What is Mycophenolate mofetil?

Category: Prescription Drugs

Most popular types: CellCept Myfenax

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Mycophenolate is an immunosuppressant agent indicated for the prevention organ rejection in patients receiving allogeneic renal, cardiac or hepatic transplants. Mycophenolate should be used concomitantly with cyclosporine and corticosteroids.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Prevent organ rejection 497 86
Transplant rejection prevention 283 81
Systemic Lupus Erythematosus 138 46
Multiple Sclerosis 69 28
Kidney Transplant 33 8
Lupus Nephritis 33 10

Show all 97 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 29
Moderate 72
Mild 102
None 117

Commonly reported side effects and conditions associated with Mycophenolate mofetil

Side effect Patients
Diarrhea 27
Nausea 21
Fatigue 10
Headaches 8
Stomach upset 8
Hair loss 7

Show all 137 reported side effects

Dosages

Based on patients currently taking Mycophenolate mofetil

Dosage Patients
1,000 mg twice daily 25
500 mg twice daily 18
1,000 mg daily 13
500 mg daily 7
1,500 mg twice daily 7
750 mg daily 4
1,500 mg daily 4
2,000 mg daily 4
250 mg twice daily 3
750 mg twice daily 3

See all 21 dosages

Why patients stopped taking Mycophenolate mofetil

Multiple reasons could be selected

Reason Patients
Side effects too severe 86
Doctor's advice 81
Other 46
Did not seem to work 40
Course of treatment ended 16
Personal research 5
Change in health plan coverage 4
Expense 3
See all 215 patients who’ve stopped taking Mycophenolate mofetil

Duration

Currently taking Mycophenolate mofetil

Duration Patients
1 - 6 months 9
6 months - 1 year 14
1 - 2 years 15
2 - 5 years 23
5 - 10 years 30
10 years or more 14

Stopped taking Mycophenolate mofetil

Duration Patients
Less than 1 month 21
1 - 6 months 47
6 months - 1 year 46
1 - 2 years 31
2 - 5 years 41
5 - 10 years 24
10 years or more 5
Adherence
Adherence Evaluations
Always 274
Usually 32
Sometimes 6
Never taken as prescribed 8
Burden
Burden Evaluations
Very hard to take 14
Somewhat hard to take 40
A little hard to take 66
Not at all hard to take 200
Cost per month
Cost per month Evaluations
$200+ 19
$100-199 19
$50-99 24
$25-49 25
< $25 122
Not specified 111

What people switch to and from

Patients started taking Mycophenolate mofetil after stopping:

Treatment Patients
Azathioprine (Imuran) 17
Prednisone (Deltasone) 13
Methotrexate (Metoject) 9
Hydroxychloroquine (Plaquenil) 5
Cyclophosphamide (Cytoxan) 4

Show all 20 treatments patients report switching from

Patients stopped taking Mycophenolate mofetil and switched to:

Treatment Patients
Azathioprine (Imuran) 6
Belimumab (Benlysta) 3
Cyclophosphamide (Cytoxan) 3
Methotrexate (Metoject) 3
Rituximab (Rituxan) 3

Show all 15 treatments patients report switching to

Last updated:

35 patient evaluations for Mycophenolate mofetil

261 members have decided to share their profiles only with other members of PatientsLikeMe.

Santa 1
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Santa 1
Data Quality: 1 star
  • Sex: M
  • Age: 62y
  • Organ: Kidney
Quality of life:
  • Mental: Mild
  • Physical: Mild
  1. Kidney : 17y Transplanted
I have:
Kidney Transplant

See Santa 1's full Mycophenolate mofetil history

Oct 31, 2016 (Started Dec 01, 2005)

  • Effectiveness
    Major (for Prevent organ rejection)
  • Effectiveness
    Major (for Kidney Transplant)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1000 mg Daily
Cost: $50-99 monthly

  • 0 helpful marks
gregster68
19721 thumb
gregster68
Data Quality: 1 star
  • Sex: M
  • Age: 48y
  • Organ: Heart
Quality of life:
  • Mental: Mild
  • Physical: Mild
  1. Heart : 2y Waiting
I have:
Heart Transplant

See gregster68's full Mycophenolate mofetil history

Apr 15, 2016 (Started Jan 09, 2016)

  • Effectiveness
    Major (for Transplant rejection prevention)
  • Side effects
    Mild (Diarrhea)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 250 mg Twice daily
Advice & Tips: Does cause some bowel problems, diarrhea specifically, but its infrequent and manageable
Cost: $25-49 monthly

  • 0 helpful marks
philiph
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philiph
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: b
I have:
MS

See philiph's full Mycophenolate mofetil history

Sep 25, 2015 (Started Apr 09, 2010)

  • Effectiveness
    Major (for Neuromyelitis Optica)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily

  • 0 helpful marks
Last updated:
Showing 3 of 35 patient evaluations for Mycophenolate mofetil