Post-concussion syndrome

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What is post-concussion syndrome?

Post concussion syndrome is a set of symptoms such as headache, dizziness, fatigue, and problems concentrating, that may be experienced for weeks, months, or more after a concussion, especially if the concussion was severe enough to lose consciousness.

Common symptoms reported by people with post-concussion syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with post-concussion syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
7
Tried for
pain (6) post-concussion syndrome (1)
Treatment name(s)

(Voltaren)
Type
Prescription Drug
How many have tried
4
Tried for
pain (4)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
4
Tried for
anxious mood (4) depressed mood (3)
1 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
4
Tried for
pain (4)
Treatment name(s)

(Ibuprofen Prescription)
Type
Over the Counter Drug
How many have tried
4
Tried for
pain (4)
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
4
Tried for
depressed mood (4)
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Type
Procedures
How many have tried
3
Tried for
pain (3) anxious mood (1)
2 more
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
3
Tried for
anxious mood (3)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
3
Tried for
depressed mood (3) anxious mood (2)
2 more
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
3
Tried for
anxious mood (3)

Data from patients with post-concussion syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with post-concussion syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (4 evaluations)
Side effects
forgetfulness numbness in face 1 more
Total evaluations
5
Tried for
pain (6) post-concussion syndrome (1)
Treatment name(s)

(Voltaren)
Perceived effectiveness
for pain (1 evaluation)
Side effects
diarrhea numbness in legs
Total evaluations
1
Tried for
pain (4)
Treatment name(s)

(Lexapro)
Perceived effectiveness
for anxious mood (4 evaluations)
Side effects
ejaculation delayed ejaculation difficult 5 more
Total evaluations
4
Tried for
anxious mood (4) depressed mood (3)
1 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (2 evaluations)
Side effects
blurry vision constipation 1 more
Total evaluations
2
Tried for
pain (4)
Treatment name(s)

(Ibuprofen Prescription)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (4)
Treatment name(s)

(Zoloft)
Perceived effectiveness
for depressed mood (3 evaluations)
Side effects
decreased sex drive (libido) tremor(s)
Total evaluations
3
Tried for
depressed mood (4)
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Perceived effectiveness
for pain (2 evaluations)
Side effects
fatigue
Total evaluations
2
Tried for
pain (3) anxious mood (1)
2 more
Treatment name(s)

(Klonopin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (3)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
Tried for
depressed mood (3) anxious mood (2)
2 more
Treatment name(s)

(Vistaril)
Perceived effectiveness
for anxious mood (3 evaluations)
Side effects
drowsiness loss of coordination 1 more
Total evaluations
3
Tried for
anxious mood (3)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with post-concussion syndrome, who reported starting treatments within the last 5 years.
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Who has post-concussion syndrome on PatientsLikeMe?

  • 2 new patients joined this month
  • 377 say post-concussion syndrome is their primary condition

Age
Age Proportion # of patients
<20 18
20s 131
30s 243
40s 401
50s 494
60s 270
70+ 71
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 33
20-29 years 55
30-39 years 52
40-49 years 48
50-59 years 29
60-69 years 5
70+ years 2

Distribution of sex

Sex
Sex Proportion # of patients
Male 600
Female 1046

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 267
Not Diagnosed 28

These charts show data from post-concussion syndrome patients who have completed their condition history
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