Migraine

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is migraine?

Migraine is a neural condition characterized by recurrent headache and may be accompanied by nausea, noise sensitivity, and photophobia, sometimes preceded by sensory disturbances (aura).  Triggers of migraine episodes vary widely and may include allergic reactions, diet, alcohol, and bright lights.

Common symptoms reported by people with migraine

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with migraine

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
142
Tried for
migraine headaches (131) migraine (13)
5 more
Treatment name(s)

(Imitrex)
Type
Prescription Drug
How many have tried
141
Tried for
migraine (107) migraine headaches (57)
3 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
85
Tried for
pain (65) migraine (16)
3 more
Treatment name(s)

(Ibuprofen Prescription)
Type
Over the Counter Drug
How many have tried
67
Tried for
migraine (47) pain (36)
1 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
65
Tried for
migraine headaches (24) migraine (21)
3 more
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
64
Tried for
migraine (40) pain (35)
1 more
Treatment name(s)

(Naproxen Prescription)
Type
Over the Counter Drug
How many have tried
63
Tried for
migraine (51) pain (15)
2 more
Treatment name(s)

(Maxalt)
Type
Prescription Drug
How many have tried
62
Tried for
migraine (47) migraine headaches (25)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
62
Tried for
pain (55) migraine headaches (7)
1 more
Treatment name(s)

(Inderal)
Type
Prescription Drug
How many have tried
59
Tried for
migraine headaches (51) anxious mood (12)
1 more

Data from patients with migraine, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with migraine

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Topamax)
Perceived effectiveness
for migraine headaches (94 evaluations)
Side effects
decreased appetite weight loss 97 more
Total evaluations
100
Tried for
migraine headaches (131) migraine (13)
5 more
Treatment name(s)

(Imitrex)
Perceived effectiveness
for migraine (49 evaluations)
Side effects
fatigue drowsiness 43 more
Total evaluations
67
Tried for
migraine (107) migraine headaches (57)
3 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (43 evaluations)
Side effects
weight gain drowsiness 30 more
Total evaluations
52
Tried for
pain (65) migraine (16)
3 more
Treatment name(s)

(Ibuprofen Prescription)
Perceived effectiveness
for migraine (26 evaluations)
Side effects
acid reflux chronic kidney disease 6 more
Total evaluations
42
Tried for
migraine (47) pain (36)
1 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for migraine headaches (18 evaluations)
Side effects
drowsiness dry mouth 21 more
Total evaluations
56
Tried for
migraine headaches (24) migraine (21)
3 more
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
for migraine (27 evaluations)
Side effects
abdominal pain acid reflux 15 more
Total evaluations
43
Tried for
migraine (40) pain (35)
1 more
Treatment name(s)

(Naproxen Prescription)
Perceived effectiveness
for migraine (14 evaluations)
Side effects
stomach pain allergic reaction 5 more
Total evaluations
26
Tried for
migraine (51) pain (15)
2 more
Treatment name(s)

(Maxalt)
Perceived effectiveness
for migraine (24 evaluations)
Side effects
nausea dizziness 17 more
Total evaluations
35
Tried for
migraine (47) migraine headaches (25)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (31 evaluations)
Side effects
nausea constipation 12 more
Total evaluations
35
Tried for
pain (55) migraine headaches (7)
1 more
Treatment name(s)

(Inderal)
Perceived effectiveness
for migraine headaches (28 evaluations)
Side effects
dizziness anxious mood 21 more
Total evaluations
35
Tried for
migraine headaches (51) anxious mood (12)
1 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with migraine, who reported starting treatments within the last 5 years.
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Who has migraine on PatientsLikeMe?


Age
Age Proportion # of patients
<20 45
20s 770
30s 2201
40s 3442
50s 2916
60s 1295
70+ 219
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3152
20-29 years 1262
30-39 years 698
40-49 years 346
50-59 years 79
60-69 years 11
70+ years 3

Distribution of sex

Sex
Sex Proportion # of patients
Male 1111
Female 9817

Types
Condition Types Proportion # of patients
Chronic migraine (>15 migraines/month) 134
Complex confusional migraine 22
Complex migraine 50
Hemiplegic migraine 23
Menstrual migraine 46
Migraine with brainstem aura (basilar migraine) 43
Mixed tension migraine 63
Ocular migraine 43
Silent migraine 22
Vestibular migraine 15
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6587
Not Diagnosed 421

These charts show data from migraine patients who have completed their condition history
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