Systemic lupus erythematosus

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What is systemic lupus erythematosus?

Systemic lupus erythematosus is a chronic autoimmune disorder primarily involving connective tissue. It affects multiple systems including the skin, joints, kidneys, lungs, heart, and the peripheral blood cells. Treatments vary according to the area affected and may include drugs or supportive care.

Common symptoms reported by people with systemic lupus erythematosus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
495
Tried for
systemic lupus erythematosus (493) fatigue (2)
5 more
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
347
Tried for
systemic lupus erythematosus (345) joint pain (4)
4 more
Treatment name(s)

(Trexall)
Type
Prescription Drug
How many have tried
143
Tried for
systemic lupus erythematosus (141) joint pain (2)
1 more
Treatment name(s)

(Benlysta)
Type
Prescription Drug
How many have tried
98
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
86
Tried for
systemic lupus erythematosus (86) pain (1)
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
82
Tried for
systemic lupus erythematosus (82) pain (1)
Treatment name(s)

(Naproxen Prescription)
Type
Over the Counter Drug
How many have tried
49
Tried for
systemic lupus erythematosus (38) pain (10)
1 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
45
Tried for
pain (38) muscle pain (14)
4 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
40
Tried for
pain (34) systemic lupus erythematosus (7)
1 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
27
Tried for
pain (22) systemic lupus erythematosus (6)
2 more

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for systemic lupus erythematosus (227 evaluations)
Side effects
nausea diarrhea 83 more
Total evaluations
231
Tried for
systemic lupus erythematosus (493) fatigue (2)
5 more
Treatment name(s)

(Deltasone)
Perceived effectiveness
for systemic lupus erythematosus (140 evaluations)
Side effects
weight gain mood swings 101 more
Total evaluations
150
Tried for
systemic lupus erythematosus (345) joint pain (4)
4 more
Treatment name(s)

(Trexall)
Perceived effectiveness
for systemic lupus erythematosus (74 evaluations)
Side effects
nausea fatigue 47 more
Total evaluations
78
Tried for
systemic lupus erythematosus (141) joint pain (2)
1 more
Treatment name(s)

(Benlysta)
Perceived effectiveness
for systemic lupus erythematosus (61 evaluations)
Side effects
nausea fatigue 43 more
Total evaluations
61
Treatment name(s)

(Imuran)
Perceived effectiveness
for systemic lupus erythematosus (36 evaluations)
Side effects
nausea elevated liver enzymes 15 more
Total evaluations
38
Tried for
systemic lupus erythematosus (86) pain (1)
Treatment name(s)

(CellCept)
Perceived effectiveness
for systemic lupus erythematosus (29 evaluations)
Side effects
nausea diarrhea 24 more
Total evaluations
32
Tried for
systemic lupus erythematosus (82) pain (1)
Treatment name(s)

(Naproxen Prescription)
Perceived effectiveness
for systemic lupus erythematosus (26 evaluations)
Side effects
nausea abdominal pain 4 more
Total evaluations
32
Tried for
systemic lupus erythematosus (38) pain (10)
1 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (19 evaluations)
Side effects
constipation drowsiness 6 more
Total evaluations
32
Tried for
pain (38) muscle pain (14)
4 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (10 evaluations)
Side effects
dizziness drowsiness 3 more
Total evaluations
13
Tried for
pain (34) systemic lupus erythematosus (7)
1 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for pain (16 evaluations)
Side effects
nausea stomach pain 5 more
Total evaluations
21
Tried for
pain (22) systemic lupus erythematosus (6)
2 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Who has systemic lupus erythematosus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 128
20s 1534
30s 5025
40s 10388
50s 9935
60s 4763
70+ 963
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2109
20-29 years 2547
30-39 years 2721
40-49 years 1694
50-59 years 577
60-69 years 112
70+ years 30

Distribution of sex

Sex
Sex Proportion # of patients
Male 1176
Female 32021

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 12520
Not Diagnosed 534

These charts show data from systemic lupus erythematosus patients who have completed their condition history
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