Multiple sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is multiple sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with multiple sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with multiple sclerosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
411
Tried for
multiple sclerosis (411)
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
362
Tried for
multiple sclerosis (362) stiffness/spasticity (4)
2 more
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
217
Tried for
multiple sclerosis (217)
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
161
Tried for
multiple sclerosis (161)
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
159
Tried for
multiple sclerosis (159) fatigue (1)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
134
Treatment name(s)

(Ocrevus)
Type
Prescription Drug
How many have tried
118
Tried for
multiple sclerosis (118)
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
67
Tried for
multiple sclerosis (67) fatigue (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
61
Tried for
pain (43) multiple sclerosis (8)
5 more
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
61
Tried for
multiple sclerosis (61) fatigue (1)

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with multiple sclerosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for multiple sclerosis (340 evaluations)
Side effects
flushing stomach pain 147 more
Total evaluations
341
Tried for
multiple sclerosis (411)
Treatment name(s)

(Copaxone)
Perceived effectiveness
for multiple sclerosis (334 evaluations)
Side effects
injection site pain injection site bumps 116 more
Total evaluations
335
Tried for
multiple sclerosis (362) stiffness/spasticity (4)
2 more
Treatment name(s)

(Aubagio)
Perceived effectiveness
for multiple sclerosis (175 evaluations)
Side effects
hair loss diarrhea 63 more
Total evaluations
183
Tried for
multiple sclerosis (217)
Treatment name(s)

(Gilenya)
Perceived effectiveness
for multiple sclerosis (123 evaluations)
Side effects
headaches fatigue 54 more
Total evaluations
127
Tried for
multiple sclerosis (161)
Treatment name(s)

(Tysabri)
Perceived effectiveness
for multiple sclerosis (112 evaluations)
Side effects
fatigue headaches 42 more
Total evaluations
114
Tried for
multiple sclerosis (159) fatigue (1)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for stiffness/spasticity (84 evaluations)
Side effects
drowsiness fatigue 11 more
Total evaluations
108
Treatment name(s)

(Ocrevus)
Perceived effectiveness
for multiple sclerosis (66 evaluations)
Side effects
fatigue headaches 27 more
Total evaluations
67
Tried for
multiple sclerosis (118)
Treatment name(s)

(Rebif)
Perceived effectiveness
for multiple sclerosis (58 evaluations)
Side effects
headaches flu like symptoms 54 more
Total evaluations
58
Tried for
multiple sclerosis (67) fatigue (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (28 evaluations)
Side effects
fatigue drowsiness 11 more
Total evaluations
45
Tried for
pain (43) multiple sclerosis (8)
5 more
Treatment name(s)

(Avonex)
Perceived effectiveness
for multiple sclerosis (41 evaluations)
Side effects
flu like symptoms headaches 23 more
Total evaluations
42
Tried for
multiple sclerosis (61) fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Who has multiple sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 41
20s 1244
30s 7306
40s 16189
50s 18514
60s 11268
70+ 2585
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2899
20-29 years 9458
30-39 years 9931
40-49 years 6072
50-59 years 1545
60-69 years 152
70+ years 18

Distribution of sex

Sex
Sex Proportion # of patients
Male 10420
Female 47311

Types
Condition Types Proportion # of patients
Primary progressive multiple sclerosis 4327
Relapsing-remitting multiple sclerosis 37902
Secondary progressive multiple sclerosis 5682
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 33667
Not Diagnosed 1358

These charts show data from MS patients who have completed their condition history
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