Multiple sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is multiple sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with multiple sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with multiple sclerosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
507
Tried for
multiple sclerosis (507)
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
393
Tried for
multiple sclerosis (393) stiffness/spasticity (4)
2 more
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
227
Tried for
multiple sclerosis (227)
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
202
Tried for
multiple sclerosis (202)
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
185
Tried for
multiple sclerosis (185) fatigue (1)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
166
Tried for
stiffness/spasticity (119) multiple sclerosis (101)
1 more
Treatment name(s)

(Ocrevus)
Type
Prescription Drug
How many have tried
109
Tried for
multiple sclerosis (109)
Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
75
Tried for
multiple sclerosis (75) fatigue (2)
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
75
Tried for
multiple sclerosis (75) fatigue (1)
Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
72
Tried for
multiple sclerosis (70) balance problems (2)
1 more

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with multiple sclerosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for multiple sclerosis (405 evaluations)
Side effects
flushing nausea 157 more
Total evaluations
406
Tried for
multiple sclerosis (507)
Treatment name(s)

(Copaxone)
Perceived effectiveness
for multiple sclerosis (347 evaluations)
Side effects
injection site pain injection site bumps 122 more
Total evaluations
348
Tried for
multiple sclerosis (393) stiffness/spasticity (4)
2 more
Treatment name(s)

(Aubagio)
Perceived effectiveness
for multiple sclerosis (182 evaluations)
Side effects
hair loss diarrhea 63 more
Total evaluations
190
Tried for
multiple sclerosis (227)
Treatment name(s)

(Gilenya)
Perceived effectiveness
for multiple sclerosis (149 evaluations)
Side effects
headaches fatigue 58 more
Total evaluations
153
Tried for
multiple sclerosis (202)
Treatment name(s)

(Tysabri)
Perceived effectiveness
for multiple sclerosis (135 evaluations)
Side effects
fatigue headaches 46 more
Total evaluations
137
Tried for
multiple sclerosis (185) fatigue (1)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for stiffness/spasticity (105 evaluations)
Side effects
drowsiness fatigue 12 more
Total evaluations
136
Tried for
stiffness/spasticity (119) multiple sclerosis (101)
1 more
Treatment name(s)

(Ocrevus)
Perceived effectiveness
for multiple sclerosis (63 evaluations)
Side effects
fatigue nausea 26 more
Total evaluations
64
Tried for
multiple sclerosis (109)
Treatment name(s)

(Avonex)
Perceived effectiveness
for multiple sclerosis (50 evaluations)
Side effects
flu like symptoms headaches 27 more
Total evaluations
51
Tried for
multiple sclerosis (75) fatigue (2)
Treatment name(s)

(Rebif)
Perceived effectiveness
for multiple sclerosis (67 evaluations)
Side effects
headaches flu like symptoms 58 more
Total evaluations
67
Tried for
multiple sclerosis (75) fatigue (1)
Treatment name(s)

(Ampyra)
Perceived effectiveness
for multiple sclerosis (58 evaluations)
Side effects
headaches balance problems 17 more
Total evaluations
69
Tried for
multiple sclerosis (70) balance problems (2)
1 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple sclerosis, who reported starting treatments within the last 5 years.
Last updated:

Who has multiple sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 43
20s 1294
30s 7514
40s 16356
50s 18438
60s 11022
70+ 2458
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2904
20-29 years 9471
30-39 years 9953
40-49 years 6085
50-59 years 1553
60-69 years 154
70+ years 18

Distribution of sex

Sex
Sex Proportion # of patients
Male 10408
Female 47311

Types
Condition Types Proportion # of patients
Primary progressive multiple sclerosis 4317
Relapsing-remitting multiple sclerosis 37858
Secondary progressive multiple sclerosis 5663
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 33734
Not Diagnosed 1360

These charts show data from MS patients who have completed their condition history
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