Epilepsy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Letitia explains in this video.

What is epilepsy?

A group of disorders marked by problems in the normal functioning of the brain. These problems can produce seizures, unusual body movements, a loss of consciousness or changes in consciousness, as well as mental problems or problems with the senses.

Common symptoms reported by people with epilepsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with epilepsy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Lamictal)
Type
Prescription Drug
How many have tried
62
Tried for
epilepsy (62)
Treatment name(s)

(Keppra)
Type
Prescription Drug
How many have tried
53
Tried for
epilepsy (53)
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
38
Tried for
epilepsy (36) headaches (2)
Treatment name(s)

(Depakote)
Type
Prescription Drug
How many have tried
31
Tried for
epilepsy (31)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
23
Tried for
epilepsy (21) anxious mood (10)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
19
Tried for
pain (9) epilepsy (8)
2 more
Treatment name(s)

(Vimpat)
Type
Prescription Drug
How many have tried
17
Tried for
epilepsy (17)
Treatment name(s)

(Trileptal)
Type
Prescription Drug
How many have tried
15
Tried for
epilepsy (15)
Treatment name(s)

(Zonegran)
Type
Prescription Drug
How many have tried
15
Tried for
epilepsy (15)
Treatment name(s)

(Briviact)
Type
Prescription Drug
How many have tried
12
Tried for
epilepsy (12)

Data from patients with epilepsy, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with epilepsy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Lamictal)
Perceived effectiveness
for epilepsy (48 evaluations)
Side effects
headaches heart palpitations 38 more
Total evaluations
52
Tried for
epilepsy (62)
Treatment name(s)

(Keppra)
Perceived effectiveness
for epilepsy (52 evaluations)
Side effects
headaches balance problems 64 more
Total evaluations
53
Tried for
epilepsy (53)
Treatment name(s)

(Topamax)
Perceived effectiveness
for epilepsy (12 evaluations)
Side effects
decreased appetite aphasia 21 more
Total evaluations
18
Tried for
epilepsy (36) headaches (2)
Treatment name(s)

(Depakote)
Perceived effectiveness
for epilepsy (16 evaluations)
Side effects
weight gain dizziness 12 more
Total evaluations
16
Tried for
epilepsy (31)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for epilepsy (9 evaluations)
Side effects
drowsiness sleepiness 5 more
Total evaluations
12
Tried for
epilepsy (21) anxious mood (10)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (6 evaluations)
Side effects
drowsiness constipation 5 more
Total evaluations
14
Tried for
pain (9) epilepsy (8)
2 more
Treatment name(s)

(Vimpat)
Perceived effectiveness
for epilepsy (10 evaluations)
Side effects
dizziness double vision (diplopia) 8 more
Total evaluations
10
Tried for
epilepsy (17)
Treatment name(s)

(Trileptal)
Perceived effectiveness
for epilepsy (11 evaluations)
Side effects
dry mouth acne 13 more
Total evaluations
11
Tried for
epilepsy (15)
Treatment name(s)

(Zonegran)
Perceived effectiveness
for epilepsy (11 evaluations)
Side effects
decreased appetite headaches 11 more
Total evaluations
11
Tried for
epilepsy (15)
Treatment name(s)

(Briviact)
Perceived effectiveness
for epilepsy (19 evaluations)
Side effects
abnormal dreams anxious mood 19 more
Total evaluations
19
Tried for
epilepsy (12)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with epilepsy, who reported starting treatments within the last 5 years.
Last updated:

Who has epilepsy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 392
20s 1114
30s 2354
40s 2651
50s 2237
60s 1120
70+ 336
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2791
20-29 years 809
30-39 years 460
40-49 years 258
50-59 years 79
60-69 years 25
70+ years 6

Distribution of sex

Sex
Sex Proportion # of patients
Male 3221
Female 7054

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6022
Not Diagnosed 178

These charts show data from epilepsy patients who have completed their condition history
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