Scleroderma
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- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is scleroderma?
Scleroderma is a rare chronic autoimmune disease characterized by hardening (fibrosis) and vascular abnormalities. It is a multisystem condition that can involve the skin, joints, and internal organs, including the upper and lower digestive tract, lung, heart, and kidneys.
Common symptoms reported by people with scleroderma
Treatments taken by people for scleroderma
Let’s build this page together! When you share what it’s like to have scleroderma through your profile, those stories and data appear here too.
Got a question about living with scleroderma? Members in the forum might have the answers.
Compare treatments taken by people with scleroderma
Let’s build this page together! When you share what it’s like to have scleroderma through your profile, those stories and data appear here too.
Got a question about living with scleroderma? Members in the forum might have the answers.
Who has scleroderma on PatientsLikeMe?
- 3 new patients joined this month
- 693 say scleroderma is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 23 | |
| 30s | 63 | |
| 40s | 157 | |
| 50s | 252 | |
| 60s | 279 | |
| 70+ | 116 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 34 | |
| 20-29 years | 40 | |
| 30-39 years | 74 | |
| 40-49 years | 93 | |
| 50-59 years | 46 | |
| 60-69 years | 14 | |
| 70+ years | 2 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 82 | |
| Female | 821 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 404 | |
| Not Diagnosed | 19 |