Epilepsy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Letitia explains in this video.

What is epilepsy?

A group of disorders marked by problems in the normal functioning of the brain. These problems can produce seizures, unusual body movements, a loss of consciousness or changes in consciousness, as well as mental problems or problems with the senses.

Common symptoms reported by people with epilepsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with epilepsy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Lamictal)
Type
Prescription Drug
How many have tried
82
Tried for
epilepsy (82)
Treatment name(s)

(Keppra)
Type
Prescription Drug
How many have tried
71
Tried for
epilepsy (71)
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
53
Tried for
epilepsy (51) headaches (3)
Treatment name(s)

(Depakote)
Type
Prescription Drug
How many have tried
37
Tried for
epilepsy (37)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
36
Tried for
epilepsy (32) anxious mood (14)
Treatment name(s)

(Vimpat)
Type
Prescription Drug
How many have tried
27
Tried for
epilepsy (27)
Treatment name(s)

(Trileptal)
Type
Prescription Drug
How many have tried
22
Tried for
epilepsy (22)
Treatment name(s)

(Tegretol)
Type
Prescription Drug
How many have tried
21
Tried for
epilepsy (21)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
21
Tried for
pain (11) epilepsy (8)
2 more
Treatment name(s)

(Aptiom)
Type
Prescription Drug
How many have tried
17
Tried for
epilepsy (17) depressed mood (1)

Data from patients with epilepsy, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with epilepsy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Lamictal)
Perceived effectiveness
for epilepsy (64 evaluations)
Side effects
headaches memory and cognition problems 53 more
Total evaluations
68
Tried for
epilepsy (82)
Treatment name(s)

(Keppra)
Perceived effectiveness
for epilepsy (55 evaluations)
Side effects
headaches balance problems 62 more
Total evaluations
57
Tried for
epilepsy (71)
Treatment name(s)

(Topamax)
Perceived effectiveness
for epilepsy (20 evaluations)
Side effects
decreased appetite fatigue 30 more
Total evaluations
27
Tried for
epilepsy (51) headaches (3)
Treatment name(s)

(Depakote)
Perceived effectiveness
for epilepsy (17 evaluations)
Side effects
dizziness weight gain 14 more
Total evaluations
17
Tried for
epilepsy (37)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for epilepsy (20 evaluations)
Side effects
drowsiness fatigue 9 more
Total evaluations
24
Tried for
epilepsy (32) anxious mood (14)
Treatment name(s)

(Vimpat)
Perceived effectiveness
for epilepsy (14 evaluations)
Side effects
dizziness double vision (diplopia) 13 more
Total evaluations
15
Tried for
epilepsy (27)
Treatment name(s)

(Trileptal)
Perceived effectiveness
for epilepsy (14 evaluations)
Side effects
dry mouth acne 15 more
Total evaluations
14
Tried for
epilepsy (22)
Treatment name(s)

(Tegretol)
Perceived effectiveness
for epilepsy (13 evaluations)
Side effects
ataxia (lack of coordination) decreased appetite 15 more
Total evaluations
13
Tried for
epilepsy (21)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (5 evaluations)
Side effects
drowsiness constipation 5 more
Total evaluations
13
Tried for
pain (11) epilepsy (8)
2 more
Treatment name(s)

(Aptiom)
Perceived effectiveness
for epilepsy (72 evaluations)
Side effects
flatulence grogginess in morning 20 more
Total evaluations
72
Tried for
epilepsy (17) depressed mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with epilepsy, who reported starting treatments within the last 5 years.
Last updated:

Who has epilepsy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 412
20s 1170
30s 2368
40s 2638
50s 2157
60s 1064
70+ 282
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2792
20-29 years 810
30-39 years 454
40-49 years 256
50-59 years 77
60-69 years 25
70+ years 6

Distribution of sex

Sex
Sex Proportion # of patients
Male 3182
Female 6977

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6018
Not Diagnosed 179

These charts show data from epilepsy patients who have completed their condition history
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