Ulcerative colitis

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What is ulcerative colitis?

Ulcerative colitis is a type of inflammatory bowel disease that involves inflammation and ulceration in the lining of the large intestine (colon). It often involves a chronic cycle featuring episodes of worsening symptoms (including bloody diarrhea) and asymptomatic periods (i.e. remission).

Common symptoms reported by people with ulcerative colitis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for ulcerative colitis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Pentasa)
Type
Prescription Drug
How many have tried
1095
Tried for
ulcerative colitis (26)
Treatment name(s)

(Canasa)
Type
Prescription Drug
How many have tried
289
Tried for
ulcerative colitis (12)
Treatment name(s)

(Entyvio)
Type
Prescription Drug
How many have tried
5
Tried for
ulcerative colitis (11)
Treatment name(s)

(Prednisone Intensol)
Type
Prescription Drug
How many have tried
417
Tried for
ulcerative colitis (10)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
223
Tried for
ulcerative colitis (9)
Treatment name(s)

(Humira)
Type
Prescription Drug
How many have tried
33
Tried for
ulcerative colitis (7)
Treatment name(s)

(Remicade)
Type
Prescription Drug
How many have tried
46
Tried for
ulcerative colitis (6)
Treatment name(s)

(Salazopyrin)
Type
Prescription Drug
How many have tried
421
Tried for
ulcerative colitis (6)
Treatment name(s)

(Colazal)
Type
Prescription Drug
How many have tried
114
Tried for
ulcerative colitis (5)
Treatment name(s)

(Panafcortelone)
Type
Prescription Drug
How many have tried
453
Tried for
ulcerative colitis (5)

Data from patients with ulcerative colitis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with ulcerative colitis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Pentasa)
Perceived effectiveness
for ulcerative colitis (23 evaluations)
Side effects
headaches decreased appetite 12 more
Total evaluations
23
Tried for
ulcerative colitis (26)
Treatment name(s)

(Canasa)
Perceived effectiveness
for ulcerative colitis (5 evaluations)
Side effects
abdominal cramps diarrhea
Total evaluations
5
Tried for
ulcerative colitis (12)
Treatment name(s)

(Entyvio)
Perceived effectiveness
for ulcerative colitis (9 evaluations)
Side effects
nausea dry eye syndrome 5 more
Total evaluations
9
Tried for
ulcerative colitis (11)
Treatment name(s)

(Prednisone Intensol)
Perceived effectiveness
for ulcerative colitis (6 evaluations)
Side effects
weight gain balance problems 21 more
Total evaluations
6
Tried for
ulcerative colitis (10)
Treatment name(s)

(Imuran)
Perceived effectiveness
for ulcerative colitis (5 evaluations)
Side effects
blurry vision dizziness 8 more
Total evaluations
6
Tried for
ulcerative colitis (9)
Treatment name(s)

(Humira)
Perceived effectiveness
for ulcerative colitis (6 evaluations)
Side effects
acne breakout constant vomiting 4 more
Total evaluations
6
Tried for
ulcerative colitis (7)
Treatment name(s)

(Remicade)
Perceived effectiveness
for ulcerative colitis (2 evaluations)
Side effects
joint stiffness muscle and joint pain 2 more
Total evaluations
2
Tried for
ulcerative colitis (6)
Treatment name(s)

(Salazopyrin)
Perceived effectiveness
for ulcerative colitis (5 evaluations)
Side effects
nausea blood in stool 7 more
Total evaluations
5
Tried for
ulcerative colitis (6)
Treatment name(s)

(Colazal)
Perceived effectiveness
for ulcerative colitis (5 evaluations)
Side effects
weight gain excessive sweating
Total evaluations
5
Tried for
ulcerative colitis (5)
Treatment name(s)

(Panafcortelone)
Perceived effectiveness
for ulcerative colitis (4 evaluations)
Side effects
depressed mood dizziness 5 more
Total evaluations
4
Tried for
ulcerative colitis (5)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with ulcerative colitis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has ulcerative colitis on PatientsLikeMe?

  • 5 new patients joined this month
  • 1722 say ulcerative colitis is their primary condition

Age
Age Proportion # of patients
<20 25
20s 226
30s 479
40s 672
50s 668
60s 468
70+ 174
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 261
20-29 years 319
30-39 years 262
40-49 years 202
50-59 years 87
60-69 years 18
70+ years 8

Distribution of sex

Sex
Sex Proportion # of patients
Male 725
Female 2038

Types
Condition Types Proportion # of patients
Left-sided colitis 50
Pancolitis 49
Proctosigmoiditis 16
Ulcerative proctitis 36
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1496
Not Diagnosed 31

These charts show data from ulcerative colitis patients who have completed their condition history
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