Systemic lupus erythematosus

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What is systemic lupus erythematosus?

Systemic lupus erythematosus is a chronic autoimmune disorder primarily involving connective tissue. It affects multiple systems including the skin, joints, kidneys, lungs, heart, and the peripheral blood cells. Treatments vary according to the area affected and may include drugs or supportive care.

Common symptoms reported by people with systemic lupus erythematosus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
588
Tried for
systemic lupus erythematosus (586) fatigue (2)
5 more
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
397
Tried for
systemic lupus erythematosus (394) joint pain (5)
4 more
Treatment name(s)

(Apo-Methotrexate)
Type
Prescription Drug
How many have tried
163
Tried for
systemic lupus erythematosus (161) joint pain (3)
1 more
Treatment name(s)

(Benlysta)
Type
Prescription Drug
How many have tried
107
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
96
Tried for
systemic lupus erythematosus (96) pain (1)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
89
Tried for
systemic lupus erythematosus (89) pain (1)
Treatment name(s)

(Naproxen Prescription)
Type
Over the Counter Drug
How many have tried
67
Tried for
systemic lupus erythematosus (56) pain (10)
2 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
57
Tried for
pain (48) muscle pain (19)
3 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
51
Tried for
pain (45) systemic lupus erythematosus (6)
1 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
34
Tried for
pain (29) systemic lupus erythematosus (6)
2 more

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for systemic lupus erythematosus (260 evaluations)
Side effects
nausea headaches 101 more
Total evaluations
264
Tried for
systemic lupus erythematosus (586) fatigue (2)
5 more
Treatment name(s)

(Deltasone)
Perceived effectiveness
for systemic lupus erythematosus (143 evaluations)
Side effects
weight gain insomnia 107 more
Total evaluations
153
Tried for
systemic lupus erythematosus (394) joint pain (5)
4 more
Treatment name(s)

(Apo-Methotrexate)
Perceived effectiveness
for systemic lupus erythematosus (83 evaluations)
Side effects
nausea fatigue 54 more
Total evaluations
87
Tried for
systemic lupus erythematosus (161) joint pain (3)
1 more
Treatment name(s)

(Benlysta)
Perceived effectiveness
for systemic lupus erythematosus (65 evaluations)
Side effects
headaches fatigue 48 more
Total evaluations
65
Treatment name(s)

(CellCept)
Perceived effectiveness
for systemic lupus erythematosus (33 evaluations)
Side effects
nausea diarrhea 26 more
Total evaluations
36
Tried for
systemic lupus erythematosus (96) pain (1)
Treatment name(s)

(Imuran)
Perceived effectiveness
for systemic lupus erythematosus (34 evaluations)
Side effects
nausea elevated liver enzymes 13 more
Total evaluations
39
Tried for
systemic lupus erythematosus (89) pain (1)
Treatment name(s)

(Naproxen Prescription)
Perceived effectiveness
for systemic lupus erythematosus (32 evaluations)
Side effects
nausea stomach pain 4 more
Total evaluations
38
Tried for
systemic lupus erythematosus (56) pain (10)
2 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (24 evaluations)
Side effects
constipation itching 14 more
Total evaluations
40
Tried for
pain (48) muscle pain (19)
3 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (12 evaluations)
Side effects
dizziness drowsiness 5 more
Total evaluations
15
Tried for
pain (45) systemic lupus erythematosus (6)
1 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for pain (17 evaluations)
Side effects
nausea stomach pain 6 more
Total evaluations
23
Tried for
pain (29) systemic lupus erythematosus (6)
2 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Who has systemic lupus erythematosus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 153
20s 1670
30s 5267
40s 10615
50s 9655
60s 4449
70+ 837
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2110
20-29 years 2552
30-39 years 2721
40-49 years 1697
50-59 years 576
60-69 years 111
70+ years 28

Distribution of sex

Sex
Sex Proportion # of patients
Male 1170
Female 31931

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 12526
Not Diagnosed 533

These charts show data from systemic lupus erythematosus patients who have completed their condition history
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