Systemic lupus erythematosus

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

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What is systemic lupus erythematosus?

Systemic lupus erythematosus is a chronic autoimmune disorder primarily involving connective tissue. It affects multiple systems including the skin, joints, kidneys, lungs, heart, and the peripheral blood cells. Treatments vary according to the area affected and may include drugs or supportive care.

Common symptoms reported by people with systemic lupus erythematosus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for systemic lupus erythematosus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
22567
Treatment name(s)

(Prednisone Intensol)
Type
Prescription Drug
How many have tried
21668
Treatment name(s)

(Apo-Methotrexate)
Type
Prescription Drug
How many have tried
6518
Treatment name(s)

(Benlysta)
Type
Prescription Drug
How many have tried
2413
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
2575
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
2403
Treatment name(s)

(Solu-Medrol Infusion)
Type
Prescription Drug
How many have tried
1503
Treatment name(s)

(Arava)
Type
Prescription Drug
How many have tried
186
Treatment name(s)

(Rituxan)
Type
Prescription Drug
How many have tried
92
Treatment name(s)

(Cytoxan)
Type
Prescription Drug
How many have tried
919

Data from patients with systemic lupus erythematosus, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for systemic lupus erythematosus (162 evaluations)
Side effects
nausea diarrhea 71 more
Total evaluations
165
Treatment name(s)

(Prednisone Intensol)
Perceived effectiveness
for systemic lupus erythematosus (103 evaluations)
Side effects
weight gain jittery feeling 73 more
Total evaluations
109
Treatment name(s)

(Apo-Methotrexate)
Perceived effectiveness
for systemic lupus erythematosus (56 evaluations)
Side effects
nausea fatigue 45 more
Total evaluations
59
Treatment name(s)

(Benlysta)
Perceived effectiveness
for systemic lupus erythematosus (43 evaluations)
Side effects
nausea fatigue 33 more
Total evaluations
43
Treatment name(s)

(Imuran)
Perceived effectiveness
for systemic lupus erythematosus (26 evaluations)
Side effects
nausea elevated liver enzymes 9 more
Total evaluations
27
Treatment name(s)

(CellCept)
Perceived effectiveness
for systemic lupus erythematosus (22 evaluations)
Side effects
nausea upset stomach 16 more
Total evaluations
25
Treatment name(s)

(Solu-Medrol Infusion)
Perceived effectiveness
for systemic lupus erythematosus (3 evaluations)
Side effects
nausea
Total evaluations
3
Treatment name(s)

(Arava)
Perceived effectiveness
for systemic lupus erythematosus (7 evaluations)
Side effects
diarrhea hair loss 4 more
Total evaluations
7
Treatment name(s)

(Rituxan)
Perceived effectiveness
for systemic lupus erythematosus (1 evaluation)
Side effects
nausea
Total evaluations
2
Treatment name(s)

(Cytoxan)
Perceived effectiveness
for systemic lupus erythematosus (3 evaluations)
Side effects
sleepiness
Total evaluations
3
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with systemic lupus erythematosus, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has systemic lupus erythematosus on PatientsLikeMe?

  • 32 new patients joined this month
  • 35988 say systemic lupus erythematosus is their primary condition

Age
Age Proportion # of patients
<20 100
20s 1309
30s 4551
40s 10002
50s 10668
60s 5603
70+ 1278
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2112
20-29 years 2554
30-39 years 2727
40-49 years 1702
50-59 years 578
60-69 years 113
70+ years 30

Distribution of sex

Sex
Sex Proportion # of patients
Male 1198
Female 32788

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 12558
Not Diagnosed 533

These charts show data from systemic lupus erythematosus patients who have completed their condition history
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