Pulmonary hypertension
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is pulmonary hypertension?
Pulmonary hypertension is abnormally high blood pressure in the blood vessels of the lungs making the right side of the heart need to work harder than normal. Causes include autoimmune diseases, blood clots, congestive heart failure, heart valve disease, lung diseases, certain medications.
Common symptoms reported by people with pulmonary hypertension
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people with pulmonary hypertension
Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Oxygen therapy
Type
Prescription Drug
How many have tried
54
Tried for
pulmonary hypertension
(54)
shortness of breath (dyspnea)
(2)
Treatment name(s)
Oxygen Concentrator
Type
Equipment
How many have tried
4
Tried for
shortness of breath (dyspnea)
(4)
Type
Prescription Drug
How many have tried
3
Tried for
pulmonary hypertension
(2)
swelling in lower extremities
(1)
Data from patients with pulmonary hypertension, who reported starting treatments within the last 5 years.
Last updated:
Compare treatments taken by people with pulmonary hypertension
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Oxygen therapy
Perceived effectiveness
for pulmonary hypertension (27 evaluations)
Total evaluations
35
Tried for
pulmonary hypertension
(54)
shortness of breath (dyspnea)
(2)
Perceived effectiveness
for pulmonary hypertension (1 evaluation)
Total evaluations
2
Tried for
pulmonary hypertension
(6)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pulmonary hypertension
(5)
Perceived effectiveness
for pain (3 evaluations)
Side effects
slurred speech
stumbling
Total evaluations
3
Tried for
pain
(4)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pulmonary hypertension
(4)
Treatment name(s)
Oxygen Concentrator
Perceived effectiveness
for shortness of breath (dyspnea) (1 evaluation)
Side effects
Total evaluations
1
Tried for
shortness of breath (dyspnea)
(4)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pulmonary hypertension
(4)
Perceived effectiveness
for pulmonary hypertension (1 evaluation)
Side effects
increased urination
low potassium (hypokalemia)
Total evaluations
5
Tried for
pulmonary hypertension
(2)
swelling in lower extremities
(1)
Perceived effectiveness
for pain (2 evaluations)
Side effects
neuropathy in feet
Total evaluations
2
Tried for
pain
(3)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with pulmonary hypertension, who reported starting treatments within the last 5 years.
Last updated:
Who has pulmonary hypertension on PatientsLikeMe?
- 1074 patients have this condition
- 4 new patients joined this month
- 202 say pulmonary hypertension is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 3 | |
| 20s | 23 | |
| 30s | 77 | |
| 40s | 132 | |
| 50s | 209 | |
| 60s | 252 | |
| 70+ | 318 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 15 | |
| 20-29 years | 25 | |
| 30-39 years | 34 | |
| 40-49 years | 58 | |
| 50-59 years | 58 | |
| 60-69 years | 27 | |
| 70+ years | 19 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 360 | |
| Female | 659 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 770 | |
| Not Diagnosed | 24 |
These charts show data from pulmonary hypertension patients who have completed their condition history
Last updated: