Antiphospholipid antibody syndrome

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What is antiphospholipid antibody syndrome?

Antiphospholipid syndrome, Hughes syndrome, or antiphospholipid antibody syndrome is a disorder that causes blood clots (thrombosis) to form in the arteries, veins, and vital organs.

Common symptoms reported by people with antiphospholipid antibody syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with antiphospholipid antibody syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Coumadin)
Type
Prescription Drug
How many have tried
7
Treatment name(s)

(Aspirin Low Dose)
Type
Over the Counter Drug
How many have tried
6
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Advil)
Type
Over the Counter Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)
Treatment name(s)

(Cannabidiol oil)
Type
Other
How many have tried
2
Tried for
pain (2) depressed mood (1)
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)
Treatment name(s)

(Xarelto)
Type
Prescription Drug
How many have tried
2

Data from patients with antiphospholipid antibody syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with antiphospholipid antibody syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Coumadin)
Perceived effectiveness
for antiphospholipid antibody syndrome (3 evaluations)
Side effects
abdominal bloating constipation 8 more
Total evaluations
3
Treatment name(s)

(Aspirin Low Dose)
Perceived effectiveness
for antiphospholipid antibody syndrome (1 evaluation)
Side effects
Total evaluations
1
Treatment name(s)

(Flexeril)
Perceived effectiveness
for pain (3 evaluations)
Side effects
drowsiness sleepiness
Total evaluations
3
Tried for
pain (3)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (2 evaluations)
Side effects
fatigue pain
Total evaluations
2
Tried for
pain (3)
Treatment name(s)

(Advil)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (3)
Treatment name(s)

(Lyrica)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (3)
Treatment name(s)

(BuSpar)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
sore mouth (stomatitis)
Total evaluations
1
Tried for
anxious mood (2)
Treatment name(s)

(Cannabidiol oil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (2) depressed mood (1)
Treatment name(s)

(Ativan)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
dizziness
Total evaluations
2
Tried for
anxious mood (2)
Treatment name(s)

(Xarelto)
Perceived effectiveness
for antiphospholipid antibody syndrome (1 evaluation)
Side effects
Total evaluations
1
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with antiphospholipid antibody syndrome, who reported starting treatments within the last 5 years.
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Who has antiphospholipid antibody syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 38
30s 122
40s 205
50s 199
60s 91
70+ 19
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 50
20-29 years 104
30-39 years 93
40-49 years 49
50-59 years 16
60-69 years 6
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 59
Female 624

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 445
Not Diagnosed 14

These charts show data from antiphospholipid antibody syndrome patients who have completed their condition history
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