Multiple sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is multiple sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with multiple sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with multiple sclerosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
320
Tried for
multiple sclerosis (320) stiffness/spasticity (3)
1 more
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
319
Tried for
multiple sclerosis (319)
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
203
Tried for
multiple sclerosis (203)
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
142
Tried for
multiple sclerosis (142) fatigue (2)
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
135
Tried for
multiple sclerosis (135)
Treatment name(s)

(Ocrevus)
Type
Prescription Drug
How many have tried
134
Tried for
multiple sclerosis (134)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
121
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
61
Tried for
multiple sclerosis (61) fatigue (1)
Treatment name(s)

(Lemtrada)
Type
Prescription Drug
How many have tried
60
Tried for
multiple sclerosis (60)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
55
Tried for
pain (35) multiple sclerosis (9)
5 more

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with multiple sclerosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Copaxone)
Perceived effectiveness
for multiple sclerosis (296 evaluations)
Side effects
injection site pain injection site bumps 107 more
Total evaluations
296
Tried for
multiple sclerosis (320) stiffness/spasticity (3)
1 more
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for multiple sclerosis (256 evaluations)
Side effects
flushing stomach pain 108 more
Total evaluations
257
Tried for
multiple sclerosis (319)
Treatment name(s)

(Aubagio)
Perceived effectiveness
for multiple sclerosis (153 evaluations)
Side effects
hair loss diarrhea 60 more
Total evaluations
161
Tried for
multiple sclerosis (203)
Treatment name(s)

(Tysabri)
Perceived effectiveness
for multiple sclerosis (99 evaluations)
Side effects
fatigue headaches 33 more
Total evaluations
101
Tried for
multiple sclerosis (142) fatigue (2)
Treatment name(s)

(Gilenya)
Perceived effectiveness
for multiple sclerosis (103 evaluations)
Side effects
hair loss headaches 41 more
Total evaluations
107
Tried for
multiple sclerosis (135)
Treatment name(s)

(Ocrevus)
Perceived effectiveness
for multiple sclerosis (79 evaluations)
Side effects
fatigue headaches 32 more
Total evaluations
80
Tried for
multiple sclerosis (134)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for stiffness/spasticity (77 evaluations)
Side effects
drowsiness fatigue 11 more
Total evaluations
104
Treatment name(s)

(Rebif)
Perceived effectiveness
for multiple sclerosis (53 evaluations)
Side effects
headaches flu like symptoms 53 more
Total evaluations
53
Tried for
multiple sclerosis (61) fatigue (1)
Treatment name(s)

(Lemtrada)
Perceived effectiveness
for multiple sclerosis (67 evaluations)
Side effects
fatigue headaches 58 more
Total evaluations
67
Tried for
multiple sclerosis (60)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (26 evaluations)
Side effects
fatigue drowsiness 7 more
Total evaluations
43
Tried for
pain (35) multiple sclerosis (9)
5 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Who has multiple sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 38
20s 1190
30s 7165
40s 16206
50s 18969
60s 11733
70+ 2824
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2897
20-29 years 9453
30-39 years 9938
40-49 years 6069
50-59 years 1548
60-69 years 152
70+ years 18

Distribution of sex

Sex
Sex Proportion # of patients
Male 10589
Female 48143

Types
Condition Types Proportion # of patients
Primary progressive multiple sclerosis 4412
Relapsing-remitting multiple sclerosis 38352
Secondary progressive multiple sclerosis 5771
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 33683
Not Diagnosed 1353

These charts show data from MS patients who have completed their condition history
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