Migraine

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is migraine?

Migraine is a neural condition characterized by recurrent headache and may be accompanied by nausea, noise sensitivity, and photophobia, sometimes preceded by sensory disturbances (aura).  Triggers of migraine episodes vary widely and may include allergic reactions, diet, alcohol, and bright lights.

Common symptoms reported by people with migraine

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for migraine

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Aimovig)
Type
Prescription Drug
How many have tried
0
Tried for
migraine (27)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
881
Tried for
migraine (12)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1453
Tried for
migraine (11)
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
1021
Tried for
migraine (11)
Treatment name(s)

(Pamelor)
Type
Prescription Drug
How many have tried
313
Tried for
migraine (9)
Treatment name(s)

(Emgality)
Type
Prescription Drug
How many have tried
3
Tried for
migraine (7)
Treatment name(s)

(Inderal)
Type
Prescription Drug
How many have tried
512
Tried for
migraine (6)
Treatment name(s)

(Ajovy)
Type
Prescription Drug
How many have tried
0
Tried for
migraine (5)
Treatment name(s)

(Depakote)
Type
Prescription Drug
How many have tried
254
Tried for
migraine (4)
Treatment name(s)

(Atacand)
Type
Prescription Drug
How many have tried
18
Tried for
migraine (3)

Data from patients with migraine, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with migraine

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Aimovig)
Perceived effectiveness
for migraine (27 evaluations)
Side effects
constipation nausea 13 more
Total evaluations
28
Tried for
migraine (27)
Treatment name(s)

(Elavil)
Perceived effectiveness
for migraine (9 evaluations)
Side effects
weight gain chronic fatigue 10 more
Total evaluations
9
Tried for
migraine (12)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for migraine (5 evaluations)
Side effects
constipation dizziness 5 more
Total evaluations
5
Tried for
migraine (11)
Treatment name(s)

(Topamax)
Perceived effectiveness
for migraine (6 evaluations)
Side effects
brain fog carbonated drinks taste flat 9 more
Total evaluations
7
Tried for
migraine (11)
Treatment name(s)

(Pamelor)
Perceived effectiveness
for migraine (2 evaluations)
Side effects
brain fog dry skin 4 more
Total evaluations
2
Tried for
migraine (9)
Treatment name(s)

(Emgality)
Perceived effectiveness
for migraine (4 evaluations)
Side effects
injection site itching muscle pain 2 more
Total evaluations
4
Tried for
migraine (7)
Treatment name(s)

(Inderal)
Perceived effectiveness
for migraine (3 evaluations)
Side effects
heart rate low (bradycardia)
Total evaluations
3
Tried for
migraine (6)
Treatment name(s)

(Ajovy)
Perceived effectiveness
for migraine (3 evaluations)
Side effects
constipation migraine headaches
Total evaluations
3
Tried for
migraine (5)
Treatment name(s)

(Depakote)
Perceived effectiveness
for migraine (4 evaluations)
Side effects
fatigue itching 1 more
Total evaluations
4
Tried for
migraine (4)
Treatment name(s)

(Atacand)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
migraine (3)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with migraine, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has migraine on PatientsLikeMe?

  • 27 new patients joined this month
  • 3684 say migraine is their primary condition

Age
Age Proportion # of patients
<20 31
20s 662
30s 2126
40s 3488
50s 3312
60s 1573
70+ 311
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3216
20-29 years 1289
30-39 years 713
40-49 years 354
50-59 years 86
60-69 years 12
70+ years 3

Distribution of sex

Sex
Sex Proportion # of patients
Male 1195
Female 10366

Types
Condition Types Proportion # of patients
Chronic migraine (>15 migraines/month) 307
Complex confusional migraine 40
Complex migraine 106
Hemiplegic migraine 40
Menstrual migraine 107
Migraine with brainstem aura (basilar migraine) 86
Mixed tension migraine 140
Ocular migraine 93
Silent migraine 54
Vestibular migraine 42
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6729
Not Diagnosed 425

These charts show data from migraine patients who have completed their condition history
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