Epilepsy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Letitia explains in this video.

What is epilepsy?

A group of disorders marked by problems in the normal functioning of the brain. These problems can produce seizures, unusual body movements, a loss of consciousness or changes in consciousness, as well as mental problems or problems with the senses.

Common symptoms reported by people with epilepsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for epilepsy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Lamictal)
Type
Prescription Drug
How many have tried
3066
Tried for
epilepsy (39)
Treatment name(s)

(Keppra)
Type
Prescription Drug
How many have tried
3453
Tried for
epilepsy (31)
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
2240
Tried for
epilepsy (20)
Treatment name(s)

(Depakote)
Type
Prescription Drug
How many have tried
1924
Tried for
epilepsy (17)
Treatment name(s)

(Vimpat)
Type
Prescription Drug
How many have tried
945
Tried for
epilepsy (14)
Treatment name(s)

(Zonegran)
Type
Prescription Drug
How many have tried
1024
Tried for
epilepsy (12)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
1601
Tried for
epilepsy (10)
Treatment name(s)

(Trileptal)
Type
Prescription Drug
How many have tried
1130
Tried for
epilepsy (8)
Treatment name(s)

(Tegretol)
Type
Prescription Drug
How many have tried
2545
Tried for
epilepsy (7)
Treatment name(s)

(Dilantin)
Type
Prescription Drug
How many have tried
2019
Tried for
epilepsy (4)

Data from patients with epilepsy, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Compare treatments taken by people with epilepsy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Lamictal)
Perceived effectiveness
for epilepsy (26 evaluations)
Side effects
lightheadedness rash on face 22 more
Total evaluations
27
Tried for
epilepsy (39)
Treatment name(s)

(Keppra)
Perceived effectiveness
for epilepsy (31 evaluations)
Side effects
headaches migraine headaches 28 more
Total evaluations
32
Tried for
epilepsy (31)
Treatment name(s)

(Topamax)
Perceived effectiveness
for epilepsy (8 evaluations)
Side effects
drowsiness bitter taste 18 more
Total evaluations
9
Tried for
epilepsy (20)
Treatment name(s)

(Depakote)
Perceived effectiveness
for epilepsy (13 evaluations)
Side effects
weight gain dizziness 12 more
Total evaluations
13
Tried for
epilepsy (17)
Treatment name(s)

(Vimpat)
Perceived effectiveness
for epilepsy (7 evaluations)
Side effects
double vision (diplopia) ataxia (lack of coordination) 8 more
Total evaluations
7
Tried for
epilepsy (14)
Treatment name(s)

(Zonegran)
Perceived effectiveness
for epilepsy (8 evaluations)
Side effects
decreased appetite anger 13 more
Total evaluations
8
Tried for
epilepsy (12)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for epilepsy (6 evaluations)
Side effects
fatigue intrusive thoughts images or impulses 4 more
Total evaluations
6
Tried for
epilepsy (10)
Treatment name(s)

(Trileptal)
Perceived effectiveness
for epilepsy (5 evaluations)
Side effects
dry mouth difficulty thinking 4 more
Total evaluations
5
Tried for
epilepsy (8)
Treatment name(s)

(Tegretol)
Perceived effectiveness
for epilepsy (6 evaluations)
Side effects
ataxia (lack of coordination) decreased appetite 5 more
Total evaluations
6
Tried for
epilepsy (7)
Treatment name(s)

(Dilantin)
Perceived effectiveness
for epilepsy (4 evaluations)
Side effects
irritability osteopenia 2 more
Total evaluations
4
Tried for
epilepsy (4)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with epilepsy, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Who has epilepsy on PatientsLikeMe?

  • 7 new patients joined this month
  • 10124 say epilepsy is their primary condition

Age
Age Proportion # of patients
<20 356
20s 945
30s 2296
40s 2656
50s 2399
60s 1305
70+ 414
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2803
20-29 years 814
30-39 years 463
40-49 years 264
50-59 years 79
60-69 years 27
70+ years 7

Distribution of sex

Sex
Sex Proportion # of patients
Male 3270
Female 7172

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6050
Not Diagnosed 180

These charts show data from epilepsy patients who have completed their condition history
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