What is Topamax?

Category: Prescription Drugs

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Generic name: Topiramate

Topamax®, a brand name for topiramate, is an anti-convulsant and is used with other medications to treat certain types of seizures in patients with epilepsy or Lennox-Gastaut syndrome. It is also used to prevent migraine or cluster headaches.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Migraine headaches 738 270
Epilepsy 287 158
Headaches 115 55
Fibromyalgia 83 58
Pain 54 17
Bipolar disorder 52 28

Show all 140 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 128
Moderate 189
Mild 165
None 212

Commonly reported side effects and conditions associated with Topamax

Side effect Patients
Weight loss 59
Hands tingling 42
Feet tingling 38
Brain fog 37
Decreased appetite 27
Word fishing 24

Show all 214 reported side effects

Dosages

Based on patients currently taking Topamax

Dosage Patients
100 mg daily 23
100 mg twice daily 17
25 mg twice daily 15
50 mg twice daily 13
200 mg daily 13
25 mg daily 12
50 mg daily 10
200 mg twice daily 9
75 mg twice daily 5
300 mg daily 5

See all 28 dosages

Why patients stopped taking Topamax

Multiple reasons could be selected

Reason Patients
Side effects too severe 231
Did not seem to work 138
Doctor's advice 113
Other 54
Expense 25
Personal research 18
Course of treatment ended 17
Change in health plan coverage 7
See all 427 patients who've stopped taking Topamax

Duration

Currently taking Topamax

Duration Patients
Less than 1 month 2
1 - 6 months 9
6 months - 1 year 6
1 - 2 years 14
2 - 5 years 45
5 - 10 years 44
10 years or more 35

Stopped taking Topamax

Duration Patients
Less than 1 month 71
1 - 6 months 116
6 months - 1 year 64
1 - 2 years 52
2 - 5 years 79
5 - 10 years 36
10 years or more 10
Adherence
Adherence Evaluations
Always 589
Usually 69
Sometimes 15
Never taken as prescribed 21
Burden
Burden Evaluations
Very hard to take 28
Somewhat hard to take 56
A little hard to take 89
Not at all hard to take 521
Cost per month
Cost per month Evaluations
$200+ 12
$100-199 6
$50-99 19
$25-49 59
< $25 321
Not specified 277

What people switch to and from

Patients started taking Topamax after stopping:

Treatment Patients
Sumatriptan (Imitrex) 8
Divalproex sodium (Depakote) 7
Gabapentin (Neurontin) 6
Lamotrigine (Lamictal) 4
Propranolol (Inderal) 4

Show all 36 treatments patients report switching from

Patients stopped taking Topamax and switched to:

Treatment Patients
Gabapentin (Neurontin) 11
Lamotrigine (Lamictal) 6
Botulinum Toxin Type A (Botox) 5
Divalproex sodium (Depakote) 5
Amitriptyline (Elavil) 3

Show all 36 treatments patients report switching to

Last updated:

75 patient evaluations for Topamax

Sep 19, 2018 (Started Jan 01, 2004)

  • Effectiveness
    Can't tell (for epilepsy)
  • Side effects
    Mild (word fishing, brain fog, tremor in hands)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 75 mg Twice daily
Advice & Tips: the side effects may be poor balance. Drink with plenty of water. That is a must.
Side effects: word fishing, tremor in hands, brain fog

Nov 23, 2009 (Started Jan 01, 2004)

  • Effectiveness
    Slight (for epilepsy)
  • Side effects
    Moderate (word fishing, brain fog, tremor in hands)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 75 mg Twice daily
Side effects: word fishing, tremor in hands, brain fog

  • 0 helpful marks

May 12, 2018 (Started May 26, 2017)

  • Effectiveness
    Moderate (for post-traumatic stress disorder)
  • Effectiveness
    Moderate (for moodiness)
  • Effectiveness
    Moderate (for borderline personality disorder)
  • Side effects
    Mild (dry mouth, feeling hot/overheating)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Cost: < $25 monthly

May 10, 2018 (Started May 26, 2017)

  • Effectiveness
    Moderate (for post-traumatic stress disorder)
  • Effectiveness
    Moderate (for moodiness)
  • Effectiveness
    Moderate (for borderline personality disorder)
  • Side effects
    Moderate (dry mouth, feeling hot/overheating)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: Weight loss is an awesome side effect... Not extreme but hell... I shed amor 10 to 15 in the first 2 to 3 months.. And ive since then pretty much maintained by normal weight...
Cost: < $25 monthly

Jun 4, 2017 (Started May 26, 2017)

  • Effectiveness
    Slight (for post-traumatic stress disorder)
  • Effectiveness
    Slight (for moodiness)
  • Effectiveness
    Slight (for borderline personality disorder)
  • Side effects
    Mild (dry mouth, feeling hot/overheating)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Advice & Tips: No weight gain so far
Cost: < $25 monthly

  • 0 helpful marks

Sep 19, 2017 (Started Jul 09, 2012)

  • Effectiveness
    None (for post-traumatic stress disorder)
  • Effectiveness
    None (for migraine headaches)
  • Side effects
    None
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Cost: < $25 monthly

Jul 1, 2015 (Started Jul 09, 2012)

  • Effectiveness
    None (for post-traumatic stress disorder)
  • Effectiveness
    None (for migraine headaches)
  • Side effects
    None
  • Adherence
    Sometimes
  • Burden
    A little hard to take
Dosage: 25 mg Daily
Cost: < $25 monthly

Aug 29, 2010 (Started Jul 09, 2012)

  • Effectiveness
    Moderate (for post-traumatic stress disorder)
  • Side effects
    Mild
  • Adherence
    Sometimes
  • Burden
    Somewhat hard to take
Advice & Tips: 1. I feel groggy for about 12+ hours after taking this medication. I usually have to resort to taking Caffeine pills as a small "pick-me-up". 2. No unexpected benefits 3. Too sleepy to function to full capability.
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 75 patient evaluations for Topamax