Ulcerative colitis

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What is ulcerative colitis?

Ulcerative colitis is a type of inflammatory bowel disease that involves inflammation and ulceration in the lining of the large intestine (colon). It often involves a chronic cycle featuring episodes of worsening symptoms (including bloody diarrhea) and asymptomatic periods (i.e. remission).

Common symptoms reported by people with ulcerative colitis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with ulcerative colitis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Pentasa)
Type
Prescription Drug
How many have tried
29
Tried for
ulcerative colitis (28) diarrhea (1)
Treatment name(s)

(Canasa)
Type
Prescription Drug
How many have tried
12
Tried for
ulcerative colitis (12)
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
11
Tried for
ulcerative colitis (11)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
10
Tried for
ulcerative colitis (10)
Treatment name(s)

(Entyvio)
Type
Prescription Drug
How many have tried
10
Tried for
ulcerative colitis (10)
Treatment name(s)

(Humira)
Type
Prescription Drug
How many have tried
7
Tried for
ulcerative colitis (7)
Treatment name(s)

(Remicade)
Type
Prescription Drug
How many have tried
7
Tried for
ulcerative colitis (7)
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
7
Tried for
anxious mood (7)
Treatment name(s)

(Salazopyrin)
Type
Prescription Drug
How many have tried
7
Tried for
ulcerative colitis (7)
Treatment name(s)

(Colazal)
Type
Prescription Drug
How many have tried
6
Tried for
ulcerative colitis (6)

Data from patients with ulcerative colitis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with ulcerative colitis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Pentasa)
Perceived effectiveness
for ulcerative colitis (23 evaluations)
Side effects
headaches decreased appetite 12 more
Total evaluations
24
Tried for
ulcerative colitis (28) diarrhea (1)
Treatment name(s)

(Canasa)
Perceived effectiveness
for ulcerative colitis (5 evaluations)
Side effects
abdominal cramps diarrhea
Total evaluations
5
Tried for
ulcerative colitis (12)
Treatment name(s)

(Deltasone)
Perceived effectiveness
for ulcerative colitis (6 evaluations)
Side effects
weight gain balance problems 21 more
Total evaluations
6
Tried for
ulcerative colitis (11)
Treatment name(s)

(Imuran)
Perceived effectiveness
for ulcerative colitis (5 evaluations)
Side effects
blurry vision dizziness 8 more
Total evaluations
6
Tried for
ulcerative colitis (10)
Treatment name(s)

(Entyvio)
Perceived effectiveness
for ulcerative colitis (8 evaluations)
Side effects
nausea dry eye syndrome 4 more
Total evaluations
8
Tried for
ulcerative colitis (10)
Treatment name(s)

(Humira)
Perceived effectiveness
for ulcerative colitis (5 evaluations)
Side effects
acne breakout dizziness 3 more
Total evaluations
5
Tried for
ulcerative colitis (7)
Treatment name(s)

(Remicade)
Perceived effectiveness
for ulcerative colitis (3 evaluations)
Side effects
acne arthritis pain 11 more
Total evaluations
3
Tried for
ulcerative colitis (7)
Treatment name(s)

(Ativan)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
difficulty waking up
Total evaluations
1
Tried for
anxious mood (7)
Treatment name(s)

(Salazopyrin)
Perceived effectiveness
for ulcerative colitis (5 evaluations)
Side effects
nausea blood in stool 7 more
Total evaluations
5
Tried for
ulcerative colitis (7)
Treatment name(s)

(Colazal)
Perceived effectiveness
for ulcerative colitis (6 evaluations)
Side effects
weight gain excessive sweating
Total evaluations
6
Tried for
ulcerative colitis (6)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with ulcerative colitis, who reported starting treatments within the last 5 years.
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Who has ulcerative colitis on PatientsLikeMe?

  • 6 new patients joined this month
  • 1696 say ulcerative colitis is their primary condition

Age
Age Proportion # of patients
<20 28
20s 230
30s 483
40s 670
50s 666
60s 449
70+ 161
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 259
20-29 years 319
30-39 years 263
40-49 years 202
50-59 years 87
60-69 years 18
70+ years 7

Distribution of sex

Sex
Sex Proportion # of patients
Male 717
Female 2019

Types
Condition Types Proportion # of patients
Left-sided colitis 42
Pancolitis 44
Proctosigmoiditis 15
Ulcerative proctitis 32
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1493
Not Diagnosed 32

These charts show data from ulcerative colitis patients who have completed their condition history
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