Ulcerative colitis

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What is ulcerative colitis?

Ulcerative colitis is a type of inflammatory bowel disease that involves inflammation and ulceration in the lining of the large intestine (colon). It often involves a chronic cycle featuring episodes of worsening symptoms (including bloody diarrhea) and asymptomatic periods (i.e. remission).

Common symptoms reported by people with ulcerative colitis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with ulcerative colitis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Pentasa)
Type
Prescription Drug
How many have tried
40
Tried for
ulcerative colitis (39) diarrhea (2)
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
12
Tried for
ulcerative colitis (12) diarrhea (1)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
11
Tried for
ulcerative colitis (11)
Treatment name(s)

(Entyvio)
Type
Prescription Drug
How many have tried
11
Tried for
ulcerative colitis (11)
Treatment name(s)

(Remicade)
Type
Prescription Drug
How many have tried
10
Tried for
ulcerative colitis (10)
Treatment name(s)

(Canasa)
Type
Prescription Drug
How many have tried
10
Tried for
ulcerative colitis (10)
Treatment name(s)

(Humira)
Type
Prescription Drug
How many have tried
9
Tried for
ulcerative colitis (9)
Treatment name(s)

(Pulmicort)
Type
Prescription Drug
How many have tried
8
Tried for
ulcerative colitis (8)
Treatment name(s)

(Colazal)
Type
Prescription Drug
How many have tried
7
Tried for
ulcerative colitis (7)
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
7
Tried for
anxious mood (7)

Data from patients with ulcerative colitis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with ulcerative colitis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Pentasa)
Perceived effectiveness
for ulcerative colitis (23 evaluations)
Side effects
diarrhea headaches 11 more
Total evaluations
24
Tried for
ulcerative colitis (39) diarrhea (2)
Treatment name(s)

(Deltasone)
Perceived effectiveness
for ulcerative colitis (6 evaluations)
Side effects
balance problems difficulty doing daily activities 19 more
Total evaluations
6
Tried for
ulcerative colitis (12) diarrhea (1)
Treatment name(s)

(Imuran)
Perceived effectiveness
for ulcerative colitis (6 evaluations)
Side effects
blurry vision fatigue 7 more
Total evaluations
7
Tried for
ulcerative colitis (11)
Treatment name(s)

(Entyvio)
Perceived effectiveness
for ulcerative colitis (7 evaluations)
Side effects
nausea dry eye syndrome 3 more
Total evaluations
7
Tried for
ulcerative colitis (11)
Treatment name(s)

(Remicade)
Perceived effectiveness
for ulcerative colitis (4 evaluations)
Side effects
acne arthritis pain 13 more
Total evaluations
4
Tried for
ulcerative colitis (10)
Treatment name(s)

(Canasa)
Perceived effectiveness
for ulcerative colitis (3 evaluations)
Side effects
abdominal cramps
Total evaluations
3
Tried for
ulcerative colitis (10)
Treatment name(s)

(Humira)
Perceived effectiveness
for ulcerative colitis (7 evaluations)
Side effects
acne breakout dizziness 4 more
Total evaluations
7
Tried for
ulcerative colitis (9)
Treatment name(s)

(Pulmicort)
Perceived effectiveness
for ulcerative colitis (3 evaluations)
Side effects
breathing difficulty muscle cramps 2 more
Total evaluations
3
Tried for
ulcerative colitis (8)
Treatment name(s)

(Colazal)
Perceived effectiveness
for ulcerative colitis (6 evaluations)
Side effects
weight gain excessive sweating
Total evaluations
6
Tried for
ulcerative colitis (7)
Treatment name(s)

(Ativan)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
difficulty waking up
Total evaluations
1
Tried for
anxious mood (7)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with ulcerative colitis, who reported starting treatments within the last 5 years.
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Who has ulcerative colitis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 36
20s 222
30s 477
40s 660
50s 635
60s 409
70+ 130
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 256
20-29 years 311
30-39 years 261
40-49 years 201
50-59 years 85
60-69 years 17
70+ years 6

Distribution of sex

Sex
Sex Proportion # of patients
Male 685
Female 1929

Types
Condition Types Proportion # of patients
Left-sided colitis 21
Pancolitis 21
Proctosigmoiditis 5
Ulcerative proctitis 18
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1471
Not Diagnosed 30

These charts show data from ulcerative colitis patients who have completed their condition history
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