Systemic lupus erythematosus

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What is systemic lupus erythematosus?

Systemic lupus erythematosus is a chronic autoimmune disorder primarily involving connective tissue. It affects multiple systems including the skin, joints, kidneys, lungs, heart, and the peripheral blood cells. Treatments vary according to the area affected and may include drugs or supportive care.

Common symptoms reported by people with systemic lupus erythematosus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
493
Tried for
systemic lupus erythematosus (491) fatigue (2)
5 more
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
342
Tried for
systemic lupus erythematosus (340) joint pain (4)
4 more
Treatment name(s)

(Trexall)
Type
Prescription Drug
How many have tried
144
Tried for
systemic lupus erythematosus (142) joint pain (2)
1 more
Treatment name(s)

(Benlysta)
Type
Prescription Drug
How many have tried
98
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
85
Tried for
systemic lupus erythematosus (85) pain (1)
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
83
Tried for
systemic lupus erythematosus (83) pain (1)
Treatment name(s)

(Naproxen Prescription)
Type
Over the Counter Drug
How many have tried
49
Tried for
systemic lupus erythematosus (38) pain (10)
1 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
46
Tried for
pain (39) muscle pain (14)
4 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
40
Tried for
pain (34) systemic lupus erythematosus (7)
1 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
27
Tried for
pain (22) systemic lupus erythematosus (6)
2 more

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for systemic lupus erythematosus (226 evaluations)
Side effects
nausea diarrhea 83 more
Total evaluations
230
Tried for
systemic lupus erythematosus (491) fatigue (2)
5 more
Treatment name(s)

(Deltasone)
Perceived effectiveness
for systemic lupus erythematosus (139 evaluations)
Side effects
weight gain mood swings 99 more
Total evaluations
147
Tried for
systemic lupus erythematosus (340) joint pain (4)
4 more
Treatment name(s)

(Trexall)
Perceived effectiveness
for systemic lupus erythematosus (75 evaluations)
Side effects
nausea fatigue 54 more
Total evaluations
79
Tried for
systemic lupus erythematosus (142) joint pain (2)
1 more
Treatment name(s)

(Benlysta)
Perceived effectiveness
for systemic lupus erythematosus (61 evaluations)
Side effects
nausea fatigue 43 more
Total evaluations
61
Treatment name(s)

(Imuran)
Perceived effectiveness
for systemic lupus erythematosus (37 evaluations)
Side effects
nausea elevated liver enzymes 15 more
Total evaluations
39
Tried for
systemic lupus erythematosus (85) pain (1)
Treatment name(s)

(CellCept)
Perceived effectiveness
for systemic lupus erythematosus (29 evaluations)
Side effects
nausea diarrhea 24 more
Total evaluations
32
Tried for
systemic lupus erythematosus (83) pain (1)
Treatment name(s)

(Naproxen Prescription)
Perceived effectiveness
for systemic lupus erythematosus (26 evaluations)
Side effects
nausea abdominal pain 4 more
Total evaluations
32
Tried for
systemic lupus erythematosus (38) pain (10)
1 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (19 evaluations)
Side effects
constipation drowsiness 6 more
Total evaluations
32
Tried for
pain (39) muscle pain (14)
4 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (10 evaluations)
Side effects
dizziness drowsiness 3 more
Total evaluations
13
Tried for
pain (34) systemic lupus erythematosus (7)
1 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for pain (17 evaluations)
Side effects
nausea stomach pain 5 more
Total evaluations
22
Tried for
pain (22) systemic lupus erythematosus (6)
2 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Who has systemic lupus erythematosus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 127
20s 1520
30s 4984
40s 10385
50s 9966
60s 4814
70+ 977
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2108
20-29 years 2550
30-39 years 2723
40-49 years 1695
50-59 years 578
60-69 years 112
70+ years 30

Distribution of sex

Sex
Sex Proportion # of patients
Male 1180
Female 32051

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 12528
Not Diagnosed 534

These charts show data from systemic lupus erythematosus patients who have completed their condition history
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