Multiple sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is multiple sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with multiple sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with multiple sclerosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
346
Tried for
multiple sclerosis (346)
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
339
Tried for
multiple sclerosis (339) stiffness/spasticity (3)
1 more
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
207
Tried for
multiple sclerosis (207)
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
150
Tried for
multiple sclerosis (150) fatigue (2)
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
140
Tried for
multiple sclerosis (140)
Treatment name(s)

(Ocrevus)
Type
Prescription Drug
How many have tried
130
Tried for
multiple sclerosis (130)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
126
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
64
Tried for
multiple sclerosis (64) fatigue (1)
Treatment name(s)

(Lemtrada)
Type
Prescription Drug
How many have tried
60
Tried for
multiple sclerosis (60)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
56
Tried for
pain (36) multiple sclerosis (9)
5 more

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with multiple sclerosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for multiple sclerosis (281 evaluations)
Side effects
flushing stomach pain 112 more
Total evaluations
282
Tried for
multiple sclerosis (346)
Treatment name(s)

(Copaxone)
Perceived effectiveness
for multiple sclerosis (317 evaluations)
Side effects
injection site pain injection site bumps 113 more
Total evaluations
317
Tried for
multiple sclerosis (339) stiffness/spasticity (3)
1 more
Treatment name(s)

(Aubagio)
Perceived effectiveness
for multiple sclerosis (160 evaluations)
Side effects
hair loss diarrhea 60 more
Total evaluations
168
Tried for
multiple sclerosis (207)
Treatment name(s)

(Tysabri)
Perceived effectiveness
for multiple sclerosis (105 evaluations)
Side effects
fatigue headaches 35 more
Total evaluations
107
Tried for
multiple sclerosis (150) fatigue (2)
Treatment name(s)

(Gilenya)
Perceived effectiveness
for multiple sclerosis (106 evaluations)
Side effects
headaches hair loss 42 more
Total evaluations
110
Tried for
multiple sclerosis (140)
Treatment name(s)

(Ocrevus)
Perceived effectiveness
for multiple sclerosis (74 evaluations)
Side effects
fatigue headaches 32 more
Total evaluations
75
Tried for
multiple sclerosis (130)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for stiffness/spasticity (76 evaluations)
Side effects
drowsiness fatigue 10 more
Total evaluations
101
Treatment name(s)

(Rebif)
Perceived effectiveness
for multiple sclerosis (57 evaluations)
Side effects
headaches flu like symptoms 54 more
Total evaluations
57
Tried for
multiple sclerosis (64) fatigue (1)
Treatment name(s)

(Lemtrada)
Perceived effectiveness
for multiple sclerosis (67 evaluations)
Side effects
fatigue headaches 58 more
Total evaluations
67
Tried for
multiple sclerosis (60)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (27 evaluations)
Side effects
fatigue drowsiness 10 more
Total evaluations
44
Tried for
pain (36) multiple sclerosis (9)
5 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
Last updated:

Who has multiple sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 41
20s 1193
30s 7145
40s 16118
50s 18744
60s 11553
70+ 2766
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2898
20-29 years 9457
30-39 years 9936
40-49 years 6068
50-59 years 1546
60-69 years 152
70+ years 18

Distribution of sex

Sex
Sex Proportion # of patients
Male 10497
Female 47567

Types
Condition Types Proportion # of patients
Primary progressive multiple sclerosis 4362
Relapsing-remitting multiple sclerosis 38047
Secondary progressive multiple sclerosis 5716
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 33679
Not Diagnosed 1353

These charts show data from MS patients who have completed their condition history
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