Multiple sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is multiple sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with multiple sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with multiple sclerosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
257
Tried for
multiple sclerosis (257) stiffness/spasticity (2)
1 more
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
235
Tried for
multiple sclerosis (235)
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
176
Tried for
multiple sclerosis (176)
Treatment name(s)

(Ocrevus)
Type
Prescription Drug
How many have tried
155
Tried for
multiple sclerosis (155)
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
109
Tried for
multiple sclerosis (109) fatigue (2)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
100
Tried for
stiffness/spasticity (71) multiple sclerosis (62)
1 more
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
93
Tried for
multiple sclerosis (93)
Treatment name(s)

(Lemtrada)
Type
Prescription Drug
How many have tried
51
Tried for
multiple sclerosis (51)
Treatment name(s)

(Rituxan)
Type
Prescription Drug
How many have tried
51
Tried for
multiple sclerosis (50) fatigue (1)
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
49
Tried for
multiple sclerosis (49) fatigue (1)

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with multiple sclerosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Copaxone)
Perceived effectiveness
for multiple sclerosis (212 evaluations)
Side effects
injection site pain injection site bumps 89 more
Total evaluations
212
Tried for
multiple sclerosis (257) stiffness/spasticity (2)
1 more
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for multiple sclerosis (181 evaluations)
Side effects
flushing diarrhea 81 more
Total evaluations
182
Tried for
multiple sclerosis (235)
Treatment name(s)

(Aubagio)
Perceived effectiveness
for multiple sclerosis (132 evaluations)
Side effects
hair loss diarrhea 56 more
Total evaluations
139
Tried for
multiple sclerosis (176)
Treatment name(s)

(Ocrevus)
Perceived effectiveness
for multiple sclerosis (98 evaluations)
Side effects
fatigue headaches 36 more
Total evaluations
99
Tried for
multiple sclerosis (155)
Treatment name(s)

(Tysabri)
Perceived effectiveness
for multiple sclerosis (84 evaluations)
Side effects
fatigue headaches 30 more
Total evaluations
84
Tried for
multiple sclerosis (109) fatigue (2)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for stiffness/spasticity (75 evaluations)
Side effects
sleepiness drowsiness 10 more
Total evaluations
108
Tried for
stiffness/spasticity (71) multiple sclerosis (62)
1 more
Treatment name(s)

(Gilenya)
Perceived effectiveness
for multiple sclerosis (83 evaluations)
Side effects
hair loss headaches 28 more
Total evaluations
84
Tried for
multiple sclerosis (93)
Treatment name(s)

(Lemtrada)
Perceived effectiveness
for multiple sclerosis (62 evaluations)
Side effects
fatigue headaches 49 more
Total evaluations
62
Tried for
multiple sclerosis (51)
Treatment name(s)

(Rituxan)
Perceived effectiveness
for multiple sclerosis (30 evaluations)
Side effects
fatigue hair loss 20 more
Total evaluations
30
Tried for
multiple sclerosis (50) fatigue (1)
Treatment name(s)

(Rebif)
Perceived effectiveness
for multiple sclerosis (44 evaluations)
Side effects
headaches injection site pain 48 more
Total evaluations
44
Tried for
multiple sclerosis (49) fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
Last updated:

Who has multiple sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 29
20s 1091
30s 6790
40s 16025
50s 19552
60s 12493
70+ 3216
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2897
20-29 years 9454
30-39 years 9941
40-49 years 6075
50-59 years 1545
60-69 years 152
70+ years 18

Distribution of sex

Sex
Sex Proportion # of patients
Male 10797
Female 49027

Types
Condition Types Proportion # of patients
Primary progressive multiple sclerosis 4525
Relapsing-remitting multiple sclerosis 38864
Secondary progressive multiple sclerosis 5873
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 33691
Not Diagnosed 1353

These charts show data from MS patients who have completed their condition history
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