Cluster headaches

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What is cluster headaches?

A primary headache disorder characterized by severe one-sided pain in and around the eyes and/or temples. They can last from 15 minutes to many hours occurring 1 to 8 times a day. They are often associated with conjunctivitis, teary eyes, nasal congestion, facial sweating, and eyelid edema.

Common symptoms reported by people with cluster headaches

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with cluster headaches

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Imitrex)
Type
Prescription Drug
How many have tried
14
Tried for
cluster headaches (14)
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
13
Tried for
cluster headaches (13)
Treatment name(s)

(Verapamil ER)
Type
Prescription Drug
How many have tried
8
Tried for
cluster headaches (8)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
7
Tried for
pain (5) cluster headaches (2)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
6
Tried for
anxious mood (6)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
6
Tried for
anxious mood (5) depressed mood (5)
Treatment name(s)
Type
Prescription Drug
How many have tried
6
Tried for
cluster headaches (6)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
5
Tried for
depressed mood (5)
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
5
Tried for
depressed mood (5)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
5
Tried for
pain (5)

Data from patients with cluster headaches, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with cluster headaches

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Imitrex)
Perceived effectiveness
for cluster headaches (7 evaluations)
Side effects
dizziness upon standing fatigue 6 more
Total evaluations
7
Tried for
cluster headaches (14)
Treatment name(s)

(Topamax)
Perceived effectiveness
for cluster headaches (7 evaluations)
Side effects
confusion depressed mood 12 more
Total evaluations
7
Tried for
cluster headaches (13)
Treatment name(s)

(Verapamil ER)
Perceived effectiveness
for cluster headaches (3 evaluations)
Side effects
constipation
Total evaluations
3
Tried for
cluster headaches (8)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (2 evaluations)
Side effects
fatigue burning sensation 2 more
Total evaluations
3
Tried for
pain (5) cluster headaches (2)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
drowsiness
Total evaluations
3
Tried for
anxious mood (6)
Treatment name(s)

(Lexapro)
Perceived effectiveness
for anxious mood (4 evaluations)
Side effects
drowsiness ejaculation delayed 7 more
Total evaluations
5
Tried for
anxious mood (5) depressed mood (5)
Treatment name(s)
Perceived effectiveness
for cluster headaches (4 evaluations)
Side effects
Total evaluations
4
Tried for
cluster headaches (6)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (4 evaluations)
Side effects
anxiety attacks forgetting words
Total evaluations
4
Tried for
depressed mood (5)
Treatment name(s)

(Zoloft)
Perceived effectiveness
for depressed mood (3 evaluations)
Side effects
dizziness migraine headaches 2 more
Total evaluations
3
Tried for
depressed mood (5)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (30 evaluations)
Side effects
drowsiness sleepiness
Total evaluations
30
Tried for
pain (5)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with cluster headaches, who reported starting treatments within the last 5 years.
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Who has cluster headaches on PatientsLikeMe?

  • 0 new patients joined this month
  • 653 say cluster headaches is their primary condition

Age
Age Proportion # of patients
<20 4
20s 88
30s 265
40s 417
50s 350
60s 154
70+ 32
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 203
20-29 years 186
30-39 years 104
40-49 years 83
50-59 years 25
60-69 years 1
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 411
Female 907

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 639
Not Diagnosed 101

These charts show data from cluster headaches patients who have completed their condition history
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