Systemic lupus erythematosus

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What is systemic lupus erythematosus?

Systemic lupus erythematosus is a chronic autoimmune disorder primarily involving connective tissue. It affects multiple systems including the skin, joints, kidneys, lungs, heart, and the peripheral blood cells. Treatments vary according to the area affected and may include drugs or supportive care.

Common symptoms reported by people with systemic lupus erythematosus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
569
Tried for
systemic lupus erythematosus (567) fatigue (2)
5 more
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
387
Tried for
systemic lupus erythematosus (384) joint pain (5)
4 more
Treatment name(s)

(Trexall)
Type
Prescription Drug
How many have tried
159
Tried for
systemic lupus erythematosus (157) joint pain (2)
1 more
Treatment name(s)

(Benlysta)
Type
Prescription Drug
How many have tried
106
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
91
Tried for
systemic lupus erythematosus (91) pain (1)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
88
Tried for
systemic lupus erythematosus (88) pain (1)
Treatment name(s)

(Naproxen Prescription)
Type
Over the Counter Drug
How many have tried
64
Tried for
systemic lupus erythematosus (53) pain (10)
1 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
59
Tried for
pain (50) muscle pain (20)
4 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
47
Tried for
pain (41) systemic lupus erythematosus (7)
1 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
33
Tried for
pain (28) systemic lupus erythematosus (6)
2 more

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for systemic lupus erythematosus (254 evaluations)
Side effects
nausea diarrhea 93 more
Total evaluations
258
Tried for
systemic lupus erythematosus (567) fatigue (2)
5 more
Treatment name(s)

(Deltasone)
Perceived effectiveness
for systemic lupus erythematosus (143 evaluations)
Side effects
weight gain mood swings 105 more
Total evaluations
153
Tried for
systemic lupus erythematosus (384) joint pain (5)
4 more
Treatment name(s)

(Trexall)
Perceived effectiveness
for systemic lupus erythematosus (81 evaluations)
Side effects
nausea fatigue 54 more
Total evaluations
85
Tried for
systemic lupus erythematosus (157) joint pain (2)
1 more
Treatment name(s)

(Benlysta)
Perceived effectiveness
for systemic lupus erythematosus (68 evaluations)
Side effects
headaches nausea 50 more
Total evaluations
68
Treatment name(s)

(CellCept)
Perceived effectiveness
for systemic lupus erythematosus (30 evaluations)
Side effects
nausea diarrhea 24 more
Total evaluations
33
Tried for
systemic lupus erythematosus (91) pain (1)
Treatment name(s)

(Imuran)
Perceived effectiveness
for systemic lupus erythematosus (37 evaluations)
Side effects
nausea elevated liver enzymes 15 more
Total evaluations
39
Tried for
systemic lupus erythematosus (88) pain (1)
Treatment name(s)

(Naproxen Prescription)
Perceived effectiveness
for systemic lupus erythematosus (31 evaluations)
Side effects
nausea stomach pain 4 more
Total evaluations
37
Tried for
systemic lupus erythematosus (53) pain (10)
1 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (24 evaluations)
Side effects
constipation sleepiness 15 more
Total evaluations
40
Tried for
pain (50) muscle pain (20)
4 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (12 evaluations)
Side effects
dizziness drowsiness 5 more
Total evaluations
15
Tried for
pain (41) systemic lupus erythematosus (7)
1 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for pain (18 evaluations)
Side effects
nausea stomach pain 6 more
Total evaluations
24
Tried for
pain (28) systemic lupus erythematosus (6)
2 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Who has systemic lupus erythematosus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 137
20s 1582
30s 5099
40s 10492
50s 9849
60s 4646
70+ 935
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2114
20-29 years 2555
30-39 years 2724
40-49 years 1699
50-59 years 576
60-69 years 112
70+ years 29

Distribution of sex

Sex
Sex Proportion # of patients
Male 1175
Female 32021

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 12542
Not Diagnosed 536

These charts show data from systemic lupus erythematosus patients who have completed their condition history
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