Antiphospholipid Antibody Syndrome

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Antiphospholipid Antibody Syndrome?

Antiphospholipid syndrome, Hughes syndrome, or antiphospholipid antibody syndrome is a disorder that causes blood clots (thrombosis) to form in the arteries, veins, and vital organs.

Common symptoms reported by people with Antiphospholipid Antibody Syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Antiphospholipid Antibody Syndrome

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Coumadin)
Type
Prescription Drug
How many have tried
13
Check to add this treatment to your profile
Treatment name(s)

(Aspirin Low Dose)
Type
Over the Counter Drug
How many have tried
11
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
6
Tried for
Pain (6)
Check to add this treatment to your profile
Treatment name(s)

(Oxycodone IR)
Type
Prescription Drug
How many have tried
5
Tried for
Pain (5)
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
4
Tried for
Depressed mood (4)
Check to add this treatment to your profile
Treatment name(s)

(Lovenox)
Type
Prescription Drug
How many have tried
4
Check to add this treatment to your profile
Treatment name(s)
Type
Prescription Drug
How many have tried
4
Check to add this treatment to your profile
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
4
Check to add this treatment to your profile
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
4
Tried for
Anxious mood (3) Insomnia (1)
Check to add this treatment to your profile
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
3
Tried for
Pain (3) Anxious mood (2)
2 more

Data from patients with Antiphospholipid Antibody Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Antiphospholipid Antibody Syndrome

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Coumadin)
Perceived effectiveness
for Antiphospholipid Antibody Syndrome (2 evaluations)
Side effects
Bruise easily Hair loss 1 more
How many evaluations
3
Check to add this treatment to your profile
Treatment name(s)

(Aspirin Low Dose)
Perceived effectiveness
for Antiphospholipid Antibody Syndrome (6 evaluations)
Side effects
Blood in vomit Nausea 4 more
How many evaluations
7
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (4 evaluations)
Side effects
Allergic reaction Dizziness 3 more
How many evaluations
4
Tried for
Pain (6)
Check to add this treatment to your profile
Treatment name(s)

(Oxycodone IR)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (5)
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Depressed mood (3 evaluations)
Side effects
Dizziness Heart palpitations 1 more
How many evaluations
4
Tried for
Depressed mood (4)
Check to add this treatment to your profile
Treatment name(s)

(Lovenox)
Perceived effectiveness
for Antiphospholipid Antibody Syndrome (1 evaluation)
Side effects
How many evaluations
1
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
for Antiphospholipid Antibody Syndrome (1 evaluation)
Side effects
Thrombocytopenia (low platelet count)
How many evaluations
1
Check to add this treatment to your profile
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for Antiphospholipid Antibody Syndrome (1 evaluation)
Side effects
How many evaluations
1
Check to add this treatment to your profile
Treatment name(s)

(Ativan)
Perceived effectiveness
for Anxious mood (1 evaluation)
Side effects
Ataxia (lack of coordination) Dizziness 3 more
How many evaluations
1
Tried for
Anxious mood (3) Insomnia (1)
Check to add this treatment to your profile
Treatment name(s)

(Marijuana)
Perceived effectiveness
for Pain (7 evaluations)
Side effects
Anxious mood Depressed mood 2 more
How many evaluations
8
Tried for
Pain (3) Anxious mood (2)
2 more

Data from patients with Antiphospholipid Antibody Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Antiphospholipid Antibody Syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 26
30s 93
40s 153
50s 113
60s 45
70+ 5

Sex

Distribution of sex

91% Female
9% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 35
20-29 years 79
30-39 years 68
40-49 years 40
50-59 years 13
60-69 years 4
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 292
Not Diagnosed 13

These charts show data from Antiphospholipid syndrome patients who have completed their condition history
Last updated: