First bite syndrome

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is first bite syndrome?

First bite syndrome is characterized as pain in the parotid (salivary gland) gland or lower jaw area (mandibular region) at the first bite and, subsequently improves with each bite. The cause is unclear but, may be related to nerve impairment from surgery or other conditions.

Common symptoms reported by people with first bite syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with first bite syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)

Data from patients with first bite syndrome, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with first bite syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Elavil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with first bite syndrome, who reported starting treatments within the last 5 years.
Last updated:

Who has first bite syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 10
30s 16
40s 17
50s 26
60s 19
70+ 7
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 3
30-39 years 5
40-49 years 2
50-59 years 3
60-69 years 2
70+ years 2

Sex

Distribution of sex

65% Female
35% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 16
Not Diagnosed 13

These charts show data from first bite syndrome patients who have completed their condition history
Last updated: