Ulcerative colitis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is ulcerative colitis?

Ulcerative colitis is a type of inflammatory bowel disease that involves inflammation and ulceration in the lining of the large intestine (colon). It often involves a chronic cycle featuring episodes of worsening symptoms (including bloody diarrhea) and asymptomatic periods (i.e. remission).

Common symptoms reported by people with ulcerative colitis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with ulcerative colitis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Pentasa)
Type
Prescription Drug
How many have tried
39
Tried for
ulcerative colitis (38) diarrhea (2)
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
13
Tried for
ulcerative colitis (13) diarrhea (1)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
11
Tried for
ulcerative colitis (11)
Treatment name(s)

(Remicade)
Type
Prescription Drug
How many have tried
11
Tried for
ulcerative colitis (11)
Treatment name(s)

(Canasa)
Type
Prescription Drug
How many have tried
11
Tried for
ulcerative colitis (11)
Treatment name(s)

(Humira)
Type
Prescription Drug
How many have tried
10
Tried for
ulcerative colitis (10)
Treatment name(s)

(Entyvio)
Type
Prescription Drug
How many have tried
10
Tried for
ulcerative colitis (10)
Treatment name(s)

(Colazal)
Type
Prescription Drug
How many have tried
7
Tried for
ulcerative colitis (7)
Treatment name(s)

(Pulmicort)
Type
Prescription Drug
How many have tried
7
Tried for
ulcerative colitis (7)
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
7
Tried for
anxious mood (7)

Data from patients with ulcerative colitis, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with ulcerative colitis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Pentasa)
Perceived effectiveness
for ulcerative colitis (27 evaluations)
Side effects
headaches diarrhea 12 more
Total evaluations
28
Tried for
ulcerative colitis (38) diarrhea (2)
Treatment name(s)

(Deltasone)
Perceived effectiveness
for ulcerative colitis (7 evaluations)
Side effects
weight gain balance problems 22 more
Total evaluations
7
Tried for
ulcerative colitis (13) diarrhea (1)
Treatment name(s)

(Imuran)
Perceived effectiveness
for ulcerative colitis (6 evaluations)
Side effects
blurry vision fatigue 7 more
Total evaluations
7
Tried for
ulcerative colitis (11)
Treatment name(s)

(Remicade)
Perceived effectiveness
for ulcerative colitis (5 evaluations)
Side effects
acne arthritis pain 14 more
Total evaluations
5
Tried for
ulcerative colitis (11)
Treatment name(s)

(Canasa)
Perceived effectiveness
for ulcerative colitis (4 evaluations)
Side effects
abdominal cramps diarrhea
Total evaluations
4
Tried for
ulcerative colitis (11)
Treatment name(s)

(Humira)
Perceived effectiveness
for ulcerative colitis (8 evaluations)
Side effects
acne breakout dizziness 5 more
Total evaluations
8
Tried for
ulcerative colitis (10)
Treatment name(s)

(Entyvio)
Perceived effectiveness
for ulcerative colitis (7 evaluations)
Side effects
nausea dry eye syndrome 3 more
Total evaluations
7
Tried for
ulcerative colitis (10)
Treatment name(s)

(Colazal)
Perceived effectiveness
for ulcerative colitis (6 evaluations)
Side effects
weight gain excessive sweating
Total evaluations
6
Tried for
ulcerative colitis (7)
Treatment name(s)

(Pulmicort)
Perceived effectiveness
for ulcerative colitis (4 evaluations)
Side effects
itchy skin muscle cramps 1 more
Total evaluations
4
Tried for
ulcerative colitis (7)
Treatment name(s)

(Ativan)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
difficulty waking up
Total evaluations
1
Tried for
anxious mood (7)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with ulcerative colitis, who reported starting treatments within the last 5 years.
Last updated:

Who has ulcerative colitis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 36
20s 224
30s 476
40s 668
50s 643
60s 416
70+ 134
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 258
20-29 years 313
30-39 years 260
40-49 years 200
50-59 years 85
60-69 years 17
70+ years 7

Distribution of sex

Sex
Sex Proportion # of patients
Male 695
Female 1948

Types
Condition Types Proportion # of patients
Left-sided colitis 24
Pancolitis 25
Proctosigmoiditis 8
Ulcerative proctitis 21
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1476
Not Diagnosed 30

These charts show data from ulcerative colitis patients who have completed their condition history
Last updated: