Systemic lupus erythematosus

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What is systemic lupus erythematosus?

Systemic lupus erythematosus is a chronic autoimmune disorder primarily involving connective tissue. It affects multiple systems including the skin, joints, kidneys, lungs, heart, and the peripheral blood cells. Treatments vary according to the area affected and may include drugs or supportive care.

Common symptoms reported by people with systemic lupus erythematosus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
352
Tried for
systemic lupus erythematosus (350) fatigue (1)
4 more
Treatment name(s)

(Prednisone Intensol)
Type
Prescription Drug
How many have tried
253
Tried for
systemic lupus erythematosus (251) joint pain (3)
4 more
Treatment name(s)

(Apo-Methotrexate)
Type
Prescription Drug
How many have tried
117
Treatment name(s)

(Benlysta)
Type
Prescription Drug
How many have tried
79
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
63
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
54
Tried for
systemic lupus erythematosus (54) pain (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
33
Tried for
pain (29) systemic lupus erythematosus (5)
2 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
29
Tried for
pain (25) muscle pain (8)
4 more
Treatment name(s)

(Naproxen Prescription)
Type
Over the Counter Drug
How many have tried
24
Tried for
systemic lupus erythematosus (16) pain (7)
1 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
19
Tried for
pain (14) systemic lupus erythematosus (5)
2 more

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for systemic lupus erythematosus (181 evaluations)
Side effects
nausea diarrhea 79 more
Total evaluations
185
Tried for
systemic lupus erythematosus (350) fatigue (1)
4 more
Treatment name(s)

(Prednisone Intensol)
Perceived effectiveness
for systemic lupus erythematosus (113 evaluations)
Side effects
weight gain mood swings 85 more
Total evaluations
121
Tried for
systemic lupus erythematosus (251) joint pain (3)
4 more
Treatment name(s)

(Apo-Methotrexate)
Perceived effectiveness
for systemic lupus erythematosus (56 evaluations)
Side effects
nausea fatigue 46 more
Total evaluations
59
Treatment name(s)

(Benlysta)
Perceived effectiveness
for systemic lupus erythematosus (49 evaluations)
Side effects
nausea fatigue 39 more
Total evaluations
49
Treatment name(s)

(Imuran)
Perceived effectiveness
for systemic lupus erythematosus (30 evaluations)
Side effects
nausea elevated liver enzymes 13 more
Total evaluations
32
Treatment name(s)

(CellCept)
Perceived effectiveness
for systemic lupus erythematosus (24 evaluations)
Side effects
nausea diarrhea 17 more
Total evaluations
27
Tried for
systemic lupus erythematosus (54) pain (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (8 evaluations)
Side effects
dizziness drowsiness 3 more
Total evaluations
12
Tried for
pain (29) systemic lupus erythematosus (5)
2 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (12 evaluations)
Side effects
constipation drowsiness 5 more
Total evaluations
27
Tried for
pain (25) muscle pain (8)
4 more
Treatment name(s)

(Naproxen Prescription)
Perceived effectiveness
for systemic lupus erythematosus (9 evaluations)
Side effects
nausea abdominal pain 2 more
Total evaluations
14
Tried for
systemic lupus erythematosus (16) pain (7)
1 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for pain (11 evaluations)
Side effects
drowsiness gastric ulcer 4 more
Total evaluations
14
Tried for
pain (14) systemic lupus erythematosus (5)
2 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Who has systemic lupus erythematosus on PatientsLikeMe?

  • 12 new patients joined this month
  • 35932 say systemic lupus erythematosus is their primary condition

Age
Age Proportion # of patients
<20 107
20s 1336
30s 4658
40s 10069
50s 10578
60s 5494
70+ 1235
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2112
20-29 years 2553
30-39 years 2727
40-49 years 1702
50-59 years 579
60-69 years 113
70+ years 30

Distribution of sex

Sex
Sex Proportion # of patients
Male 1196
Female 32755

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 12558
Not Diagnosed 533

These charts show data from systemic lupus erythematosus patients who have completed their condition history
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