Lymphedema

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What is lymphedema?

Lymphedema is the accumulation of a fluid called lymph. The lymphatic system carries this fluid through lymph vessels and lymph nodes throughout the body. Swelling may occur when there is an increase in the amount of fluid or due to blockage that disrupts the normal flow.

Common symptoms reported by people with lymphedema

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for lymphedema

Let’s build this page together! When you share what it’s like to have lymphedema through your profile, those stories and data appear here too.

Got a question about living with lymphedema? Members in the forum might have the answers.

Compare treatments taken by people with lymphedema

Let’s build this page together! When you share what it’s like to have lymphedema through your profile, those stories and data appear here too.

Got a question about living with lymphedema? Members in the forum might have the answers.

Who has lymphedema on PatientsLikeMe?

  • 2 new patients joined this month
  • 178 say lymphedema is their primary condition

Age
Age Proportion # of patients
<20 0
20s 13
30s 50
40s 157
50s 372
60s 357
70+ 119
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 22
20-29 years 19
30-39 years 47
40-49 years 71
50-59 years 44
60-69 years 26
70+ years 6

Distribution of sex

Sex
Sex Proportion # of patients
Male 63
Female 1025

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 287
Not Diagnosed 16

These charts show data from lymphedema patients who have completed their condition history
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