Systemic lupus erythematosus

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is systemic lupus erythematosus?

Systemic lupus erythematosus is a chronic autoimmune disorder primarily involving connective tissue. It affects multiple systems including the skin, joints, kidneys, lungs, heart, and the peripheral blood cells. Treatments vary according to the area affected and may include drugs or supportive care.

Common symptoms reported by people with systemic lupus erythematosus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for systemic lupus erythematosus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
22629
Treatment name(s)

(Prednisone Intensol)
Type
Prescription Drug
How many have tried
21703
Treatment name(s)

(Apo-Methotrexate)
Type
Prescription Drug
How many have tried
6530
Treatment name(s)

(Benlysta)
Type
Prescription Drug
How many have tried
2423
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
2582
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
2412
Treatment name(s)

(Solu-Medrol Infusion)
Type
Prescription Drug
How many have tried
1518
Treatment name(s)

(Arava)
Type
Prescription Drug
How many have tried
188
Treatment name(s)

(Cytoxan)
Type
Prescription Drug
How many have tried
918
Treatment name(s)

(Rituxan)
Type
Prescription Drug
How many have tried
94

Data from patients with systemic lupus erythematosus, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for systemic lupus erythematosus (31 evaluations)
Side effects
diarrhea nausea 25 more
Total evaluations
32
Treatment name(s)

(Prednisone Intensol)
Perceived effectiveness
for systemic lupus erythematosus (22 evaluations)
Side effects
weight gain jittery feeling 16 more
Total evaluations
24
Treatment name(s)

(Apo-Methotrexate)
Perceived effectiveness
for systemic lupus erythematosus (13 evaluations)
Side effects
nausea body hair loss 13 more
Total evaluations
13
Treatment name(s)

(Benlysta)
Perceived effectiveness
for systemic lupus erythematosus (18 evaluations)
Side effects
nausea fatigue 8 more
Total evaluations
18
Treatment name(s)

(Imuran)
Perceived effectiveness
for systemic lupus erythematosus (8 evaluations)
Side effects
vomiting low white blood cell count (leukopenia) 1 more
Total evaluations
8
Treatment name(s)

(CellCept)
Perceived effectiveness
for systemic lupus erythematosus (5 evaluations)
Side effects
diarrhea muscle fatigue 3 more
Total evaluations
5
Treatment name(s)

(Solu-Medrol Infusion)
Perceived effectiveness
for systemic lupus erythematosus (1 evaluation)
Side effects
Total evaluations
1
Treatment name(s)

(Arava)
Perceived effectiveness
for systemic lupus erythematosus (3 evaluations)
Side effects
hair loss itchy skin
Total evaluations
3
Treatment name(s)

(Cytoxan)
Perceived effectiveness
for systemic lupus erythematosus (3 evaluations)
Side effects
sleepiness
Total evaluations
3
Treatment name(s)

(Rituxan)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with systemic lupus erythematosus, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has systemic lupus erythematosus on PatientsLikeMe?

  • 3 new patients joined this month
  • 36147 say systemic lupus erythematosus is their primary condition

Age
Age Proportion # of patients
<20 61
20s 920
30s 3726
40s 8931
50s 11378
60s 6695
70+ 1940
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2114
20-29 years 2554
30-39 years 2724
40-49 years 1707
50-59 years 581
60-69 years 113
70+ years 30

Distribution of sex

Sex
Sex Proportion # of patients
Male 1200
Female 32927

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 12557
Not Diagnosed 533

These charts show data from systemic lupus erythematosus patients who have completed their condition history
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