Multiple sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is multiple sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with multiple sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with multiple sclerosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
541
Tried for
multiple sclerosis (541)
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
400
Tried for
multiple sclerosis (400) stiffness/spasticity (4)
2 more
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
231
Tried for
multiple sclerosis (231)
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
212
Tried for
multiple sclerosis (212)
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
194
Tried for
multiple sclerosis (194) fatigue (1)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
176
Tried for
stiffness/spasticity (127) multiple sclerosis (105)
1 more
Treatment name(s)

(Ocrevus)
Type
Prescription Drug
How many have tried
106
Tried for
multiple sclerosis (106)
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
79
Tried for
multiple sclerosis (79) fatigue (1)
Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
77
Tried for
multiple sclerosis (75) balance problems (2)
1 more
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
77
Tried for
multiple sclerosis (77) fatigue (2)

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with multiple sclerosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for multiple sclerosis (420 evaluations)
Side effects
flushing nausea 159 more
Total evaluations
421
Tried for
multiple sclerosis (541)
Treatment name(s)

(Copaxone)
Perceived effectiveness
for multiple sclerosis (360 evaluations)
Side effects
injection site pain injection site bumps 126 more
Total evaluations
361
Tried for
multiple sclerosis (400) stiffness/spasticity (4)
2 more
Treatment name(s)

(Aubagio)
Perceived effectiveness
for multiple sclerosis (188 evaluations)
Side effects
hair loss diarrhea 61 more
Total evaluations
196
Tried for
multiple sclerosis (231)
Treatment name(s)

(Gilenya)
Perceived effectiveness
for multiple sclerosis (154 evaluations)
Side effects
headaches fatigue 60 more
Total evaluations
158
Tried for
multiple sclerosis (212)
Treatment name(s)

(Tysabri)
Perceived effectiveness
for multiple sclerosis (139 evaluations)
Side effects
fatigue headaches 49 more
Total evaluations
141
Tried for
multiple sclerosis (194) fatigue (1)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for stiffness/spasticity (114 evaluations)
Side effects
drowsiness fatigue 14 more
Total evaluations
145
Tried for
stiffness/spasticity (127) multiple sclerosis (105)
1 more
Treatment name(s)

(Ocrevus)
Perceived effectiveness
for multiple sclerosis (61 evaluations)
Side effects
fatigue nausea 22 more
Total evaluations
62
Tried for
multiple sclerosis (106)
Treatment name(s)

(Rebif)
Perceived effectiveness
for multiple sclerosis (67 evaluations)
Side effects
headaches flu like symptoms 58 more
Total evaluations
67
Tried for
multiple sclerosis (79) fatigue (1)
Treatment name(s)

(Ampyra)
Perceived effectiveness
for multiple sclerosis (62 evaluations)
Side effects
headaches balance problems 17 more
Total evaluations
73
Tried for
multiple sclerosis (75) balance problems (2)
1 more
Treatment name(s)

(Avonex)
Perceived effectiveness
for multiple sclerosis (54 evaluations)
Side effects
flu like symptoms headaches 29 more
Total evaluations
55
Tried for
multiple sclerosis (77) fatigue (2)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Who has multiple sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 45
20s 1337
30s 7650
40s 16401
50s 18331
60s 10885
70+ 2371
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2904
20-29 years 9469
30-39 years 9951
40-49 years 6084
50-59 years 1552
60-69 years 154
70+ years 18

Distribution of sex

Sex
Sex Proportion # of patients
Male 10393
Female 47216

Types
Condition Types Proportion # of patients
Primary progressive multiple sclerosis 4310
Relapsing-remitting multiple sclerosis 37822
Secondary progressive multiple sclerosis 5652
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 33728
Not Diagnosed 1357

These charts show data from MS patients who have completed their condition history
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