Systemic lupus erythematosus

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

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What is systemic lupus erythematosus?

Systemic lupus erythematosus is a chronic autoimmune disorder primarily involving connective tissue. It affects multiple systems including the skin, joints, kidneys, lungs, heart, and the peripheral blood cells. Treatments vary according to the area affected and may include drugs or supportive care.

Common symptoms reported by people with systemic lupus erythematosus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for systemic lupus erythematosus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
22559
Treatment name(s)

(Prednisone Intensol)
Type
Prescription Drug
How many have tried
21665
Treatment name(s)

(Apo-Methotrexate)
Type
Prescription Drug
How many have tried
6515
Treatment name(s)

(Benlysta)
Type
Prescription Drug
How many have tried
2413
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
2573
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
2400
Treatment name(s)

(Solu-Medrol Infusion)
Type
Prescription Drug
How many have tried
1503
Treatment name(s)

(Arava)
Type
Prescription Drug
How many have tried
186
Treatment name(s)

(Rituxan)
Type
Prescription Drug
How many have tried
92
Treatment name(s)

(Cytoxan)
Type
Prescription Drug
How many have tried
916

Data from patients with systemic lupus erythematosus, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for systemic lupus erythematosus (167 evaluations)
Side effects
nausea diarrhea 71 more
Total evaluations
170
Treatment name(s)

(Prednisone Intensol)
Perceived effectiveness
for systemic lupus erythematosus (110 evaluations)
Side effects
weight gain mood swings 76 more
Total evaluations
116
Treatment name(s)

(Apo-Methotrexate)
Perceived effectiveness
for systemic lupus erythematosus (56 evaluations)
Side effects
nausea fatigue 46 more
Total evaluations
59
Treatment name(s)

(Benlysta)
Perceived effectiveness
for systemic lupus erythematosus (46 evaluations)
Side effects
nausea fatigue 36 more
Total evaluations
46
Treatment name(s)

(Imuran)
Perceived effectiveness
for systemic lupus erythematosus (27 evaluations)
Side effects
nausea elevated liver enzymes 11 more
Total evaluations
28
Treatment name(s)

(CellCept)
Perceived effectiveness
for systemic lupus erythematosus (23 evaluations)
Side effects
nausea diarrhea 17 more
Total evaluations
26
Treatment name(s)

(Solu-Medrol Infusion)
Perceived effectiveness
for systemic lupus erythematosus (3 evaluations)
Side effects
nausea
Total evaluations
3
Treatment name(s)

(Arava)
Perceived effectiveness
for systemic lupus erythematosus (7 evaluations)
Side effects
diarrhea hair loss 4 more
Total evaluations
7
Treatment name(s)

(Rituxan)
Perceived effectiveness
for systemic lupus erythematosus (1 evaluation)
Side effects
nausea
Total evaluations
2
Treatment name(s)

(Cytoxan)
Perceived effectiveness
for systemic lupus erythematosus (3 evaluations)
Side effects
sleepiness
Total evaluations
3
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with systemic lupus erythematosus, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has systemic lupus erythematosus on PatientsLikeMe?

  • 24 new patients joined this month
  • 35963 say systemic lupus erythematosus is their primary condition

Age
Age Proportion # of patients
<20 104
20s 1322
30s 4594
40s 10036
50s 10631
60s 5556
70+ 1257
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2112
20-29 years 2554
30-39 years 2727
40-49 years 1702
50-59 years 579
60-69 years 113
70+ years 30

Distribution of sex

Sex
Sex Proportion # of patients
Male 1196
Female 32778

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 12559
Not Diagnosed 533

These charts show data from systemic lupus erythematosus patients who have completed their condition history
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