Chronic pain syndrome

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is chronic pain syndrome?

Chronic pain may be in one area of the body or more generalized. The type of pain is based on symptoms and underlying cause. Types of chronic pain may include myofascial (soft tissue areas), musculoskeletal (muscles, joints, bones), neuropathic (nerve), chronic back syndrome and headache syndromes.

Common symptoms reported by people with chronic pain syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with chronic pain syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
31
Tried for
pain (27) chronic pain syndrome (4)
2 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
23
Tried for
pain (22) chronic pain syndrome (2)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
22
Tried for
depressed mood (14) chronic pain syndrome (7)
2 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
18
Tried for
pain (15) chronic pain syndrome (5)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
18
Tried for
pain (14) chronic pain syndrome (4)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
17
Tried for
anxious mood (17)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
14
Tried for
pain (12) chronic pain syndrome (1)
1 more
Treatment name(s)

(Oxycodone IR)
Type
Prescription Drug
How many have tried
14
Tried for
pain (11) chronic pain syndrome (4)
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
12
Tried for
anxious mood (12)
Treatment name(s)

(Low Dose Naltrexone (LDN))
Type
Prescription Drug
How many have tried
12
Tried for
chronic pain syndrome (6) fatigue (5)
1 more

Data from patients with chronic pain syndrome, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with chronic pain syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (20 evaluations)
Side effects
weight gain fatigue 24 more
Total evaluations
22
Tried for
pain (27) chronic pain syndrome (4)
2 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (9 evaluations)
Side effects
chronic constipation constipation 2 more
Total evaluations
9
Tried for
pain (22) chronic pain syndrome (2)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (12 evaluations)
Side effects
sweating increased breathing difficulty 11 more
Total evaluations
18
Tried for
depressed mood (14) chronic pain syndrome (7)
2 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (10 evaluations)
Side effects
itchy nose blurry vision 8 more
Total evaluations
13
Tried for
pain (15) chronic pain syndrome (5)
Treatment name(s)

(Lyrica)
Perceived effectiveness
for pain (15 evaluations)
Side effects
fatigue breakthrough pain 10 more
Total evaluations
20
Tried for
pain (14) chronic pain syndrome (4)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (12 evaluations)
Side effects
brain fog drowsiness 5 more
Total evaluations
14
Tried for
anxious mood (17)
Treatment name(s)

(Elavil)
Perceived effectiveness
for pain (11 evaluations)
Side effects
dry mouth excessive daytime sleepiness (somnolence) 12 more
Total evaluations
12
Tried for
pain (12) chronic pain syndrome (1)
1 more
Treatment name(s)

(Oxycodone IR)
Perceived effectiveness
for pain (6 evaluations)
Side effects
constipation decreased appetite 4 more
Total evaluations
10
Tried for
pain (11) chronic pain syndrome (4)
Treatment name(s)

(Vistaril)
Perceived effectiveness
for anxious mood (5 evaluations)
Side effects
drowsiness loss of coordination 2 more
Total evaluations
5
Tried for
anxious mood (12)
Treatment name(s)

(Low Dose Naltrexone (LDN))
Perceived effectiveness
for chronic pain syndrome (2 evaluations)
Side effects
itchy rash vivid dreams in first week
Total evaluations
9
Tried for
chronic pain syndrome (6) fatigue (5)
1 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with chronic pain syndrome, who reported starting treatments within the last 5 years.
Last updated:

Who has chronic pain syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 16
20s 152
30s 536
40s 1091
50s 1474
60s 1023
70+ 296
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 238
20-29 years 444
30-39 years 576
40-49 years 407
50-59 years 165
60-69 years 32
70+ years 7

Distribution of sex

Sex
Sex Proportion # of patients
Male 889
Female 3716

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2191
Not Diagnosed 365

These charts show data from chronic pain syndrome patients who have completed their condition history
Last updated: