Human immunodeficiency virus (HIV)
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is human immunodeficiency virus (HIV)?
HIV (human immunodeficiency virus) is a viral infection which can lead to acquired immunodeficiency syndrome (AIDS). HIV specifically attacks CD4 cells, which are part of the body's immune system. With treatment, often called antiretroviral therapy (ART), HIV infection can be well-controlled.
Common symptoms reported by people with human immunodeficiency virus (HIV)
Common symptoms
How bad it is
What people are taking for it
Common symptom
Sensitivity to heat and cold
How bad it is
What people are taking for it
Nothing reported yet
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people for human immunodeficiency virus (HIV)
Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Darunavir-cobicistat-tenofovir alafenamide-emtricitabine (DRV/c/TAF/FTC)
(Symtuza)
Type
Prescription Drug
How many have tried
0
Tried for
human immunodeficiency virus (HIV)
(2)
Treatment name(s)
Lamivudine-tenofovir disoproxil (3TC/TDF)
Type
Prescription Drug
How many have tried
2
Tried for
human immunodeficiency virus (HIV)
(2)
Treatment name(s)
Abacavir-dolutegravir-lamivudine (ABC/DTG/3TC)
Type
Prescription Drug
How many have tried
12
Tried for
human immunodeficiency virus (HIV)
(1)
Data from patients with human immunodeficiency virus (HIV), who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with human immunodeficiency virus (HIV)
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for human immunodeficiency virus (HIV) (12 evaluations)
Total evaluations
12
Tried for
human immunodeficiency virus (HIV)
(17)
Perceived effectiveness
for human immunodeficiency virus (HIV) (3 evaluations)
Side effects
stomach distention
weight gain
Total evaluations
3
Tried for
human immunodeficiency virus (HIV)
(5)
Perceived effectiveness
for human immunodeficiency virus (HIV) (2 evaluations)
Side effects
anxious dreams
Total evaluations
2
Tried for
human immunodeficiency virus (HIV)
(2)
Treatment name(s)
Darunavir-cobicistat-tenofovir alafenamide-emtricitabine (DRV/c/TAF/FTC)
(Symtuza)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
human immunodeficiency virus (HIV)
(2)
Treatment name(s)
Lamivudine-tenofovir disoproxil (3TC/TDF)
Perceived effectiveness
for human immunodeficiency virus (HIV) (1 evaluation)
Side effects
Total evaluations
1
Tried for
human immunodeficiency virus (HIV)
(2)
Treatment name(s)
Abacavir-dolutegravir-lamivudine (ABC/DTG/3TC)
Perceived effectiveness
for human immunodeficiency virus (HIV) (1 evaluation)
Side effects
Total evaluations
1
Tried for
human immunodeficiency virus (HIV)
(1)
Perceived effectiveness
for human immunodeficiency virus (HIV) (1 evaluation)
Side effects
Total evaluations
1
Tried for
human immunodeficiency virus (HIV)
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
human immunodeficiency virus (HIV)
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
human immunodeficiency virus (HIV)
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
human immunodeficiency virus (HIV)
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with human immunodeficiency virus (HIV), who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has human immunodeficiency virus (HIV) on PatientsLikeMe?
- 12 new patients joined this month
- 3925 say HIV is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 8 | |
| 20s | 78 | |
| 30s | 463 | |
| 40s | 781 | |
| 50s | 894 | |
| 60s | 577 | |
| 70+ | 171 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 26 | |
| 20-29 years | 215 | |
| 30-39 years | 214 | |
| 40-49 years | 101 | |
| 50-59 years | 36 | |
| 60-69 years | 3 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 2193 | |
| Female | 790 |
| Condition Types | Proportion | # of patients |
|---|---|---|
| HIV-1: Group M: CRF | 107 | |
| HIV-1: Group M: Type A1 | 245 | |
| HIV-1: Group M: Type A2 | 19 | |
| HIV-1: Group M: Type A3 | 2 | |
| HIV-1: Group M: Type A4 | 4 | |
| HIV-1: Group M: Type A6 | 1 | |
| HIV-1: Group M: Type B | 120 | |
| HIV-1: Group M: Type C | 15 | |
| HIV-1: Group M: Type D | 9 | |
| HIV-1: Group M: Type F1 | 11 | |
| HIV-1: Group M: Type F2 | 5 | |
| HIV-1: Group M: Type G | 6 | |
| HIV-1: Group M: Type H | 5 | |
| HIV-1: Group M: Type J | 1 | |
| HIV-1: Group M: Type K | 2 | |
| HIV-1: Group N | 6 | |
| HIV-1: Group O | 35 | |
| HIV-1: Group P | 1 | |
| HIV-2 | 30 | |
| HIV subtype not listed | 10 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 1199 | |
| Not Diagnosed | 46 |
These charts show data from HIV patients who have completed their condition history
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