Meniere's disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Meniere's disease?

Meniere disease (MD) or Meniere syndrome is characterized by sudden onset of dizziness, low-frequency hearing loss and ringing in the ears (tinnitus), and sensation of fullness in the affected ear.

Common symptoms reported by people with Meniere's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for Meniere's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Diamox)
Type
Prescription Drug
How many have tried
27
Tried for
Meniere's disease (1)
Treatment name(s)

(Gravol)
Type
Over the Counter Drug
How many have tried
58
Tried for
Meniere's disease (1)
Treatment name(s)

(Prednisone Intensol)
Type
Prescription Drug
How many have tried
160
Tried for
Meniere's disease (1)

Data from patients with Meniere's disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Compare treatments taken by people with Meniere's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Diamox)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Meniere's disease (1)
Treatment name(s)

(Gravol)
Perceived effectiveness
for Meniere's disease (1 evaluation)
Side effects
excessive daytime sleepiness (somnolence)
Total evaluations
1
Tried for
Meniere's disease (1)
Treatment name(s)

(Prednisone Intensol)
Perceived effectiveness
No evaluations
Side effects
upset stomach
Total evaluations
1
Tried for
Meniere's disease (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Meniere's disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Who has Meniere's disease on PatientsLikeMe?

  • 0 new patients joined this month
  • 391 say Meniere's disease is their primary condition

Age
Age Proportion # of patients
<20 3
20s 12
30s 48
40s 141
50s 222
60s 229
70+ 110
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 33
20-29 years 70
30-39 years 92
40-49 years 92
50-59 years 57
60-69 years 17
70+ years 5

Distribution of sex

Sex
Sex Proportion # of patients
Male 176
Female 594

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 434
Not Diagnosed 27

These charts show data from Meniere's disease patients who have completed their condition history
Last updated: