Epilepsy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Letitia explains in this video.

What is epilepsy?

A group of disorders marked by problems in the normal functioning of the brain. These problems can produce seizures, unusual body movements, a loss of consciousness or changes in consciousness, as well as mental problems or problems with the senses.

Common symptoms reported by people with epilepsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with epilepsy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Lamictal)
Type
Prescription Drug
How many have tried
45
Tried for
epilepsy (45)
Treatment name(s)

(Keppra)
Type
Prescription Drug
How many have tried
39
Tried for
epilepsy (39)
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
24
Tried for
epilepsy (23) headaches (1)
Treatment name(s)

(Depakote)
Type
Prescription Drug
How many have tried
21
Tried for
epilepsy (21)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
18
Tried for
epilepsy (16) anxious mood (9)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
16
Tried for
epilepsy (8) pain (8)
2 more
Treatment name(s)

(Vimpat)
Type
Prescription Drug
How many have tried
14
Tried for
epilepsy (14)
Treatment name(s)

(Briviact)
Type
Prescription Drug
How many have tried
12
Tried for
epilepsy (12)
Treatment name(s)

(Cannabidiol CBD oil)
Type
Other
How many have tried
12
Tried for
epilepsy (7) anxious mood (5)
5 more
Treatment name(s)

(Zonegran)
Type
Prescription Drug
How many have tried
12
Tried for
epilepsy (12) headaches (1)

Data from patients with epilepsy, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with epilepsy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Lamictal)
Perceived effectiveness
for epilepsy (41 evaluations)
Side effects
heart palpitations lightheadedness 32 more
Total evaluations
44
Tried for
epilepsy (45)
Treatment name(s)

(Keppra)
Perceived effectiveness
for epilepsy (45 evaluations)
Side effects
headaches balance problems 59 more
Total evaluations
46
Tried for
epilepsy (39)
Treatment name(s)

(Topamax)
Perceived effectiveness
for epilepsy (8 evaluations)
Side effects
drowsiness aphasia 20 more
Total evaluations
10
Tried for
epilepsy (23) headaches (1)
Treatment name(s)

(Depakote)
Perceived effectiveness
for epilepsy (13 evaluations)
Side effects
weight gain dizziness 12 more
Total evaluations
13
Tried for
epilepsy (21)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for epilepsy (9 evaluations)
Side effects
sleepiness drowsiness 5 more
Total evaluations
12
Tried for
epilepsy (16) anxious mood (9)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for epilepsy (5 evaluations)
Side effects
drowsiness fatigue 7 more
Total evaluations
11
Tried for
epilepsy (8) pain (8)
2 more
Treatment name(s)

(Vimpat)
Perceived effectiveness
for epilepsy (8 evaluations)
Side effects
dizziness double vision (diplopia) 8 more
Total evaluations
8
Tried for
epilepsy (14)
Treatment name(s)

(Briviact)
Perceived effectiveness
for epilepsy (19 evaluations)
Side effects
abnormal dreams anxious mood 19 more
Total evaluations
19
Tried for
epilepsy (12)
Treatment name(s)

(Cannabidiol CBD oil)
Perceived effectiveness
for epilepsy (5 evaluations)
Side effects
increased sleepiness
Total evaluations
16
Tried for
epilepsy (7) anxious mood (5)
5 more
Treatment name(s)

(Zonegran)
Perceived effectiveness
for epilepsy (9 evaluations)
Side effects
decreased appetite anger 15 more
Total evaluations
9
Tried for
epilepsy (12) headaches (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with epilepsy, who reported starting treatments within the last 5 years.
Last updated:

Who has epilepsy on PatientsLikeMe?

  • 7 new patients joined this month
  • 10034 say epilepsy is their primary condition

Age
Age Proportion # of patients
<20 374
20s 1048
30s 2330
40s 2661
50s 2307
60s 1185
70+ 369
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2796
20-29 years 813
30-39 years 464
40-49 years 261
50-59 years 79
60-69 years 26
70+ years 6

Distribution of sex

Sex
Sex Proportion # of patients
Male 3233
Female 7112

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6041
Not Diagnosed 178

These charts show data from epilepsy patients who have completed their condition history
Last updated: