Systemic lupus erythematosus

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What is systemic lupus erythematosus?

Systemic lupus erythematosus is a chronic autoimmune disorder primarily involving connective tissue. It affects multiple systems including the skin, joints, kidneys, lungs, heart, and the peripheral blood cells. Treatments vary according to the area affected and may include drugs or supportive care.

Common symptoms reported by people with systemic lupus erythematosus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
433
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
315
Tried for
systemic lupus erythematosus (313) joint pain (4)
5 more
Treatment name(s)

(Trexall)
Type
Prescription Drug
How many have tried
138
Tried for
systemic lupus erythematosus (136) joint pain (2)
1 more
Treatment name(s)

(Benlysta)
Type
Prescription Drug
How many have tried
94
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
77
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
70
Tried for
systemic lupus erythematosus (70) pain (1)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
42
Tried for
pain (35) muscle pain (13)
4 more
Treatment name(s)

(Naproxen Prescription)
Type
Over the Counter Drug
How many have tried
38
Tried for
systemic lupus erythematosus (28) pain (9)
1 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
37
Tried for
pain (32) systemic lupus erythematosus (6)
2 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
25
Tried for
pain (20) systemic lupus erythematosus (5)
2 more

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for systemic lupus erythematosus (199 evaluations)
Side effects
nausea diarrhea 81 more
Total evaluations
203
Treatment name(s)

(Deltasone)
Perceived effectiveness
for systemic lupus erythematosus (129 evaluations)
Side effects
weight gain insomnia 97 more
Total evaluations
137
Tried for
systemic lupus erythematosus (313) joint pain (4)
5 more
Treatment name(s)

(Trexall)
Perceived effectiveness
for systemic lupus erythematosus (64 evaluations)
Side effects
nausea fatigue 51 more
Total evaluations
68
Tried for
systemic lupus erythematosus (136) joint pain (2)
1 more
Treatment name(s)

(Benlysta)
Perceived effectiveness
for systemic lupus erythematosus (58 evaluations)
Side effects
nausea fatigue 39 more
Total evaluations
58
Treatment name(s)

(Imuran)
Perceived effectiveness
for systemic lupus erythematosus (34 evaluations)
Side effects
nausea elevated liver enzymes 15 more
Total evaluations
36
Treatment name(s)

(CellCept)
Perceived effectiveness
for systemic lupus erythematosus (27 evaluations)
Side effects
nausea diarrhea 21 more
Total evaluations
30
Tried for
systemic lupus erythematosus (70) pain (1)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (16 evaluations)
Side effects
constipation drowsiness 6 more
Total evaluations
31
Tried for
pain (35) muscle pain (13)
4 more
Treatment name(s)

(Naproxen Prescription)
Perceived effectiveness
for systemic lupus erythematosus (26 evaluations)
Side effects
nausea abdominal pain 4 more
Total evaluations
31
Tried for
systemic lupus erythematosus (28) pain (9)
1 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (8 evaluations)
Side effects
dizziness drowsiness 3 more
Total evaluations
12
Tried for
pain (32) systemic lupus erythematosus (6)
2 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for pain (15 evaluations)
Side effects
nausea drowsiness 4 more
Total evaluations
18
Tried for
pain (20) systemic lupus erythematosus (5)
2 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Who has systemic lupus erythematosus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 118
20s 1422
30s 4865
40s 10303
50s 10363
60s 5249
70+ 1130
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2111
20-29 years 2553
30-39 years 2726
40-49 years 1701
50-59 years 579
60-69 years 112
70+ years 30

Distribution of sex

Sex
Sex Proportion # of patients
Male 1193
Female 32729

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 12553
Not Diagnosed 534

These charts show data from systemic lupus erythematosus patients who have completed their condition history
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