Antiphospholipid antibody syndrome

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What is antiphospholipid antibody syndrome?

Antiphospholipid syndrome, Hughes syndrome, or antiphospholipid antibody syndrome is a disorder that causes blood clots (thrombosis) to form in the arteries, veins, and vital organs.

Common symptoms reported by people with antiphospholipid antibody syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with antiphospholipid antibody syndrome

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Aspirin Low Dose)
Type
Over the Counter Drug
How many have tried
11
Check to add this treatment to your profile
Treatment name(s)

(Lovenox)
Type
Prescription Drug
How many have tried
5
Check to add this treatment to your profile
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
5
Check to add this treatment to your profile
Treatment name(s)

(Coumadin)
Type
Prescription Drug
How many have tried
5
Check to add this treatment to your profile
Treatment name(s)

(Remeron)
Type
Prescription Drug
How many have tried
4
Tried for
Depressed mood (2) Insomnia (2)
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Treatment name(s)

(Oxycodone IR)
Type
Prescription Drug
How many have tried
4
Tried for
Pain (4)
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Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
4
Tried for
Pain (4)
Check to add this treatment to your profile
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
3
Tried for
Anxious mood (3)
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Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
3
Tried for
Pain (3)
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Treatment name(s)

(Xarelto)
Type
Prescription Drug
How many have tried
3

Data from patients with antiphospholipid antibody syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with antiphospholipid antibody syndrome

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Aspirin Low Dose)
Perceived effectiveness
for antiphospholipid antibody syndrome (2 evaluations)
Side effects
Blood in vomit Stomach pain
Total evaluations
2
Check to add this treatment to your profile
Treatment name(s)

(Lovenox)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Check to add this treatment to your profile
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for antiphospholipid antibody syndrome (1 evaluation)
Side effects
Total evaluations
1
Check to add this treatment to your profile
Treatment name(s)

(Coumadin)
Perceived effectiveness
for antiphospholipid antibody syndrome (2 evaluations)
Side effects
Abdominal bloating Constipation 7 more
Total evaluations
2
Check to add this treatment to your profile
Treatment name(s)

(Remeron)
Perceived effectiveness
for Insomnia (1 evaluation)
Side effects
Hangover effect in morning
Total evaluations
1
Tried for
Depressed mood (2) Insomnia (2)
Check to add this treatment to your profile
Treatment name(s)

(Oxycodone IR)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (4)
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (3 evaluations)
Side effects
Allergic reaction Itching all over 1 more
Total evaluations
3
Tried for
Pain (4)
Check to add this treatment to your profile
Treatment name(s)

(Ativan)
Perceived effectiveness
for Anxious mood (1 evaluation)
Side effects
Dizziness
Total evaluations
1
Tried for
Anxious mood (3)
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
Pain (3)
Check to add this treatment to your profile
Treatment name(s)

(Xarelto)
Perceived effectiveness
for antiphospholipid antibody syndrome (1 evaluation)
Side effects
Total evaluations
1
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with antiphospholipid antibody syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Who has antiphospholipid antibody syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 32
30s 111
40s 187
50s 164
60s 59
70+ 9
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 47
20-29 years 99
30-39 years 88
40-49 years 47
50-59 years 16
60-69 years 5
70+ years 1

Sex

Distribution of sex

91% Female
9% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 386
Not Diagnosed 15

These charts show data from antiphospholipid antibody syndrome patients who have completed their condition history
Last updated: