What is Acetazolamide?

Category: Prescription Drugs

Most popular types: Diamox Diamox Sequels

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Acetazolamide is most often used in the treatment of glaucoma, drug-induced edema or edema due to congestive heart failure, epilepsy, and prevention or amelioration of symptoms associated with acute mountain sickness. It may also be used for urine alkalization or as a respiratory stimulant.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Idiopathic Intracranial Hypertension 37 23
Epilepsy 7 5
Papilledema 4 1
Headaches 3 2
Abnormal cerebral spinal fluid (CSF) 2 0
Headaches in right eye and neck 2 1

Show all 34 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 10
Moderate 12
Mild 17
None 13

Commonly reported side effects and conditions associated with Acetazolamide

Side effect Patients
Numbness and tingling with pins and needles 6
Fatigue 5
Hands tingling 3
Nausea 3
Stomach upset 3
Headaches 2

Show all 41 reported side effects

Dosages

Based on patients currently taking Acetazolamide

Dosage Patients
500 mg daily 4
500 mg twice daily 3
250 mg daily 2
250 mg twice daily 1
250 mg three times daily 1
250 mg four times daily 1

Why patients stopped taking Acetazolamide

Multiple reasons could be selected

Reason Patients
Did not seem to work 12
Side effects too severe 10
Doctor's advice 6
Course of treatment ended 5
Other 4
Expense 2
Personal research 1
See all 30 patients who’ve stopped taking Acetazolamide

Duration

Currently taking Acetazolamide

Duration Patients
1 - 6 months 3
6 months - 1 year 1
1 - 2 years 2
2 - 5 years 4
5 - 10 years 2

Stopped taking Acetazolamide

Duration Patients
Less than 1 month 3
1 - 6 months 10
6 months - 1 year 4
1 - 2 years 9
2 - 5 years 2
5 - 10 years 1
10 years or more 1
Adherence
Adherence Evaluations
Always 38
Usually 11
Sometimes 0
Never taken as prescribed 3
Burden
Burden Evaluations
Very hard to take 3
Somewhat hard to take 5
A little hard to take 10
Not at all hard to take 34
Cost per month
Cost per month Evaluations
$200+ 3
$100-199 0
$50-99 0
$25-49 0
< $25 26
Not specified 23

What people switch to and from

Patients started taking Acetazolamide after stopping:

Treatment Patients
Levetiracetam (Keppra) 1

Patients stopped taking Acetazolamide and switched to:

Treatment Patients
Amitriptyline (Elavil) 1
Last updated:

9 patient evaluations for Acetazolamide

41 members have decided to share their profiles only with other members of PatientsLikeMe.

JandyM
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JandyM
Data Quality: 1 star
  • Gender: F
  • Age: 57
Condition: CADASIL 2 additional condition(s)
Quality of life:
  • Mental: Moderate
  • Physical: Mild
I am: n
I have:
CADASIL

See JandyM's full Acetazolamide history

Mar 12, 2015 (Started Jul 01, 2011)

  • Effectiveness
    Moderate (for Headaches)
  • Effectiveness
    Moderate (for Dizziness)
  • Effectiveness
    Moderate (for Nausea)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 250 mg Daily
Advice & Tips: This medication helps my CADASIL symptoms of headache, dizziness, nausea, and lightheadedness.

  • 0 helpful marks
Train
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new ASD member
Data Quality: 1 star
33 years
Female
n
ATEC
  • Speech: 2
  • Sociability: 17
  • Sensory/Cognitive Awareness: 16
  • Health/Physical Behavior: 42
  • ATEC score: 77
I have:
Asperger's

See Train's full Acetazolamide history

Mar 11, 2013 (Started Jun 06, 2012)

  • Effectiveness
    Can’t tell (for Idiopathic Intracranial Hypertension)
  • Side effects
    Severe (Excessive dry mouth)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 2000 mg Daily

  • 0 helpful marks
lakesler
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lakesler
Data Quality: 1 star
  • Gender: F
  • Age: 33
Condition: Intracranial Hypertension 5 additional condition(s)
Quality of life:
  • Mental: Moderate
  • Physical: Mild
I am: n
I have:
Intracranial Hypertension

See lakesler's full Acetazolamide history

Mar 27, 2012 (Started Mar 16, 2012)

  • Effectiveness
    Moderate (for Idiopathic Intracranial Hypertension)
  • Side effects
    Moderate (Numbness and tingling with pins and needles, Metallic taste in mouth, Excessive sleeping (hypersomnia), Fatigue)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 500 mg Daily
Advice & Tips: I would not take this medication given better options, but they really don't exist for IIH. I try to take it with either breakfast or lunch, and with dinner.
Cost: $200+ monthly

  • 0 helpful marks
Last updated:
Showing 3 of 9 patient evaluations for Acetazolamide