Migraine

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is migraine?

Migraine is a neural condition characterized by recurrent headache and may be accompanied by nausea, noise sensitivity, and photophobia, sometimes preceded by sensory disturbances (aura).  Triggers of migraine episodes vary widely and may include allergic reactions, diet, alcohol, and bright lights.

Common symptoms reported by people with migraine

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for migraine

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Aimovig)
Type
Prescription Drug
How many have tried
0
Tried for
migraine (28)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
924
Tried for
migraine (13)
Treatment name(s)

(Emgality)
Type
Prescription Drug
How many have tried
2
Tried for
migraine (11)
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
1065
Tried for
migraine (10)
Treatment name(s)

(Ajovy)
Type
Prescription Drug
How many have tried
0
Tried for
migraine (8)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1481
Tried for
migraine (6)
Treatment name(s)

(Pamelor)
Type
Prescription Drug
How many have tried
315
Tried for
migraine (6)
Treatment name(s)

(Inderal)
Type
Prescription Drug
How many have tried
547
Tried for
migraine (5)
Treatment name(s)

(Depakote)
Type
Prescription Drug
How many have tried
255
Tried for
migraine (3)
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
635
Tried for
migraine (3)

Data from patients with migraine, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with migraine

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Aimovig)
Perceived effectiveness
for migraine (28 evaluations)
Side effects
constipation nausea 13 more
Total evaluations
29
Tried for
migraine (28)
Treatment name(s)

(Elavil)
Perceived effectiveness
for migraine (9 evaluations)
Side effects
weight gain chronic fatigue 10 more
Total evaluations
9
Tried for
migraine (13)
Treatment name(s)

(Emgality)
Perceived effectiveness
for migraine (7 evaluations)
Side effects
injection site hives injection site itching 4 more
Total evaluations
7
Tried for
migraine (11)
Treatment name(s)

(Topamax)
Perceived effectiveness
for migraine (7 evaluations)
Side effects
carbonated drinks taste flat chronic fatigue 2 more
Total evaluations
7
Tried for
migraine (10)
Treatment name(s)

(Ajovy)
Perceived effectiveness
for migraine (5 evaluations)
Side effects
constipation injection site hives 1 more
Total evaluations
5
Tried for
migraine (8)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for migraine (3 evaluations)
Side effects
constipation drowsy in morning 1 more
Total evaluations
3
Tried for
migraine (6)
Treatment name(s)

(Pamelor)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
migraine (6)
Treatment name(s)

(Inderal)
Perceived effectiveness
for migraine (2 evaluations)
Side effects
heart rate low (bradycardia)
Total evaluations
2
Tried for
migraine (5)
Treatment name(s)

(Depakote)
Perceived effectiveness
for migraine (3 evaluations)
Side effects
fatigue itching 1 more
Total evaluations
3
Tried for
migraine (3)
Treatment name(s)

(Effexor XR)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
migraine (3)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with migraine, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has migraine on PatientsLikeMe?

  • 31 new patients joined this month
  • 3830 say migraine is their primary condition

Age
Age Proportion # of patients
<20 26
20s 495
30s 1866
40s 3390
50s 3588
60s 2033
70+ 491
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3245
20-29 years 1302
30-39 years 725
40-49 years 359
50-59 years 87
60-69 years 13
70+ years 3

Distribution of sex

Sex
Sex Proportion # of patients
Male 1261
Female 10692

Types
Condition Types Proportion # of patients
Chronic migraine (>15 migraines/month) 394
Complex confusional migraine 47
Complex migraine 135
Hemiplegic migraine 52
Menstrual migraine 137
Migraine with brainstem aura (basilar migraine) 111
Mixed tension migraine 184
Ocular migraine 121
Silent migraine 67
Vestibular migraine 57
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6785
Not Diagnosed 424

These charts show data from migraine patients who have completed their condition history
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