Migraine

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is migraine?

Migraine is a neural condition characterized by recurrent headache and may be accompanied by nausea, noise sensitivity, and photophobia, sometimes preceded by sensory disturbances (aura).  Triggers of migraine episodes vary widely and may include allergic reactions, diet, alcohol, and bright lights.

Common symptoms reported by people with migraine

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with migraine

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
110
Tried for
migraine headaches (98) migraine (12)
2 more
Treatment name(s)

(Imitrex)
Type
Prescription Drug
How many have tried
103
Tried for
migraine (75) migraine headaches (48)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
64
Tried for
pain (48) migraine (11)
3 more
Treatment name(s)

(Ibuprofen Prescription)
Type
Over the Counter Drug
How many have tried
49
Tried for
migraine (29) pain (29)
1 more
Treatment name(s)

(Inderal)
Type
Prescription Drug
How many have tried
49
Tried for
migraine headaches (40) anxious mood (12)
1 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
47
Tried for
pain (17) migraine (16)
3 more
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
45
Tried for
pain (27) migraine (24)
1 more
Treatment name(s)

(Maxalt)
Type
Prescription Drug
How many have tried
43
Tried for
migraine (29) migraine headaches (23)
Treatment name(s)

(Naproxen Prescription)
Type
Over the Counter Drug
How many have tried
41
Tried for
migraine (32) pain (10)
2 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
41
Tried for
pain (38) migraine headaches (4)
1 more

Data from patients with migraine, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with migraine

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Topamax)
Perceived effectiveness
for migraine headaches (71 evaluations)
Side effects
decreased appetite weight loss 81 more
Total evaluations
80
Tried for
migraine headaches (98) migraine (12)
2 more
Treatment name(s)

(Imitrex)
Perceived effectiveness
for migraine (35 evaluations)
Side effects
fatigue burning sensation 37 more
Total evaluations
51
Tried for
migraine (75) migraine headaches (48)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (26 evaluations)
Side effects
weight gain fatigue 19 more
Total evaluations
34
Tried for
pain (48) migraine (11)
3 more
Treatment name(s)

(Ibuprofen Prescription)
Perceived effectiveness
for migraine (20 evaluations)
Side effects
acid reflux chronic kidney disease 5 more
Total evaluations
36
Tried for
migraine (29) pain (29)
1 more
Treatment name(s)

(Inderal)
Perceived effectiveness
for migraine headaches (19 evaluations)
Side effects
dizziness fatigue 19 more
Total evaluations
25
Tried for
migraine headaches (40) anxious mood (12)
1 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for pain (9 evaluations)
Side effects
constipation drowsiness 22 more
Total evaluations
28
Tried for
pain (17) migraine (16)
3 more
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
for pain (15 evaluations)
Side effects
dizziness gastric ulcer 6 more
Total evaluations
24
Tried for
pain (27) migraine (24)
1 more
Treatment name(s)

(Maxalt)
Perceived effectiveness
for migraine (13 evaluations)
Side effects
nausea dizziness 10 more
Total evaluations
23
Tried for
migraine (29) migraine headaches (23)
Treatment name(s)

(Naproxen Prescription)
Perceived effectiveness
for migraine (13 evaluations)
Side effects
allergic reaction bruising 6 more
Total evaluations
19
Tried for
migraine (32) pain (10)
2 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (25 evaluations)
Side effects
nausea constipation 9 more
Total evaluations
25
Tried for
pain (38) migraine headaches (4)
1 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with migraine, who reported starting treatments within the last 5 years.
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Who has migraine on PatientsLikeMe?


Age
Age Proportion # of patients
<20 41
20s 705
30s 2183
40s 3506
50s 3186
60s 1483
70+ 274
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3204
20-29 years 1281
30-39 years 709
40-49 years 353
50-59 years 85
60-69 years 11
70+ years 3

Distribution of sex

Sex
Sex Proportion # of patients
Male 1175
Female 10258

Types
Condition Types Proportion # of patients
Chronic migraine (>15 migraines/month) 261
Complex confusional migraine 37
Complex migraine 91
Hemiplegic migraine 38
Menstrual migraine 94
Migraine with brainstem aura (basilar migraine) 77
Mixed tension migraine 116
Ocular migraine 83
Silent migraine 46
Vestibular migraine 36
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6695
Not Diagnosed 423

These charts show data from migraine patients who have completed their condition history
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