Migraine

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is migraine?

Migraine is a neural condition characterized by recurrent headache and may be accompanied by nausea, noise sensitivity, and photophobia, sometimes preceded by sensory disturbances (aura).  Triggers of migraine episodes vary widely and may include allergic reactions, diet, alcohol, and bright lights.

Common symptoms reported by people with migraine

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with migraine

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
149
Tried for
migraine headaches (137) migraine (13)
5 more
Treatment name(s)

(Imitrex)
Type
Prescription Drug
How many have tried
142
Tried for
migraine (109) migraine headaches (56)
3 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
84
Tried for
pain (64) migraine (16)
3 more
Treatment name(s)

(Ibuprofen Prescription)
Type
Over the Counter Drug
How many have tried
70
Tried for
migraine (51) pain (37)
1 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
68
Tried for
migraine headaches (26) pain (23)
3 more
Treatment name(s)

(Naproxen Prescription)
Type
Over the Counter Drug
How many have tried
67
Tried for
migraine (52) pain (18)
2 more
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
65
Tried for
migraine (40) pain (35)
1 more
Treatment name(s)

(Maxalt)
Type
Prescription Drug
How many have tried
64
Tried for
migraine (49) migraine headaches (26)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
62
Tried for
pain (55) migraine headaches (7)
1 more
Treatment name(s)

(Inderal)
Type
Prescription Drug
How many have tried
61
Tried for
migraine headaches (55) anxious mood (10)
1 more

Data from patients with migraine, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with migraine

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Topamax)
Perceived effectiveness
for migraine headaches (102 evaluations)
Side effects
decreased appetite weight loss 99 more
Total evaluations
109
Tried for
migraine headaches (137) migraine (13)
5 more
Treatment name(s)

(Imitrex)
Perceived effectiveness
for migraine (51 evaluations)
Side effects
fatigue drowsiness 42 more
Total evaluations
69
Tried for
migraine (109) migraine headaches (56)
3 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (42 evaluations)
Side effects
weight gain drowsiness 30 more
Total evaluations
51
Tried for
pain (64) migraine (16)
3 more
Treatment name(s)

(Ibuprofen Prescription)
Perceived effectiveness
for migraine (27 evaluations)
Side effects
chronic kidney disease elevated liver enzymes 5 more
Total evaluations
41
Tried for
migraine (51) pain (37)
1 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for migraine headaches (20 evaluations)
Side effects
drowsiness dizziness 23 more
Total evaluations
60
Tried for
migraine headaches (26) pain (23)
3 more
Treatment name(s)

(Naproxen Prescription)
Perceived effectiveness
for migraine (15 evaluations)
Side effects
stomach pain allergic reaction 5 more
Total evaluations
27
Tried for
migraine (52) pain (18)
2 more
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
for migraine (28 evaluations)
Side effects
nausea abdominal pain 15 more
Total evaluations
44
Tried for
migraine (40) pain (35)
1 more
Treatment name(s)

(Maxalt)
Perceived effectiveness
for migraine (25 evaluations)
Side effects
nausea dizziness 17 more
Total evaluations
36
Tried for
migraine (49) migraine headaches (26)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (30 evaluations)
Side effects
nausea sleepiness 10 more
Total evaluations
34
Tried for
pain (55) migraine headaches (7)
1 more
Treatment name(s)

(Inderal)
Perceived effectiveness
for migraine headaches (32 evaluations)
Side effects
dizziness anxious mood 23 more
Total evaluations
39
Tried for
migraine headaches (55) anxious mood (10)
1 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with migraine, who reported starting treatments within the last 5 years.
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Who has migraine on PatientsLikeMe?


Age
Age Proportion # of patients
<20 45
20s 783
30s 2200
40s 3401
50s 2892
60s 1266
70+ 211
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3142
20-29 years 1259
30-39 years 695
40-49 years 346
50-59 years 79
60-69 years 11
70+ years 3

Distribution of sex

Sex
Sex Proportion # of patients
Male 1107
Female 9731

Types
Condition Types Proportion # of patients
Chronic migraine (>15 migraines/month) 117
Complex confusional migraine 21
Complex migraine 45
Hemiplegic migraine 20
Menstrual migraine 39
Migraine with brainstem aura (basilar migraine) 42
Mixed tension migraine 56
Ocular migraine 37
Silent migraine 19
Vestibular migraine 13
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6562
Not Diagnosed 420

These charts show data from migraine patients who have completed their condition history
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