Pulmonary hypertension

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is pulmonary hypertension?

Pulmonary hypertension is abnormally high blood pressure in the blood vessels of the lungs making the right side of the heart need to work harder than normal. Causes include autoimmune diseases, blood clots, congestive heart failure, heart valve disease, lung diseases, certain medications.

Common symptoms reported by people with pulmonary hypertension

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for pulmonary hypertension

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(transtracheal oxygen)
Type
Prescription Drug
How many have tried
542
Tried for
pulmonary hypertension (2)
Treatment name(s)

(Nifedical XL)
Type
Prescription Drug
How many have tried
29
Tried for
pulmonary hypertension (1)

Data from patients with pulmonary hypertension, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Compare treatments taken by people with pulmonary hypertension

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(transtracheal oxygen)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pulmonary hypertension (2)
Treatment name(s)

(Nifedical XL)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pulmonary hypertension (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with pulmonary hypertension, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Who has pulmonary hypertension on PatientsLikeMe?

  • 3 new patients joined this month
  • 239 say pulmonary hypertension is their primary condition

Age
Age Proportion # of patients
<20 3
20s 18
30s 57
40s 125
50s 197
60s 282
70+ 424
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 15
20-29 years 24
30-39 years 37
40-49 years 58
50-59 years 62
60-69 years 34
70+ years 22

Distribution of sex

Sex
Sex Proportion # of patients
Male 382
Female 730

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 790
Not Diagnosed 24

These charts show data from pulmonary hypertension patients who have completed their condition history
Last updated: