What is Mycophenolate mofetil?

Category: Prescription Drugs

Most popular types: CellCept Myfenax

false

Mycophenolate is an immunosuppressant agent indicated for the prevention organ rejection in patients receiving allogeneic renal, cardiac or hepatic transplants. Mycophenolate should be used concomitantly with cyclosporine and corticosteroids.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Prevent organ rejection 500 90
Transplant rejection prevention 283 83
Systemic Lupus Erythematosus 158 58
Multiple Sclerosis 69 28
Lupus Nephritis 36 11
Kidney Transplant 34 8

Show all 99 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 34
Moderate 80
Mild 109
None 131

Commonly reported side effects and conditions associated with Mycophenolate mofetil

Side effect Patients
Diarrhea 33
Nausea 22
Fatigue 12
Upset stomach 9
Headaches 8
Stomach pain 8

Show all 146 reported side effects

Dosages

Based on patients currently taking Mycophenolate mofetil

Dosage Patients
1,000 mg twice daily 39
500 mg twice daily 20
1,000 mg daily 12
2,000 mg daily 8
1,500 mg twice daily 8
250 mg twice daily 6
500 mg daily 6
3,000 mg daily 5
1,500 mg daily 4
750 mg twice daily 4

See all 20 dosages

Why patients stopped taking Mycophenolate mofetil

Multiple reasons could be selected

Reason Patients
Side effects too severe 89
Doctor's advice 82
Other 46
Did not seem to work 43
Course of treatment ended 16
Personal research 5
Change in health plan coverage 4
Expense 3
See all 220 patients who’ve stopped taking Mycophenolate mofetil

Duration

Currently taking Mycophenolate mofetil

Duration Patients
Less than 1 month 2
1 - 6 months 10
6 months - 1 year 13
1 - 2 years 16
2 - 5 years 37
5 - 10 years 33
10 years or more 14

Stopped taking Mycophenolate mofetil

Duration Patients
Less than 1 month 21
1 - 6 months 49
6 months - 1 year 48
1 - 2 years 31
2 - 5 years 39
5 - 10 years 27
10 years or more 5
Adherence
Adherence Evaluations
Always 302
Usually 37
Sometimes 6
Never taken as prescribed 9
Burden
Burden Evaluations
Very hard to take 15
Somewhat hard to take 43
A little hard to take 75
Not at all hard to take 221
Cost per month
Cost per month Evaluations
$200+ 19
$100-199 19
$50-99 25
$25-49 27
< $25 132
Not specified 132

What people switch to and from

Patients started taking Mycophenolate mofetil after stopping:

Treatment Patients
Azathioprine (Imuran) 21
Methotrexate (Apo-Methotrexate) 14
Prednisone (Deltasone) 14
Hydroxychloroquine (Plaquenil) 6
Rituximab (Rituxan) 4

Show all 22 treatments patients report switching from

Patients stopped taking Mycophenolate mofetil and switched to:

Treatment Patients
Azathioprine (Imuran) 8
Methotrexate (Apo-Methotrexate) 6
Cyclophosphamide (Cytoxan) 5
Rituximab (Rituxan) 4
Belimumab (Benlysta) 3

Show all 16 treatments patients report switching to

Last updated:

37 patient evaluations for Mycophenolate mofetil

286 members have decided to share their profiles only with other members of PatientsLikeMe.

origin
Portrait default thumb
origin
Data Quality: 2 stars
  • Gender: M
  • Age: 40
Condition: Sjogren's Syndrome 7 additional condition(s)
Quality of life:
  • Mental: Mild
  • Physical: Mild
I am: b
I have:
Sjogren's Syndrome

See origin's full Mycophenolate mofetil history

Apr 18, 2017 (Started Oct 23, 2016)

  • Effectiveness
    Major (for Sjogren's Syndrome)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 1000 mg Twice daily
Cost: < $25 monthly

  • 0 helpful marks
tinmansteve
Portrait default thumb
tinmansteve
Data Quality: 1 star
  • Sex: M
  • Age: 67y
  • Organ: Heart
Quality of life:
  • Mental: None
  • Physical: None
  1. Heart : 16y Transplanted
I have:
Heart Transplant

See tinmansteve's full Mycophenolate mofetil history

Dec 8, 2016 (Started Jun 01, 2000)

  • Effectiveness
    Major (for Prevent organ rejection)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3000 mg Daily

  • 0 helpful marks
Santa 1
23573 thumb
Santa 1
Data Quality: 2 stars
  • Sex: M
  • Age: 62y
  • Organ: Kidney
Quality of life:
  • Mental: Mild
  • Physical: Mild
  1. Kidney : 17y Transplanted
I have:
Kidney Transplant

See Santa 1's full Mycophenolate mofetil history

Oct 31, 2016 (Started Dec 01, 2005)

  • Effectiveness
    Major (for Prevent organ rejection)
  • Effectiveness
    Major (for Kidney Transplant)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1000 mg Daily
Cost: $50-99 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 37 patient evaluations for Mycophenolate mofetil