Systemic lupus erythematosus

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What is systemic lupus erythematosus?

Systemic lupus erythematosus is a chronic autoimmune disorder primarily involving connective tissue. It affects multiple systems including the skin, joints, kidneys, lungs, heart, and the peripheral blood cells. Treatments vary according to the area affected and may include drugs or supportive care.

Common symptoms reported by people with systemic lupus erythematosus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
456
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
328
Tried for
systemic lupus erythematosus (326) joint pain (4)
5 more
Treatment name(s)

(Trexall)
Type
Prescription Drug
How many have tried
141
Tried for
systemic lupus erythematosus (139) joint pain (2)
1 more
Treatment name(s)

(Benlysta)
Type
Prescription Drug
How many have tried
97
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
81
Tried for
systemic lupus erythematosus (81) pain (1)
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
72
Tried for
systemic lupus erythematosus (72) pain (1)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
43
Tried for
pain (36) muscle pain (13)
4 more
Treatment name(s)

(Naproxen Prescription)
Type
Over the Counter Drug
How many have tried
41
Tried for
systemic lupus erythematosus (30) pain (10)
1 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
38
Tried for
pain (33) systemic lupus erythematosus (6)
2 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
25
Tried for
pain (20) systemic lupus erythematosus (5)
2 more

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for systemic lupus erythematosus (203 evaluations)
Side effects
nausea diarrhea 81 more
Total evaluations
207
Treatment name(s)

(Deltasone)
Perceived effectiveness
for systemic lupus erythematosus (134 evaluations)
Side effects
weight gain constant hunger 94 more
Total evaluations
142
Tried for
systemic lupus erythematosus (326) joint pain (4)
5 more
Treatment name(s)

(Trexall)
Perceived effectiveness
for systemic lupus erythematosus (65 evaluations)
Side effects
nausea fatigue 52 more
Total evaluations
69
Tried for
systemic lupus erythematosus (139) joint pain (2)
1 more
Treatment name(s)

(Benlysta)
Perceived effectiveness
for systemic lupus erythematosus (60 evaluations)
Side effects
nausea fatigue 41 more
Total evaluations
60
Treatment name(s)

(Imuran)
Perceived effectiveness
for systemic lupus erythematosus (35 evaluations)
Side effects
nausea elevated liver enzymes 15 more
Total evaluations
37
Tried for
systemic lupus erythematosus (81) pain (1)
Treatment name(s)

(CellCept)
Perceived effectiveness
for systemic lupus erythematosus (28 evaluations)
Side effects
nausea diarrhea 23 more
Total evaluations
31
Tried for
systemic lupus erythematosus (72) pain (1)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (15 evaluations)
Side effects
constipation drowsiness 6 more
Total evaluations
29
Tried for
pain (36) muscle pain (13)
4 more
Treatment name(s)

(Naproxen Prescription)
Perceived effectiveness
for systemic lupus erythematosus (25 evaluations)
Side effects
nausea abdominal pain 4 more
Total evaluations
31
Tried for
systemic lupus erythematosus (30) pain (10)
1 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (10 evaluations)
Side effects
dizziness drowsiness 3 more
Total evaluations
13
Tried for
pain (33) systemic lupus erythematosus (6)
2 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for pain (15 evaluations)
Side effects
nausea drowsiness 4 more
Total evaluations
18
Tried for
pain (20) systemic lupus erythematosus (5)
2 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Who has systemic lupus erythematosus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 126
20s 1455
30s 4973
40s 10451
50s 10271
60s 5077
70+ 1050
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2111
20-29 years 2552
30-39 years 2727
40-49 years 1702
50-59 years 579
60-69 years 112
70+ years 30

Distribution of sex

Sex
Sex Proportion # of patients
Male 1188
Female 32686

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 12553
Not Diagnosed 534

These charts show data from systemic lupus erythematosus patients who have completed their condition history
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