Epilepsy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Letitia explains in this video.

What is epilepsy?

A group of disorders marked by problems in the normal functioning of the brain. These problems can produce seizures, unusual body movements, a loss of consciousness or changes in consciousness, as well as mental problems or problems with the senses.

Common symptoms reported by people with epilepsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with epilepsy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Lamictal)
Type
Prescription Drug
How many have tried
90
Tried for
epilepsy (90)
Treatment name(s)

(Keppra)
Type
Prescription Drug
How many have tried
90
Tried for
epilepsy (90)
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
62
Tried for
epilepsy (60) headaches (3)
Treatment name(s)

(Depakote)
Type
Prescription Drug
How many have tried
46
Tried for
epilepsy (46)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
41
Tried for
epilepsy (36) anxious mood (16)
Treatment name(s)

(Vimpat)
Type
Prescription Drug
How many have tried
33
Tried for
epilepsy (33)
Treatment name(s)

(Trileptal)
Type
Prescription Drug
How many have tried
27
Tried for
epilepsy (27) pain (1)
Treatment name(s)

(Tegretol)
Type
Prescription Drug
How many have tried
22
Tried for
epilepsy (22)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
21
Tried for
pain (12) epilepsy (7)
2 more
Treatment name(s)

(Aptiom)
Type
Prescription Drug
How many have tried
18
Tried for
epilepsy (18) depressed mood (1)

Data from patients with epilepsy, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with epilepsy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Lamictal)
Perceived effectiveness
for epilepsy (68 evaluations)
Side effects
headaches memory and cognition problems 51 more
Total evaluations
72
Tried for
epilepsy (90)
Treatment name(s)

(Keppra)
Perceived effectiveness
for epilepsy (65 evaluations)
Side effects
headaches tiredness 70 more
Total evaluations
67
Tried for
epilepsy (90)
Treatment name(s)

(Topamax)
Perceived effectiveness
for epilepsy (25 evaluations)
Side effects
decreased appetite fatigue 37 more
Total evaluations
34
Tried for
epilepsy (60) headaches (3)
Treatment name(s)

(Depakote)
Perceived effectiveness
for epilepsy (25 evaluations)
Side effects
dizziness weight gain 19 more
Total evaluations
25
Tried for
epilepsy (46)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for epilepsy (20 evaluations)
Side effects
drowsiness fatigue 7 more
Total evaluations
24
Tried for
epilepsy (36) anxious mood (16)
Treatment name(s)

(Vimpat)
Perceived effectiveness
for epilepsy (18 evaluations)
Side effects
dizziness double vision (diplopia) 16 more
Total evaluations
19
Tried for
epilepsy (33)
Treatment name(s)

(Trileptal)
Perceived effectiveness
for epilepsy (15 evaluations)
Side effects
dry mouth acne 17 more
Total evaluations
15
Tried for
epilepsy (27) pain (1)
Treatment name(s)

(Tegretol)
Perceived effectiveness
for epilepsy (11 evaluations)
Side effects
ataxia (lack of coordination) decreased appetite 14 more
Total evaluations
11
Tried for
epilepsy (22)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (5 evaluations)
Side effects
constipation dizziness 5 more
Total evaluations
12
Tried for
pain (12) epilepsy (7)
2 more
Treatment name(s)

(Aptiom)
Perceived effectiveness
for epilepsy (65 evaluations)
Side effects
blurry vision flatulence 20 more
Total evaluations
65
Tried for
epilepsy (18) depressed mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with epilepsy, who reported starting treatments within the last 5 years.
Last updated:

Who has epilepsy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 429
20s 1271
30s 2337
40s 2621
50s 2065
60s 994
70+ 249
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2784
20-29 years 803
30-39 years 453
40-49 years 254
50-59 years 77
60-69 years 24
70+ years 6

Distribution of sex

Sex
Sex Proportion # of patients
Male 3140
Female 6892

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5991
Not Diagnosed 178

These charts show data from epilepsy patients who have completed their condition history
Last updated: