Antiphospholipid antibody syndrome

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What is antiphospholipid antibody syndrome?

Antiphospholipid syndrome, Hughes syndrome, or antiphospholipid antibody syndrome is a disorder that causes blood clots (thrombosis) to form in the arteries, veins, and vital organs.

Common symptoms reported by people with antiphospholipid antibody syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with antiphospholipid antibody syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Aspirin Low Dose)
Type
Over the Counter Drug
How many have tried
9
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
6
Treatment name(s)

(Coumadin)
Type
Prescription Drug
How many have tried
6
Treatment name(s)

(Lovenox)
Type
Prescription Drug
How many have tried
4
Treatment name(s)

(Oxycodone IR)
Type
Prescription Drug
How many have tried
4
Tried for
pain (4)
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
3
Tried for
anxious mood (3)
Treatment name(s)

(Xarelto)
Type
Prescription Drug
How many have tried
3
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
2
Tried for
depressed mood (2)

Data from patients with antiphospholipid antibody syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with antiphospholipid antibody syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Aspirin Low Dose)
Perceived effectiveness
for antiphospholipid antibody syndrome (2 evaluations)
Side effects
blood in vomit
Total evaluations
2
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for antiphospholipid antibody syndrome (1 evaluation)
Side effects
Total evaluations
2
Treatment name(s)

(Coumadin)
Perceived effectiveness
for antiphospholipid antibody syndrome (3 evaluations)
Side effects
abdominal bloating constipation 8 more
Total evaluations
3
Treatment name(s)

(Lovenox)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Oxycodone IR)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (4)
Treatment name(s)

(Flexeril)
Perceived effectiveness
for pain (2 evaluations)
Side effects
drowsiness sleepiness
Total evaluations
2
Tried for
pain (3)
Treatment name(s)

(Ativan)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
dizziness
Total evaluations
1
Tried for
anxious mood (3)
Treatment name(s)

(Xarelto)
Perceived effectiveness
for antiphospholipid antibody syndrome (1 evaluation)
Side effects
Total evaluations
1
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
depressed mood fatigue 2 more
Total evaluations
3
Tried for
anxious mood (2)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
dizziness
Total evaluations
1
Tried for
depressed mood (2)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with antiphospholipid antibody syndrome, who reported starting treatments within the last 5 years.
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Who has antiphospholipid antibody syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 35
30s 114
40s 182
50s 179
60s 70
70+ 11
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 47
20-29 years 100
30-39 years 92
40-49 years 47
50-59 years 16
60-69 years 5
70+ years 1

Sex

Distribution of sex

91% Female
9% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 393
Not Diagnosed 15

These charts show data from antiphospholipid antibody syndrome patients who have completed their condition history
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