Systemic lupus erythematosus

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

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What is systemic lupus erythematosus?

Systemic lupus erythematosus is a chronic autoimmune disorder primarily involving connective tissue. It affects multiple systems including the skin, joints, kidneys, lungs, heart, and the peripheral blood cells. Treatments vary according to the area affected and may include drugs or supportive care.

Common symptoms reported by people with systemic lupus erythematosus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for systemic lupus erythematosus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
22579
Treatment name(s)

(Prednisone Intensol)
Type
Prescription Drug
How many have tried
21675
Treatment name(s)

(Apo-Methotrexate)
Type
Prescription Drug
How many have tried
6520
Treatment name(s)

(Benlysta)
Type
Prescription Drug
How many have tried
2416
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
2578
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
2404
Treatment name(s)

(Solu-Medrol Infusion)
Type
Prescription Drug
How many have tried
1508
Treatment name(s)

(Arava)
Type
Prescription Drug
How many have tried
187
Treatment name(s)

(Rituxan)
Type
Prescription Drug
How many have tried
92
Treatment name(s)

(Cytoxan)
Type
Prescription Drug
How many have tried
920

Data from patients with systemic lupus erythematosus, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for systemic lupus erythematosus (160 evaluations)
Side effects
nausea diarrhea 70 more
Total evaluations
163
Treatment name(s)

(Prednisone Intensol)
Perceived effectiveness
for systemic lupus erythematosus (103 evaluations)
Side effects
weight gain jittery feeling 73 more
Total evaluations
109
Treatment name(s)

(Apo-Methotrexate)
Perceived effectiveness
for systemic lupus erythematosus (55 evaluations)
Side effects
nausea fatigue 44 more
Total evaluations
57
Treatment name(s)

(Benlysta)
Perceived effectiveness
for systemic lupus erythematosus (43 evaluations)
Side effects
nausea fatigue 30 more
Total evaluations
43
Treatment name(s)

(Imuran)
Perceived effectiveness
for systemic lupus erythematosus (26 evaluations)
Side effects
nausea elevated liver enzymes 9 more
Total evaluations
27
Treatment name(s)

(CellCept)
Perceived effectiveness
for systemic lupus erythematosus (22 evaluations)
Side effects
nausea upset stomach 16 more
Total evaluations
25
Treatment name(s)

(Solu-Medrol Infusion)
Perceived effectiveness
for systemic lupus erythematosus (3 evaluations)
Side effects
nausea
Total evaluations
3
Treatment name(s)

(Arava)
Perceived effectiveness
for systemic lupus erythematosus (7 evaluations)
Side effects
diarrhea hair loss 4 more
Total evaluations
7
Treatment name(s)

(Rituxan)
Perceived effectiveness
for systemic lupus erythematosus (1 evaluation)
Side effects
nausea
Total evaluations
2
Treatment name(s)

(Cytoxan)
Perceived effectiveness
for systemic lupus erythematosus (3 evaluations)
Side effects
sleepiness
Total evaluations
3
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with systemic lupus erythematosus, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has systemic lupus erythematosus on PatientsLikeMe?

  • 26 new patients joined this month
  • 36019 say systemic lupus erythematosus is their primary condition

Age
Age Proportion # of patients
<20 96
20s 1306
30s 4517
40s 9962
50s 10698
60s 5647
70+ 1308
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2113
20-29 years 2554
30-39 years 2727
40-49 years 1703
50-59 years 578
60-69 years 113
70+ years 30

Distribution of sex

Sex
Sex Proportion # of patients
Male 1201
Female 32809

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 12562
Not Diagnosed 533

These charts show data from systemic lupus erythematosus patients who have completed their condition history
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