Ulcerative colitis

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  • help each other live better and uncover the best ways to manage your health today
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What is ulcerative colitis?

Ulcerative colitis is a type of inflammatory bowel disease that involves inflammation and ulceration in the lining of the large intestine (colon). It often involves a chronic cycle featuring episodes of worsening symptoms (including bloody diarrhea) and asymptomatic periods (i.e. remission).

Common symptoms reported by people with ulcerative colitis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for ulcerative colitis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Pentasa)
Type
Prescription Drug
How many have tried
1136
Tried for
ulcerative colitis (7)
Treatment name(s)

(Canasa)
Type
Prescription Drug
How many have tried
310
Tried for
ulcerative colitis (5)
Treatment name(s)

(Humira)
Type
Prescription Drug
How many have tried
34
Tried for
ulcerative colitis (4)
Treatment name(s)

(Pulmicort)
Type
Prescription Drug
How many have tried
78
Tried for
ulcerative colitis (4)
Treatment name(s)

(Entyvio)
Type
Prescription Drug
How many have tried
5
Tried for
ulcerative colitis (4)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
229
Tried for
ulcerative colitis (3)
Treatment name(s)

(Prednisone Intensol)
Type
Prescription Drug
How many have tried
448
Tried for
ulcerative colitis (3)
Treatment name(s)

(Remicade)
Type
Prescription Drug
How many have tried
49
Tried for
ulcerative colitis (2)
Treatment name(s)

(Salazopyrin)
Type
Prescription Drug
How many have tried
429
Tried for
ulcerative colitis (2)
Treatment name(s)

(Xeljanz)
Type
Prescription Drug
How many have tried
12
Tried for
ulcerative colitis (2)

Data from patients with ulcerative colitis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with ulcerative colitis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Pentasa)
Perceived effectiveness
for ulcerative colitis (5 evaluations)
Side effects
abdominal pain
Total evaluations
5
Tried for
ulcerative colitis (7)
Treatment name(s)

(Canasa)
Perceived effectiveness
for ulcerative colitis (4 evaluations)
Side effects
diarrhea
Total evaluations
4
Tried for
ulcerative colitis (5)
Treatment name(s)

(Humira)
Perceived effectiveness
for ulcerative colitis (2 evaluations)
Side effects
constant vomiting itchy skin
Total evaluations
2
Tried for
ulcerative colitis (4)
Treatment name(s)

(Pulmicort)
Perceived effectiveness
for ulcerative colitis (4 evaluations)
Side effects
itchy skin muscle cramps 1 more
Total evaluations
4
Tried for
ulcerative colitis (4)
Treatment name(s)

(Entyvio)
Perceived effectiveness
for ulcerative colitis (4 evaluations)
Side effects
fatigue post nasal drip
Total evaluations
4
Tried for
ulcerative colitis (4)
Treatment name(s)

(Imuran)
Perceived effectiveness
for ulcerative colitis (1 evaluation)
Side effects
pain in lower back
Total evaluations
1
Tried for
ulcerative colitis (3)
Treatment name(s)

(Prednisone Intensol)
Perceived effectiveness
for ulcerative colitis (1 evaluation)
Side effects
facial swelling/puffiness hunger at night 3 more
Total evaluations
1
Tried for
ulcerative colitis (3)
Treatment name(s)

(Remicade)
Perceived effectiveness
for ulcerative colitis (1 evaluation)
Side effects
joint stiffness
Total evaluations
1
Tried for
ulcerative colitis (2)
Treatment name(s)

(Salazopyrin)
Perceived effectiveness
for ulcerative colitis (2 evaluations)
Side effects
diarrhea fever 4 more
Total evaluations
2
Tried for
ulcerative colitis (2)
Treatment name(s)

(Xeljanz)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
ulcerative colitis (2)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with ulcerative colitis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has ulcerative colitis on PatientsLikeMe?

  • 8 new patients joined this month
  • 1813 say ulcerative colitis is their primary condition

Age
Age Proportion # of patients
<20 16
20s 186
30s 468
40s 658
50s 693
60s 563
70+ 236
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 265
20-29 years 317
30-39 years 265
40-49 years 203
50-59 years 88
60-69 years 18
70+ years 8

Distribution of sex

Sex
Sex Proportion # of patients
Male 761
Female 2109

Types
Condition Types Proportion # of patients
Left-sided colitis 67
Pancolitis 66
Proctosigmoiditis 19
Ulcerative proctitis 44
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1500
Not Diagnosed 30

These charts show data from ulcerative colitis patients who have completed their condition history
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