Migraine

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is migraine?

Migraine is a neural condition characterized by recurrent headache and may be accompanied by nausea, noise sensitivity, and photophobia, sometimes preceded by sensory disturbances (aura).  Triggers of migraine episodes vary widely and may include allergic reactions, diet, alcohol, and bright lights.

Common symptoms reported by people with migraine

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with migraine

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
117
Tried for
migraine headaches (106) migraine (11)
4 more
Treatment name(s)

(Imitrex)
Type
Prescription Drug
How many have tried
109
Tried for
migraine (82) migraine headaches (48)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
69
Tried for
pain (52) migraine (12)
3 more
Treatment name(s)

(Inderal)
Type
Prescription Drug
How many have tried
56
Tried for
migraine headaches (48) anxious mood (11)
1 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
50
Tried for
migraine (17) migraine headaches (17)
3 more
Treatment name(s)

(Ibuprofen Prescription)
Type
Over the Counter Drug
How many have tried
50
Tried for
migraine (31) pain (31)
1 more
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
46
Tried for
pain (28) migraine (26)
1 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
46
Tried for
pain (41) migraine headaches (5)
1 more
Treatment name(s)

(Maxalt)
Type
Prescription Drug
How many have tried
45
Tried for
migraine (31) migraine headaches (23)
Treatment name(s)

(Naproxen Prescription)
Type
Over the Counter Drug
How many have tried
44
Tried for
migraine (36) pain (10)
2 more

Data from patients with migraine, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with migraine

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Topamax)
Perceived effectiveness
for migraine headaches (76 evaluations)
Side effects
decreased appetite weight loss 82 more
Total evaluations
85
Tried for
migraine headaches (106) migraine (11)
4 more
Treatment name(s)

(Imitrex)
Perceived effectiveness
for migraine (36 evaluations)
Side effects
fatigue burning sensation 39 more
Total evaluations
53
Tried for
migraine (82) migraine headaches (48)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (31 evaluations)
Side effects
weight gain drowsiness 19 more
Total evaluations
38
Tried for
pain (52) migraine (12)
3 more
Treatment name(s)

(Inderal)
Perceived effectiveness
for migraine headaches (22 evaluations)
Side effects
dizziness anxious mood 20 more
Total evaluations
28
Tried for
migraine headaches (48) anxious mood (11)
1 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for migraine (13 evaluations)
Side effects
drowsiness constipation 22 more
Total evaluations
32
Tried for
migraine (17) migraine headaches (17)
3 more
Treatment name(s)

(Ibuprofen Prescription)
Perceived effectiveness
for migraine (20 evaluations)
Side effects
acid reflux chronic kidney disease 4 more
Total evaluations
36
Tried for
migraine (31) pain (31)
1 more
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
for pain (15 evaluations)
Side effects
acid reflux dizziness 8 more
Total evaluations
24
Tried for
pain (28) migraine (26)
1 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (24 evaluations)
Side effects
nausea constipation 9 more
Total evaluations
28
Tried for
pain (41) migraine headaches (5)
1 more
Treatment name(s)

(Maxalt)
Perceived effectiveness
for migraine (15 evaluations)
Side effects
nausea dizziness 12 more
Total evaluations
25
Tried for
migraine (31) migraine headaches (23)
Treatment name(s)

(Naproxen Prescription)
Perceived effectiveness
for migraine (11 evaluations)
Side effects
allergic reaction bruising 5 more
Total evaluations
18
Tried for
migraine (36) pain (10)
2 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with migraine, who reported starting treatments within the last 5 years.
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Who has migraine on PatientsLikeMe?


Age
Age Proportion # of patients
<20 44
20s 735
30s 2207
40s 3499
50s 3112
60s 1409
70+ 250
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3182
20-29 years 1272
30-39 years 706
40-49 years 351
50-59 years 82
60-69 years 11
70+ years 3

Distribution of sex

Sex
Sex Proportion # of patients
Male 1155
Female 10153

Types
Condition Types Proportion # of patients
Chronic migraine (>15 migraines/month) 230
Complex confusional migraine 35
Complex migraine 83
Hemiplegic migraine 34
Menstrual migraine 82
Migraine with brainstem aura (basilar migraine) 68
Mixed tension migraine 102
Ocular migraine 73
Silent migraine 37
Vestibular migraine 33
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6649
Not Diagnosed 422

These charts show data from migraine patients who have completed their condition history
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