What is scleroderma?

Scleroderma is a rare chronic autoimmune disease characterized by hardening (fibrosis) and vascular abnormalities. It is a multisystem condition that can involve the skin, joints, and internal organs, including the upper and lower digestive tract, lung, heart, and kidneys.

How do members experience scleroderma?

Top 5 symptoms reported by people with scleroderma*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for scleroderma*

Who has scleroderma on PatientsLikeMe?


Age Proportion # of patients
<20 2
20s 17
30s 75
40s 139
50s 260
60s 297
70+ 144

Distribution of sex


Sex Proportion # of patients
Male 89
Female 851