sclerosus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Clobex)
Perceived effectiveness
for lichen sclerosus (7 evaluations)
Side effects
burning sensation overwhelming fatigue 2 more
Total evaluations
7
Tried for
lichen sclerosus (9)
Treatment name(s)

(Abilify)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (2)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
Total evaluations
2
Tried for
anxious mood (2)
Treatment name(s)

(Cortizone-10)
Perceived effectiveness
for lichen sclerosus (1 evaluation)
Side effects
Total evaluations
1
Tried for
lichen sclerosus (2)
Treatment name(s)

(Protopic)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
lichen sclerosus (2)
Treatment name(s)

(R-lipoic Acid)
Perceived effectiveness
for pain (3 evaluations)
Side effects
Total evaluations
3
Tried for
pain (1)
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
sleepiness sleepiness (at first only)
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Adderall)
Perceived effectiveness
for fatigue (2 evaluations)
Side effects
frequent urination nervousness
Total evaluations
2
Tried for
fatigue (1)
Treatment name(s)

(Betnovate)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
lichen sclerosus (1)
Treatment name(s)

(Cannabidiol oil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with lichen sclerosus, who reported starting treatments within the last 5 years.
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Who has lichen sclerosus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 5
30s 19
40s 29
50s 55
60s 54
70+ 13
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 11
20-29 years 9
30-39 years 17
40-49 years 21
50-59 years 22
60-69 years 5
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 11
Female 167

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 108
Not Diagnosed 7

These charts show data from lichen sclerosus patients who have completed their condition history
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