What is Mycophenolate mofetil?

Category: Prescription Drugs

Most popular types: CellCept Myfenax

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Mycophenolate is an immunosuppressant agent indicated for the prevention organ rejection in patients receiving allogeneic renal, cardiac or hepatic transplants. Mycophenolate should be used concomitantly with cyclosporine and corticosteroids.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Prevent organ rejection 497 87
Transplant rejection prevention 283 81
Systemic Lupus Erythematosus 145 49
Multiple Sclerosis 69 28
Kidney Transplant 34 8
Lupus Nephritis 34 11

Show all 98 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 33
Moderate 73
Mild 105
None 121

Commonly reported side effects and conditions associated with Mycophenolate mofetil

Side effect Patients
Diarrhea 33
Nausea 21
Fatigue 11
Headaches 8
Stomach pain 8
Upset stomach 8

Show all 140 reported side effects

Dosages

Based on patients currently taking Mycophenolate mofetil

Dosage Patients
1,000 mg twice daily 24
500 mg twice daily 22
1,000 mg daily 14
500 mg daily 9
1,500 mg twice daily 5
750 mg daily 4
1,500 mg daily 4
750 mg twice daily 4
2,000 mg daily 4
3,000 mg daily 3

See all 20 dosages

Why patients stopped taking Mycophenolate mofetil

Multiple reasons could be selected

Reason Patients
Side effects too severe 89
Doctor's advice 80
Other 45
Did not seem to work 40
Course of treatment ended 16
Personal research 5
Change in health plan coverage 4
Expense 3
See all 216 patients who’ve stopped taking Mycophenolate mofetil

Duration

Currently taking Mycophenolate mofetil

Duration Patients
1 - 6 months 10
6 months - 1 year 11
1 - 2 years 11
2 - 5 years 31
5 - 10 years 30
10 years or more 15

Stopped taking Mycophenolate mofetil

Duration Patients
Less than 1 month 21
1 - 6 months 49
6 months - 1 year 47
1 - 2 years 31
2 - 5 years 39
5 - 10 years 24
10 years or more 5
Adherence
Adherence Evaluations
Always 285
Usually 32
Sometimes 6
Never taken as prescribed 9
Burden
Burden Evaluations
Very hard to take 15
Somewhat hard to take 40
A little hard to take 66
Not at all hard to take 211
Cost per month
Cost per month Evaluations
$200+ 19
$100-199 19
$50-99 26
$25-49 25
< $25 125
Not specified 118

What people switch to and from

Patients started taking Mycophenolate mofetil after stopping:

Treatment Patients
Azathioprine (Imuran) 19
Prednisone (Deltasone) 14
Methotrexate (Apo-Methotrexate) 11
Hydroxychloroquine (Plaquenil) 5
Cyclophosphamide (Cytoxan) 4

Show all 22 treatments patients report switching from

Patients stopped taking Mycophenolate mofetil and switched to:

Treatment Patients
Azathioprine (Imuran) 7
Cyclophosphamide (Cytoxan) 5
Methotrexate (Apo-Methotrexate) 4
Belimumab (Benlysta) 3
Rituximab (Rituxan) 3

Show all 15 treatments patients report switching to

Last updated:

36 patient evaluations for Mycophenolate mofetil

269 members have decided to share their profiles only with other members of PatientsLikeMe.

tinmansteve
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tinmansteve
Data Quality: 1 star
  • Sex: M
  • Age: 67y
  • Organ: Heart
Quality of life:
  • Mental: None
  • Physical: None
  1. Heart : 16y Transplanted
I have:
Heart Transplant

See tinmansteve's full Mycophenolate mofetil history

Dec 8, 2016 (Started Jun 01, 2000)

  • Effectiveness
    Major (for Prevent organ rejection)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3000 mg Daily

  • 0 helpful marks
Santa 1
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Santa 1
Data Quality: 2 stars
  • Sex: M
  • Age: 62y
  • Organ: Kidney
Quality of life:
  • Mental: None
  • Physical: Mild
  1. Kidney : 17y Transplanted
I have:
Kidney Transplant

See Santa 1's full Mycophenolate mofetil history

Oct 31, 2016 (Started Dec 01, 2005)

  • Effectiveness
    Major (for Prevent organ rejection)
  • Effectiveness
    Major (for Kidney Transplant)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1000 mg Daily
Cost: $50-99 monthly

  • 0 helpful marks
gregster68
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gregster68
Data Quality: 1 star
  • Sex: M
  • Age: 48y
  • Organ: Heart
Quality of life:
  • Mental: Mild
  • Physical: Mild
  1. Heart : 2y Waiting
I have:
Heart Transplant

See gregster68's full Mycophenolate mofetil history

Apr 15, 2016 (Started Jan 09, 2016)

  • Effectiveness
    Major (for Transplant rejection prevention)
  • Side effects
    Mild (Diarrhea)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 250 mg Twice daily
Advice & Tips: Does cause some bowel problems, diarrhea specifically, but its infrequent and manageable
Cost: $25-49 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 36 patient evaluations for Mycophenolate mofetil