Epilepsy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Letitia explains in this video.

What is epilepsy?

A group of disorders marked by problems in the normal functioning of the brain. These problems can produce seizures, unusual body movements, a loss of consciousness or changes in consciousness, as well as mental problems or problems with the senses.

Common symptoms reported by people with epilepsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with epilepsy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Lamictal)
Type
Prescription Drug
How many have tried
64
Tried for
epilepsy (64)
Treatment name(s)

(Keppra)
Type
Prescription Drug
How many have tried
59
Tried for
epilepsy (59)
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
39
Tried for
epilepsy (38) headaches (1)
Treatment name(s)

(Depakote)
Type
Prescription Drug
How many have tried
31
Tried for
epilepsy (31)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
26
Tried for
epilepsy (24) anxious mood (11)
Treatment name(s)

(Vimpat)
Type
Prescription Drug
How many have tried
21
Tried for
epilepsy (21)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
20
Tried for
pain (10) epilepsy (8)
2 more
Treatment name(s)

(Trileptal)
Type
Prescription Drug
How many have tried
16
Tried for
epilepsy (16)
Treatment name(s)

(Zonegran)
Type
Prescription Drug
How many have tried
16
Tried for
epilepsy (16)
Treatment name(s)

(Tegretol)
Type
Prescription Drug
How many have tried
13
Tried for
epilepsy (13)

Data from patients with epilepsy, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with epilepsy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Lamictal)
Perceived effectiveness
for epilepsy (51 evaluations)
Side effects
headaches heart palpitations 44 more
Total evaluations
55
Tried for
epilepsy (64)
Treatment name(s)

(Keppra)
Perceived effectiveness
for epilepsy (54 evaluations)
Side effects
headaches balance problems 65 more
Total evaluations
56
Tried for
epilepsy (59)
Treatment name(s)

(Topamax)
Perceived effectiveness
for epilepsy (13 evaluations)
Side effects
decreased appetite fatigue 26 more
Total evaluations
18
Tried for
epilepsy (38) headaches (1)
Treatment name(s)

(Depakote)
Perceived effectiveness
for epilepsy (15 evaluations)
Side effects
dizziness weight gain 11 more
Total evaluations
15
Tried for
epilepsy (31)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for epilepsy (15 evaluations)
Side effects
drowsiness sleepiness 7 more
Total evaluations
18
Tried for
epilepsy (24) anxious mood (11)
Treatment name(s)

(Vimpat)
Perceived effectiveness
for epilepsy (11 evaluations)
Side effects
dizziness double vision (diplopia) 11 more
Total evaluations
12
Tried for
epilepsy (21)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (6 evaluations)
Side effects
drowsiness constipation 5 more
Total evaluations
14
Tried for
pain (10) epilepsy (8)
2 more
Treatment name(s)

(Trileptal)
Perceived effectiveness
for epilepsy (11 evaluations)
Side effects
dry mouth acne 13 more
Total evaluations
11
Tried for
epilepsy (16)
Treatment name(s)

(Zonegran)
Perceived effectiveness
for epilepsy (11 evaluations)
Side effects
decreased appetite headaches 11 more
Total evaluations
11
Tried for
epilepsy (16)
Treatment name(s)

(Tegretol)
Perceived effectiveness
for epilepsy (9 evaluations)
Side effects
ataxia (lack of coordination) decreased appetite 12 more
Total evaluations
10
Tried for
epilepsy (13)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with epilepsy, who reported starting treatments within the last 5 years.
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Who has epilepsy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 397
20s 1141
30s 2351
40s 2651
50s 2209
60s 1089
70+ 315
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2788
20-29 years 809
30-39 years 455
40-49 years 258
50-59 years 79
60-69 years 25
70+ years 6

Distribution of sex

Sex
Sex Proportion # of patients
Male 3205
Female 7019

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6013
Not Diagnosed 178

These charts show data from epilepsy patients who have completed their condition history
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