Epilepsy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Letitia explains in this video.

What is epilepsy?

A group of disorders marked by problems in the normal functioning of the brain. These problems can produce seizures, unusual body movements, a loss of consciousness or changes in consciousness, as well as mental problems or problems with the senses.

Common symptoms reported by people with epilepsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for epilepsy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Lamictal)
Type
Prescription Drug
How many have tried
3053
Tried for
epilepsy (42)
Treatment name(s)

(Keppra)
Type
Prescription Drug
How many have tried
3433
Tried for
epilepsy (35)
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
2231
Tried for
epilepsy (23)
Treatment name(s)

(Depakote)
Type
Prescription Drug
How many have tried
1915
Tried for
epilepsy (19)
Treatment name(s)

(Vimpat)
Type
Prescription Drug
How many have tried
938
Tried for
epilepsy (15)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
1596
Tried for
epilepsy (14)
Treatment name(s)

(Zonegran)
Type
Prescription Drug
How many have tried
1017
Tried for
epilepsy (12)
Treatment name(s)

(Trileptal)
Type
Prescription Drug
How many have tried
1120
Tried for
epilepsy (9)
Treatment name(s)

(Tegretol)
Type
Prescription Drug
How many have tried
2531
Tried for
epilepsy (8)
Treatment name(s)

(Dilantin)
Type
Prescription Drug
How many have tried
2010
Tried for
epilepsy (6)

Data from patients with epilepsy, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Compare treatments taken by people with epilepsy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Lamictal)
Perceived effectiveness
for epilepsy (28 evaluations)
Side effects
heart palpitations lightheadedness 25 more
Total evaluations
31
Tried for
epilepsy (42)
Treatment name(s)

(Keppra)
Perceived effectiveness
for epilepsy (41 evaluations)
Side effects
headaches balance problems 59 more
Total evaluations
42
Tried for
epilepsy (35)
Treatment name(s)

(Topamax)
Perceived effectiveness
for epilepsy (8 evaluations)
Side effects
drowsiness carbonated drinks taste flat 18 more
Total evaluations
9
Tried for
epilepsy (23)
Treatment name(s)

(Depakote)
Perceived effectiveness
for epilepsy (13 evaluations)
Side effects
weight gain dizziness 12 more
Total evaluations
13
Tried for
epilepsy (19)
Treatment name(s)

(Vimpat)
Perceived effectiveness
for epilepsy (8 evaluations)
Side effects
dizziness double vision (diplopia) 8 more
Total evaluations
8
Tried for
epilepsy (15)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for epilepsy (9 evaluations)
Side effects
drowsiness sleepiness 5 more
Total evaluations
10
Tried for
epilepsy (14)
Treatment name(s)

(Zonegran)
Perceived effectiveness
for epilepsy (8 evaluations)
Side effects
decreased appetite anger 13 more
Total evaluations
8
Tried for
epilepsy (12)
Treatment name(s)

(Trileptal)
Perceived effectiveness
for epilepsy (7 evaluations)
Side effects
dry mouth acne 5 more
Total evaluations
7
Tried for
epilepsy (9)
Treatment name(s)

(Tegretol)
Perceived effectiveness
for epilepsy (7 evaluations)
Side effects
ataxia (lack of coordination) decreased appetite 8 more
Total evaluations
7
Tried for
epilepsy (8)
Treatment name(s)

(Dilantin)
Perceived effectiveness
for epilepsy (4 evaluations)
Side effects
drowsiness irritability 3 more
Total evaluations
5
Tried for
epilepsy (6)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with epilepsy, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Who has epilepsy on PatientsLikeMe?

  • 18 new patients joined this month
  • 10069 say epilepsy is their primary condition

Age
Age Proportion # of patients
<20 372
20s 1002
30s 2322
40s 2651
50s 2349
60s 1223
70+ 383
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2798
20-29 years 812
30-39 years 463
40-49 years 261
50-59 years 78
60-69 years 27
70+ years 6

Distribution of sex

Sex
Sex Proportion # of patients
Male 3247
Female 7125

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6043
Not Diagnosed 178

These charts show data from epilepsy patients who have completed their condition history
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