Systemic lupus erythematosus

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

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What is systemic lupus erythematosus?

Systemic lupus erythematosus is a chronic autoimmune disorder primarily involving connective tissue. It affects multiple systems including the skin, joints, kidneys, lungs, heart, and the peripheral blood cells. Treatments vary according to the area affected and may include drugs or supportive care.

Common symptoms reported by people with systemic lupus erythematosus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for systemic lupus erythematosus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
22605
Treatment name(s)

(Prednisone Intensol)
Type
Prescription Drug
How many have tried
21687
Treatment name(s)

(Apo-Methotrexate)
Type
Prescription Drug
How many have tried
6520
Treatment name(s)

(Benlysta)
Type
Prescription Drug
How many have tried
2421
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
2580
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
2409
Treatment name(s)

(Solu-Medrol Infusion)
Type
Prescription Drug
How many have tried
1512
Treatment name(s)

(Arava)
Type
Prescription Drug
How many have tried
186
Treatment name(s)

(Cytoxan)
Type
Prescription Drug
How many have tried
918
Treatment name(s)

(Rituxan)
Type
Prescription Drug
How many have tried
94

Data from patients with systemic lupus erythematosus, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for systemic lupus erythematosus (66 evaluations)
Side effects
nausea blurry vision 43 more
Total evaluations
67
Treatment name(s)

(Prednisone Intensol)
Perceived effectiveness
for systemic lupus erythematosus (41 evaluations)
Side effects
weight gain nausea 40 more
Total evaluations
44
Treatment name(s)

(Apo-Methotrexate)
Perceived effectiveness
for systemic lupus erythematosus (20 evaluations)
Side effects
nausea headaches 21 more
Total evaluations
20
Treatment name(s)

(Benlysta)
Perceived effectiveness
for systemic lupus erythematosus (27 evaluations)
Side effects
nausea diarrhea 16 more
Total evaluations
27
Treatment name(s)

(Imuran)
Perceived effectiveness
for systemic lupus erythematosus (15 evaluations)
Side effects
elevated liver enzymes nausea 4 more
Total evaluations
15
Treatment name(s)

(CellCept)
Perceived effectiveness
for systemic lupus erythematosus (12 evaluations)
Side effects
brain fog decreased appetite 10 more
Total evaluations
13
Treatment name(s)

(Solu-Medrol Infusion)
Perceived effectiveness
for systemic lupus erythematosus (2 evaluations)
Side effects
Total evaluations
2
Treatment name(s)

(Arava)
Perceived effectiveness
for systemic lupus erythematosus (3 evaluations)
Side effects
hair loss itchy skin
Total evaluations
3
Treatment name(s)

(Cytoxan)
Perceived effectiveness
for systemic lupus erythematosus (3 evaluations)
Side effects
sleepiness
Total evaluations
3
Treatment name(s)

(Rituxan)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with systemic lupus erythematosus, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has systemic lupus erythematosus on PatientsLikeMe?

  • 8 new patients joined this month
  • 36112 say systemic lupus erythematosus is their primary condition

Age
Age Proportion # of patients
<20 76
20s 1082
30s 4053
40s 9370
50s 11174
60s 6188
70+ 1657
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2112
20-29 years 2554
30-39 years 2723
40-49 years 1707
50-59 years 581
60-69 years 113
70+ years 30

Distribution of sex

Sex
Sex Proportion # of patients
Male 1197
Female 32878

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 12555
Not Diagnosed 532

These charts show data from systemic lupus erythematosus patients who have completed their condition history
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