Pulmonary hypertension
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- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is pulmonary hypertension?
Pulmonary hypertension is abnormally high blood pressure in the blood vessels of the lungs making the right side of the heart need to work harder than normal. Causes include autoimmune diseases, blood clots, congestive heart failure, heart valve disease, lung diseases, certain medications.
Common symptoms reported by people with pulmonary hypertension
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for pulmonary hypertension
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with pulmonary hypertension, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with pulmonary hypertension
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pulmonary hypertension
(2)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pulmonary hypertension
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with pulmonary hypertension, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has pulmonary hypertension on PatientsLikeMe?
- 3 new patients joined this month
- 239 say pulmonary hypertension is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 3 | |
| 20s | 18 | |
| 30s | 57 | |
| 40s | 125 | |
| 50s | 197 | |
| 60s | 282 | |
| 70+ | 424 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 15 | |
| 20-29 years | 24 | |
| 30-39 years | 37 | |
| 40-49 years | 58 | |
| 50-59 years | 62 | |
| 60-69 years | 34 | |
| 70+ years | 22 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 382 | |
| Female | 730 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 790 | |
| Not Diagnosed | 24 |
These charts show data from pulmonary hypertension patients who have completed their condition history
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