Epilepsy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Letitia explains in this video.

What is epilepsy?

A group of disorders marked by problems in the normal functioning of the brain. These problems can produce seizures, unusual body movements, a loss of consciousness or changes in consciousness, as well as mental problems or problems with the senses.

Common symptoms reported by people with epilepsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with epilepsy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Lamictal)
Type
Prescription Drug
How many have tried
58
Tried for
epilepsy (58)
Treatment name(s)

(Keppra)
Type
Prescription Drug
How many have tried
52
Tried for
epilepsy (52)
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
36
Tried for
epilepsy (34) headaches (2)
Treatment name(s)

(Depakote)
Type
Prescription Drug
How many have tried
30
Tried for
epilepsy (30)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
22
Tried for
epilepsy (19) anxious mood (11)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
20
Tried for
pain (10) epilepsy (8)
2 more
Treatment name(s)

(Vimpat)
Type
Prescription Drug
How many have tried
17
Tried for
epilepsy (17)
Treatment name(s)

(Trileptal)
Type
Prescription Drug
How many have tried
14
Tried for
epilepsy (14)
Treatment name(s)

(Zonegran)
Type
Prescription Drug
How many have tried
14
Tried for
epilepsy (14) headaches (1)
Treatment name(s)

(Briviact)
Type
Prescription Drug
How many have tried
12
Tried for
epilepsy (12)

Data from patients with epilepsy, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with epilepsy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Lamictal)
Perceived effectiveness
for epilepsy (46 evaluations)
Side effects
heart palpitations lightheadedness 37 more
Total evaluations
50
Tried for
epilepsy (58)
Treatment name(s)

(Keppra)
Perceived effectiveness
for epilepsy (52 evaluations)
Side effects
headaches balance problems 63 more
Total evaluations
53
Tried for
epilepsy (52)
Treatment name(s)

(Topamax)
Perceived effectiveness
for epilepsy (11 evaluations)
Side effects
decreased appetite drowsiness 23 more
Total evaluations
17
Tried for
epilepsy (34) headaches (2)
Treatment name(s)

(Depakote)
Perceived effectiveness
for epilepsy (15 evaluations)
Side effects
weight gain dizziness 13 more
Total evaluations
15
Tried for
epilepsy (30)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for epilepsy (9 evaluations)
Side effects
sleepiness drowsiness 5 more
Total evaluations
13
Tried for
epilepsy (19) anxious mood (11)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (7 evaluations)
Side effects
drowsiness fatigue 7 more
Total evaluations
15
Tried for
pain (10) epilepsy (8)
2 more
Treatment name(s)

(Vimpat)
Perceived effectiveness
for epilepsy (10 evaluations)
Side effects
dizziness double vision (diplopia) 8 more
Total evaluations
10
Tried for
epilepsy (17)
Treatment name(s)

(Trileptal)
Perceived effectiveness
for epilepsy (11 evaluations)
Side effects
dry mouth acne 13 more
Total evaluations
11
Tried for
epilepsy (14)
Treatment name(s)

(Zonegran)
Perceived effectiveness
for epilepsy (10 evaluations)
Side effects
decreased appetite anger 15 more
Total evaluations
10
Tried for
epilepsy (14) headaches (1)
Treatment name(s)

(Briviact)
Perceived effectiveness
for epilepsy (19 evaluations)
Side effects
abnormal dreams anxious mood 19 more
Total evaluations
19
Tried for
epilepsy (12)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with epilepsy, who reported starting treatments within the last 5 years.
Last updated:

Who has epilepsy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 388
20s 1089
30s 2351
40s 2646
50s 2281
60s 1144
70+ 353
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2795
20-29 years 813
30-39 years 462
40-49 years 260
50-59 years 79
60-69 years 26
70+ years 6

Distribution of sex

Sex
Sex Proportion # of patients
Male 3233
Female 7090

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6037
Not Diagnosed 178

These charts show data from epilepsy patients who have completed their condition history
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