Complex regional pain syndrome type II

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What is complex regional pain syndrome type II?

Complex regional pain syndrome (CRPS) is a chronic progressive disease characterized by severe pain, swelling and changes in the skin. Type II, formerly known as causalgia, is similar to Type I but involves overt damage to a peripheral nerve.

Common symptoms reported by people with complex regional pain syndrome type II

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with complex regional pain syndrome type II

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
9
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
7
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
7
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
4
Treatment name(s)

(Home Physical Therapy)
Type
Physical Therapy
How many have tried
4
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
3
Tried for
depressed mood (3) pain (1)
Treatment name(s)

(Cannabidiol CBD oil)
Type
Other
How many have tried
2
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
2
Treatment name(s)

(Dilaudid)
Type
Prescription Drug
How many have tried
2
Treatment name(s)
Type
Equipment
How many have tried
2

Data from patients with complex regional pain syndrome type II, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with complex regional pain syndrome type II

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for complex regional pain syndrome type II (8 evaluations)
Side effects
dizziness drooping eyelid (ptosis) 5 more
Total evaluations
9
Treatment name(s)

(Lyrica)
Perceived effectiveness
for complex regional pain syndrome type II (4 evaluations)
Side effects
drowsiness confusion 5 more
Total evaluations
5
Treatment name(s)

(Ultram)
Perceived effectiveness
for complex regional pain syndrome type II (4 evaluations)
Side effects
an overall crappy feeling all the time headaches
Total evaluations
4
Treatment name(s)

(Elavil)
Perceived effectiveness
for complex regional pain syndrome type II (1 evaluation)
Side effects
drowsiness
Total evaluations
2
Treatment name(s)

(Home Physical Therapy)
Perceived effectiveness
for complex regional pain syndrome type II (1 evaluation)
Side effects
increased pain
Total evaluations
1
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood (3) pain (1)
Treatment name(s)

(Cannabidiol CBD oil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Norco)
Perceived effectiveness
for complex regional pain syndrome type II (3 evaluations)
Side effects
chronic constipation nausea
Total evaluations
3
Treatment name(s)

(Dilaudid)
Perceived effectiveness
for complex regional pain syndrome type II (1 evaluation)
Side effects
brain fog cognitive confusion 2 more
Total evaluations
2
Treatment name(s)
Perceived effectiveness
for complex regional pain syndrome type II (7 evaluations)
Side effects
Hospitalization implant site pain 2 more
Total evaluations
7
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with complex regional pain syndrome type II, who reported starting treatments within the last 5 years.
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Who has complex regional pain syndrome type II on PatientsLikeMe?

  • 0 new patients joined this month
  • 454 say CRPS type II is their primary condition

Age
Age Proportion # of patients
<20 3
20s 24
30s 67
40s 121
50s 241
60s 111
70+ 21
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 20
20-29 years 42
30-39 years 61
40-49 years 72
50-59 years 28
60-69 years 8
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 97
Female 502

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 274
Not Diagnosed 15

These charts show data from CRPS type II patients who have completed their condition history
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