Migraine

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is migraine?

Migraine is a neural condition characterized by recurrent headache and may be accompanied by nausea, noise sensitivity, and photophobia, sometimes preceded by sensory disturbances (aura).  Triggers of migraine episodes vary widely and may include allergic reactions, diet, alcohol, and bright lights.

Common symptoms reported by people with migraine

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with migraine

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Imitrex)
Type
Prescription Drug
How many have tried
90
Tried for
migraine (62) migraine headaches (40)
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
89
Tried for
migraine headaches (78) migraine (11)
1 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
56
Tried for
pain (39) migraine (12)
3 more
Treatment name(s)

(Inderal)
Type
Prescription Drug
How many have tried
43
Tried for
migraine headaches (34) anxious mood (11)
1 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
39
Tried for
pain (14) migraine (13)
2 more
Treatment name(s)

(Maxalt)
Type
Prescription Drug
How many have tried
37
Tried for
migraine (23) migraine headaches (23)
Treatment name(s)

(Ibuprofen Prescription)
Type
Over the Counter Drug
How many have tried
36
Tried for
pain (24) migraine (18)
1 more
Treatment name(s)

(Voltaren)
Type
Prescription Drug
How many have tried
34
Tried for
pain (22) migraine (17)
1 more
Treatment name(s)

(Botox)
Type
Prescription Drug
How many have tried
33
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
32
Tried for
depressed mood (28) anxious mood (5)
3 more

Data from patients with migraine, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with migraine

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Imitrex)
Perceived effectiveness
for migraine (32 evaluations)
Side effects
fatigue nausea 37 more
Total evaluations
46
Tried for
migraine (62) migraine headaches (40)
Treatment name(s)

(Topamax)
Perceived effectiveness
for migraine headaches (58 evaluations)
Side effects
decreased appetite brain fog 70 more
Total evaluations
66
Tried for
migraine headaches (78) migraine (11)
1 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (23 evaluations)
Side effects
dizziness drowsiness 18 more
Total evaluations
31
Tried for
pain (39) migraine (12)
3 more
Treatment name(s)

(Inderal)
Perceived effectiveness
for migraine headaches (19 evaluations)
Side effects
fatigue anxious mood 19 more
Total evaluations
25
Tried for
migraine headaches (34) anxious mood (11)
1 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for pain (9 evaluations)
Side effects
constipation drowsiness 22 more
Total evaluations
27
Tried for
pain (14) migraine (13)
2 more
Treatment name(s)

(Maxalt)
Perceived effectiveness
for migraine (13 evaluations)
Side effects
nausea dizziness 10 more
Total evaluations
23
Tried for
migraine (23) migraine headaches (23)
Treatment name(s)

(Ibuprofen Prescription)
Perceived effectiveness
for pain (23 evaluations)
Side effects
acid reflux heat sensation in chest 3 more
Total evaluations
26
Tried for
pain (24) migraine (18)
1 more
Treatment name(s)

(Voltaren)
Perceived effectiveness
for pain (11 evaluations)
Side effects
dizziness rashes (redness, swelling) 1 more
Total evaluations
17
Tried for
pain (22) migraine (17)
1 more
Treatment name(s)

(Botox)
Perceived effectiveness
for migraine headaches (19 evaluations)
Side effects
injection site bruising pain 14 more
Total evaluations
19
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (35 evaluations)
Side effects
insomnia tiredness 19 more
Total evaluations
41
Tried for
depressed mood (28) anxious mood (5)
3 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with migraine, who reported starting treatments within the last 5 years.
Last updated:

Who has migraine on PatientsLikeMe?

  • 31 new patients joined this month
  • 3662 say migraine is their primary condition

Age
Age Proportion # of patients
<20 35
20s 686
30s 2151
40s 3493
50s 3260
60s 1533
70+ 294
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3212
20-29 years 1286
30-39 years 711
40-49 years 353
50-59 years 86
60-69 years 12
70+ years 3

Distribution of sex

Sex
Sex Proportion # of patients
Male 1185
Female 10321

Types
Condition Types Proportion # of patients
Chronic migraine (>15 migraines/month) 290
Complex confusional migraine 40
Complex migraine 99
Hemiplegic migraine 40
Menstrual migraine 100
Migraine with brainstem aura (basilar migraine) 82
Mixed tension migraine 132
Ocular migraine 90
Silent migraine 50
Vestibular migraine 38
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6714
Not Diagnosed 426

These charts show data from migraine patients who have completed their condition history
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