Systemic lupus erythematosus

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What is systemic lupus erythematosus?

Systemic lupus erythematosus is a chronic autoimmune disorder primarily involving connective tissue. It affects multiple systems including the skin, joints, kidneys, lungs, heart, and the peripheral blood cells. Treatments vary according to the area affected and may include drugs or supportive care.

Common symptoms reported by people with systemic lupus erythematosus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
474
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
334
Tried for
systemic lupus erythematosus (332) joint pain (3)
4 more
Treatment name(s)

(Trexall)
Type
Prescription Drug
How many have tried
140
Tried for
systemic lupus erythematosus (138) joint pain (2)
1 more
Treatment name(s)

(Benlysta)
Type
Prescription Drug
How many have tried
96
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
85
Tried for
systemic lupus erythematosus (85) pain (1)
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
78
Tried for
systemic lupus erythematosus (78) pain (1)
Treatment name(s)

(Naproxen Prescription)
Type
Over the Counter Drug
How many have tried
46
Tried for
systemic lupus erythematosus (35) pain (10)
1 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
45
Tried for
pain (38) muscle pain (14)
4 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
39
Tried for
pain (34) systemic lupus erythematosus (6)
1 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
26
Tried for
pain (21) systemic lupus erythematosus (5)
2 more

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with systemic lupus erythematosus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for systemic lupus erythematosus (218 evaluations)
Side effects
nausea diarrhea 82 more
Total evaluations
222
Treatment name(s)

(Deltasone)
Perceived effectiveness
for systemic lupus erythematosus (138 evaluations)
Side effects
weight gain mood swings 99 more
Total evaluations
146
Tried for
systemic lupus erythematosus (332) joint pain (3)
4 more
Treatment name(s)

(Trexall)
Perceived effectiveness
for systemic lupus erythematosus (64 evaluations)
Side effects
nausea fatigue 52 more
Total evaluations
68
Tried for
systemic lupus erythematosus (138) joint pain (2)
1 more
Treatment name(s)

(Benlysta)
Perceived effectiveness
for systemic lupus erythematosus (59 evaluations)
Side effects
nausea fatigue 40 more
Total evaluations
59
Treatment name(s)

(Imuran)
Perceived effectiveness
for systemic lupus erythematosus (37 evaluations)
Side effects
nausea elevated liver enzymes 15 more
Total evaluations
39
Tried for
systemic lupus erythematosus (85) pain (1)
Treatment name(s)

(CellCept)
Perceived effectiveness
for systemic lupus erythematosus (28 evaluations)
Side effects
nausea diarrhea 23 more
Total evaluations
31
Tried for
systemic lupus erythematosus (78) pain (1)
Treatment name(s)

(Naproxen Prescription)
Perceived effectiveness
for systemic lupus erythematosus (26 evaluations)
Side effects
nausea abdominal pain 4 more
Total evaluations
32
Tried for
systemic lupus erythematosus (35) pain (10)
1 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (17 evaluations)
Side effects
constipation drowsiness 6 more
Total evaluations
31
Tried for
pain (38) muscle pain (14)
4 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (10 evaluations)
Side effects
dizziness drowsiness 3 more
Total evaluations
13
Tried for
pain (34) systemic lupus erythematosus (6)
1 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for pain (15 evaluations)
Side effects
nausea drowsiness 4 more
Total evaluations
18
Tried for
pain (21) systemic lupus erythematosus (5)
2 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with systemic lupus erythematosus, who reported starting treatments within the last 5 years.
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Who has systemic lupus erythematosus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 121
20s 1472
30s 4955
40s 10336
50s 10004
60s 4902
70+ 1007
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2108
20-29 years 2552
30-39 years 2725
40-49 years 1694
50-59 years 578
60-69 years 112
70+ years 30

Distribution of sex

Sex
Sex Proportion # of patients
Male 1183
Female 32074

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 12534
Not Diagnosed 534

These charts show data from systemic lupus erythematosus patients who have completed their condition history
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