Scleroderma

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  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

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What is scleroderma?

Scleroderma is a rare chronic autoimmune disease characterized by hardening (fibrosis) and vascular abnormalities. It is a multisystem condition that can involve the skin, joints, and internal organs, including the upper and lower digestive tract, lung, heart, and kidneys.

Common symptoms reported by people with scleroderma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for scleroderma

Let’s build this page together! When you share what it’s like to have scleroderma through your profile, those stories and data appear here too.

Got a question about living with scleroderma? Members in the forum might have the answers.

Compare treatments taken by people with scleroderma

Let’s build this page together! When you share what it’s like to have scleroderma through your profile, those stories and data appear here too.

Got a question about living with scleroderma? Members in the forum might have the answers.

Who has scleroderma on PatientsLikeMe?

  • 3 new patients joined this month
  • 693 say scleroderma is their primary condition

Age
Age Proportion # of patients
<20 1
20s 23
30s 63
40s 157
50s 252
60s 279
70+ 116
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 34
20-29 years 40
30-39 years 74
40-49 years 93
50-59 years 46
60-69 years 14
70+ years 2

Distribution of sex

Sex
Sex Proportion # of patients
Male 82
Female 821

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 404
Not Diagnosed 19

These charts show data from scleroderma patients who have completed their condition history
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