Systemic lupus erythematosus
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- help each other live better and uncover the best ways to manage your health today
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How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is systemic lupus erythematosus?
Systemic lupus erythematosus is a chronic autoimmune disorder primarily involving connective tissue. It affects multiple systems including the skin, joints, kidneys, lungs, heart, and the peripheral blood cells. Treatments vary according to the area affected and may include drugs or supportive care.
Common symptoms reported by people with systemic lupus erythematosus
Common symptoms
How bad it is
What people are taking for it
Common symptom
Skin sensitivity to sun (photosensitivity)
How bad it is
What people are taking for it
Common symptom
Inability to experience pleasure (anhedonia)
How bad it is
What people are taking for it
Common symptom
Pain in upper right abdomen
How bad it is
What people are taking for it
Nothing reported yet
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for systemic lupus erythematosus
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with systemic lupus erythematosus, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with systemic lupus erythematosus
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for systemic lupus erythematosus (7 evaluations)
Total evaluations
8
Tried for
systemic lupus erythematosus
(46)
Perceived effectiveness
for systemic lupus erythematosus (7 evaluations)
Total evaluations
7
Tried for
systemic lupus erythematosus
(25)
Perceived effectiveness
for systemic lupus erythematosus (10 evaluations)
Total evaluations
10
Tried for
systemic lupus erythematosus
(20)
Perceived effectiveness
for systemic lupus erythematosus (8 evaluations)
Total evaluations
8
Tried for
systemic lupus erythematosus
(19)
Perceived effectiveness
for systemic lupus erythematosus (7 evaluations)
Total evaluations
7
Tried for
systemic lupus erythematosus
(9)
Perceived effectiveness
for systemic lupus erythematosus (1 evaluation)
Side effects
spinning dizziness (vertigo)
Total evaluations
1
Tried for
systemic lupus erythematosus
(8)
Perceived effectiveness
for systemic lupus erythematosus (1 evaluation)
Side effects
Total evaluations
1
Tried for
systemic lupus erythematosus
(3)
Perceived effectiveness
for systemic lupus erythematosus (3 evaluations)
Side effects
sleepiness
Total evaluations
3
Tried for
systemic lupus erythematosus
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
systemic lupus erythematosus
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with systemic lupus erythematosus, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has systemic lupus erythematosus on PatientsLikeMe?
- 19 new patients joined this month
- 36,201 say systemic lupus erythematosus is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 40 | |
| 20s | 759 | |
| 30s | 3,386 | |
| 40s | 8,440 | |
| 50s | 11,525 | |
| 60s | 7,276 | |
| 70+ | 2,347 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 2,113 | |
| 20-29 years | 2,551 | |
| 30-39 years | 2,724 | |
| 40-49 years | 1,704 | |
| 50-59 years | 581 | |
| 60-69 years | 113 | |
| 70+ years | 30 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 1,216 | |
| Female | 33,016 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 12,554 | |
| Not Diagnosed | 533 |
These charts show data from systemic lupus erythematosus patients who have completed their condition history
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