Complex regional pain syndrome type II

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

See more

What is complex regional pain syndrome type II?

Complex regional pain syndrome (CRPS) is a chronic progressive disease characterized by severe pain, swelling and changes in the skin. Type II, formerly known as causalgia, is similar to Type I but involves overt damage to a peripheral nerve.

Common symptoms reported by people with complex regional pain syndrome type II

Common symptoms
How bad it is
What people are taking for it
Common symptom
How bad it is
What people are taking for it
Hydrocodone-Acetaminophen Diclofenac Neuromuscular Electrical Stimulation
Common symptom
How bad it is
What people are taking for it
Cognitive Behavioral Therapy (CBT) Hypnotherapy Meditation
Common symptom
How bad it is
What people are taking for it
Amphetamine-Dextroamphetamine Methylphenidate Armodafinil
Common symptom
How bad it is
What people are taking for it
Clonazepam Alprazolam Lorazepam
Common symptom
How bad it is
What people are taking for it
Duloxetine Sertraline Venlafaxine
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with complex regional pain syndrome type II

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
10
Tried for
complex regional pain syndrome type II (9) pain (1)
Treatment name(s)

(Lidocaine Viscous)
Type
Prescription Drug
How many have tried
8
Tried for
complex regional pain syndrome type II (8)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
7
Tried for
complex regional pain syndrome type II (7)
Treatment name(s)

(Home Physical Therapy)
Type
Physical Therapy
How many have tried
6
Tried for
complex regional pain syndrome type II (6)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
6
Tried for
complex regional pain syndrome type II (5) pain (1)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
4
Tried for
complex regional pain syndrome type II (3) depressed mood (1)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
4
Tried for
depressed mood (4) pain (2)
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
4
Tried for
anxious mood (3) depressed mood (1)
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (1) fatigue (1)
Treatment name(s)

(Cannabidiol CBD oil)
Type
Other
How many have tried
2
Tried for
complex regional pain syndrome type II (2) anxious mood (1)
1 more
Data from patients with complex regional pain syndrome type II, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with complex regional pain syndrome type II

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for complex regional pain syndrome type II (8 evaluations)
Side effects
dizziness drooping eyelid (ptosis) 6 more
Total evaluations
9
Tried for
complex regional pain syndrome type II (9) pain (1)
Treatment name(s)

(Lidocaine Viscous)
Perceived effectiveness
for complex regional pain syndrome type II (7 evaluations)
Side effects
Total evaluations
7
Tried for
complex regional pain syndrome type II (8)
Treatment name(s)

(Ultram)
Perceived effectiveness
for complex regional pain syndrome type II (4 evaluations)
Side effects
an overall crappy feeling all the time headaches
Total evaluations
4
Tried for
complex regional pain syndrome type II (7)
Treatment name(s)

(Home Physical Therapy)
Perceived effectiveness
for complex regional pain syndrome type II (1 evaluation)
Side effects
back pain increased pain
Total evaluations
2
Tried for
complex regional pain syndrome type II (6)
Treatment name(s)

(Lyrica)
Perceived effectiveness
for complex regional pain syndrome type II (3 evaluations)
Side effects
drowsiness confusion 5 more
Total evaluations
4
Tried for
complex regional pain syndrome type II (5) pain (1)
Treatment name(s)

(Elavil)
Perceived effectiveness
for complex regional pain syndrome type II (1 evaluation)
Side effects
drowsiness
Total evaluations
2
Tried for
complex regional pain syndrome type II (3) depressed mood (1)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (4 evaluations)
Side effects
Total evaluations
4
Tried for
depressed mood (4) pain (2)
Treatment name(s)

(Ativan)
Perceived effectiveness
for anxious mood (3 evaluations)
Side effects
dizziness drowsiness 4 more
Total evaluations
3
Tried for
anxious mood (3) depressed mood (1)
Treatment name(s)

(Adderall)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
restlessness (akathisia)
Total evaluations
1
Tried for
anxious mood (1) fatigue (1)
Treatment name(s)

(Cannabidiol CBD oil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
complex regional pain syndrome type II (2) anxious mood (1)
1 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None
Data from patients with complex regional pain syndrome type II, who reported starting treatments within the last 5 years.
Last updated:

Who has complex regional pain syndrome type II on PatientsLikeMe?

Age
Age Proportion # of patients
<20 3
20s 27
30s 61
40s 122
50s 224
60s 97
70+ 13
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 19
20-29 years 41
30-39 years 59
40-49 years 71
50-59 years 27
60-69 years 8
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 86
Female 472
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 267
Not Diagnosed 14
These charts show data from CRPS type II patients who have completed their condition history
Last updated: