What is Mycophenolate mofetil?

Category: Prescription Drugs

Most popular types: CellCept Myfenax

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Mycophenolate is an immunosuppressant agent indicated for the prevention organ rejection in patients receiving allogeneic renal, cardiac or hepatic transplants. Mycophenolate should be used concomitantly with cyclosporine and corticosteroids.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Prevent organ rejection 500 90
Transplant rejection prevention 283 82
Systemic Lupus Erythematosus 153 54
Multiple Sclerosis 69 28
Lupus Nephritis 35 11
Kidney Transplant 34 8

Show all 98 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 34
Moderate 76
Mild 107
None 130

Commonly reported side effects and conditions associated with Mycophenolate mofetil

Side effect Patients
Diarrhea 33
Nausea 21
Fatigue 11
Upset stomach 9
Headaches 8
Stomach pain 8

Show all 142 reported side effects

Dosages

Based on patients currently taking Mycophenolate mofetil

Dosage Patients
1,000 mg twice daily 36
500 mg twice daily 19
1,000 mg daily 13
500 mg daily 7
1,500 mg twice daily 6
750 mg daily 4
1,500 mg daily 4
750 mg twice daily 4
2,000 mg daily 4
3,000 mg daily 4

See all 22 dosages

Why patients stopped taking Mycophenolate mofetil

Multiple reasons could be selected

Reason Patients
Side effects too severe 89
Doctor's advice 82
Other 45
Did not seem to work 43
Course of treatment ended 16
Personal research 5
Change in health plan coverage 4
Expense 3
See all 220 patients who’ve stopped taking Mycophenolate mofetil

Duration

Currently taking Mycophenolate mofetil

Duration Patients
1 - 6 months 9
6 months - 1 year 18
1 - 2 years 12
2 - 5 years 35
5 - 10 years 29
10 years or more 16

Stopped taking Mycophenolate mofetil

Duration Patients
Less than 1 month 21
1 - 6 months 49
6 months - 1 year 48
1 - 2 years 31
2 - 5 years 40
5 - 10 years 26
10 years or more 5
Adherence
Adherence Evaluations
Always 297
Usually 35
Sometimes 6
Never taken as prescribed 9
Burden
Burden Evaluations
Very hard to take 15
Somewhat hard to take 42
A little hard to take 72
Not at all hard to take 218
Cost per month
Cost per month Evaluations
$200+ 19
$100-199 19
$50-99 27
$25-49 27
< $25 129
Not specified 126

What people switch to and from

Patients started taking Mycophenolate mofetil after stopping:

Treatment Patients
Azathioprine (Imuran) 21
Prednisone (Deltasone) 14
Methotrexate (Apo-Methotrexate) 13
Hydroxychloroquine (Plaquenil) 6
Cyclophosphamide (Cytoxan) 4

Show all 22 treatments patients report switching from

Patients stopped taking Mycophenolate mofetil and switched to:

Treatment Patients
Azathioprine (Imuran) 7
Methotrexate (Apo-Methotrexate) 6
Cyclophosphamide (Cytoxan) 5
Belimumab (Benlysta) 3
Rituximab (Rituxan) 3

Show all 15 treatments patients report switching to

Last updated:

36 patient evaluations for Mycophenolate mofetil

279 members have decided to share their profiles only with other members of PatientsLikeMe.

tinmansteve
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tinmansteve
Data Quality: 1 star
  • Sex: M
  • Age: 67y
  • Organ: Heart
Quality of life:
  • Mental: None
  • Physical: None
  1. Heart : 16y Transplanted
I have:
Heart Transplant

See tinmansteve's full Mycophenolate mofetil history

Dec 8, 2016 (Started Jun 01, 2000)

  • Effectiveness
    Major (for Prevent organ rejection)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3000 mg Daily

  • 0 helpful marks
Santa 1
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Santa 1
Data Quality: 2 stars
  • Sex: M
  • Age: 62y
  • Organ: Kidney
Quality of life:
  • Mental: None
  • Physical: Mild
  1. Kidney : 17y Transplanted
I have:
Kidney Transplant

See Santa 1's full Mycophenolate mofetil history

Oct 31, 2016 (Started Dec 01, 2005)

  • Effectiveness
    Major (for Prevent organ rejection)
  • Effectiveness
    Major (for Kidney Transplant)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1000 mg Daily
Cost: $50-99 monthly

  • 0 helpful marks
gregster68
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gregster68
Data Quality: 1 star
  • Sex: M
  • Age: 48y
  • Organ: Heart
Quality of life:
  • Mental: Mild
  • Physical: Mild
  1. Heart : 2y Waiting
I have:
Heart Transplant

See gregster68's full Mycophenolate mofetil history

Apr 15, 2016 (Started Jan 09, 2016)

  • Effectiveness
    Major (for Transplant rejection prevention)
  • Side effects
    Mild (Diarrhea)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 250 mg Twice daily
Advice & Tips: Does cause some bowel problems, diarrhea specifically, but its infrequent and manageable
Cost: $25-49 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 36 patient evaluations for Mycophenolate mofetil