Idiopathic angioedema

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What is idiopathic angioedema?

Idiopathic angioedema is a reaction similar to hives. It affects deeper layers of the skin, and the cause is unknown. Angioedema often appears around the eyes, cheeks and/or lips. Symptoms include, swelling of the skin, pain or warmth in the affected areas, and large welts.

Common symptoms reported by people with idiopathic angioedema

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for idiopathic angioedema

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Allegra)
Type
Prescription Drug
How many have tried
72
Tried for
idiopathic angioedema (3)
Treatment name(s)

(Zyrtec)
Type
Over the Counter Drug
How many have tried
129
Tried for
idiopathic angioedema (2)
Treatment name(s)

(Claritin)
Type
Over the Counter Drug
How many have tried
55
Tried for
idiopathic angioedema (2)
Treatment name(s)

(Benadryl)
Type
Over the Counter Drug
How many have tried
103
Tried for
idiopathic angioedema (1)
Treatment name(s)

(Xyzal)
Type
Prescription Drug
How many have tried
16
Tried for
idiopathic angioedema (1)

Data from patients with idiopathic angioedema, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with idiopathic angioedema

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Allegra)
Perceived effectiveness
for idiopathic angioedema (3 evaluations)
Side effects
Total evaluations
3
Tried for
idiopathic angioedema (3)
Treatment name(s)

(Zyrtec)
Perceived effectiveness
for idiopathic angioedema (2 evaluations)
Side effects
facial swelling/puffiness
Total evaluations
2
Tried for
idiopathic angioedema (2)
Treatment name(s)

(Claritin)
Perceived effectiveness
for idiopathic angioedema (1 evaluation)
Side effects
Total evaluations
1
Tried for
idiopathic angioedema (2)
Treatment name(s)

(Benadryl)
Perceived effectiveness
for idiopathic angioedema (1 evaluation)
Side effects
drowsy in morning
Total evaluations
1
Tried for
idiopathic angioedema (1)
Treatment name(s)

(Xyzal)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
idiopathic angioedema (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with idiopathic angioedema, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has idiopathic angioedema on PatientsLikeMe?

  • 1 new patients joined this month
  • 179 say idiopathic angioedema is their primary condition

Age
Age Proportion # of patients
<20 6
20s 27
30s 44
40s 48
50s 48
60s 44
70+ 22
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 20
20-29 years 11
30-39 years 16
40-49 years 14
50-59 years 10
60-69 years 1
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 39
Female 208

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 85
Not Diagnosed 4

These charts show data from idiopathic angioedema patients who have completed their condition history
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