Multiple sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Jackie explains in this video.

What is multiple sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with multiple sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for multiple sclerosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Ocrevus)
Type
Prescription Drug
How many have tried
1820
Tried for
multiple sclerosis (164)
Treatment name(s)

(Aubagio)
Type
Prescription Drug
How many have tried
2025
Tried for
multiple sclerosis (54)
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
17047
Tried for
multiple sclerosis (52)
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
7295
Tried for
multiple sclerosis (47)
Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
6651
Tried for
multiple sclerosis (27)
Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
4691
Tried for
multiple sclerosis (19)
Treatment name(s)

(Mavenclad)
Type
Prescription Drug
How many have tried
21
Tried for
multiple sclerosis (18)
Treatment name(s)

(Rituxan)
Type
Prescription Drug
How many have tried
199
Tried for
multiple sclerosis (14)
Treatment name(s)

(Lemtrada)
Type
Prescription Drug
How many have tried
540
Tried for
multiple sclerosis (6)
Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
9428
Tried for
multiple sclerosis (6)

Data from patients with multiple sclerosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with multiple sclerosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Ocrevus)
Perceived effectiveness
for multiple sclerosis (80 evaluations)
Side effects
fatigue headaches 31 more
Total evaluations
80
Tried for
multiple sclerosis (164)
Treatment name(s)

(Aubagio)
Perceived effectiveness
for multiple sclerosis (32 evaluations)
Side effects
hair loss diarrhea 15 more
Total evaluations
32
Tried for
multiple sclerosis (54)
Treatment name(s)

(Copaxone)
Perceived effectiveness
for multiple sclerosis (46 evaluations)
Side effects
injection site pain injection site swelling 26 more
Total evaluations
46
Tried for
multiple sclerosis (52)
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for multiple sclerosis (29 evaluations)
Side effects
flushing facial flushing 15 more
Total evaluations
29
Tried for
multiple sclerosis (47)
Treatment name(s)

(Tysabri)
Perceived effectiveness
for multiple sclerosis (16 evaluations)
Side effects
fatigue headaches 8 more
Total evaluations
17
Tried for
multiple sclerosis (27)
Treatment name(s)

(Gilenya)
Perceived effectiveness
for multiple sclerosis (24 evaluations)
Side effects
chronic fatigue constipation 2 more
Total evaluations
24
Tried for
multiple sclerosis (19)
Treatment name(s)

(Mavenclad)
Perceived effectiveness
for multiple sclerosis (9 evaluations)
Side effects
chronic fatigue indigestion
Total evaluations
9
Tried for
multiple sclerosis (18)
Treatment name(s)

(Rituxan)
Perceived effectiveness
for multiple sclerosis (7 evaluations)
Side effects
fatigue hair loss 3 more
Total evaluations
7
Tried for
multiple sclerosis (14)
Treatment name(s)

(Lemtrada)
Perceived effectiveness
for multiple sclerosis (11 evaluations)
Side effects
anxious mood breathing difficulty 7 more
Total evaluations
11
Tried for
multiple sclerosis (6)
Treatment name(s)

(Rebif)
Perceived effectiveness
for multiple sclerosis (3 evaluations)
Side effects
constant tiredness low grade fever
Total evaluations
3
Tried for
multiple sclerosis (6)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple sclerosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has multiple sclerosis on PatientsLikeMe?

  • 90 new patients joined this month
  • 70861 say MS is their primary condition

Age
Age Proportion # of patients
<20 28
20s 733
30s 5339
40s 14269
50s 20583
60s 15123
70+ 5172
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2894
20-29 years 9459
30-39 years 9942
40-49 years 6070
50-59 years 1555
60-69 years 155
70+ years 18

Distribution of sex

Sex
Sex Proportion # of patients
Male 11309
Female 50610

Types
Condition Types Proportion # of patients
Primary progressive multiple sclerosis 4771
Relapsing-remitting multiple sclerosis 39673
Secondary progressive multiple sclerosis 6042
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 33712
Not Diagnosed 1348

These charts show data from MS patients who have completed their condition history
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