Migraine

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is migraine?

Migraine is a neural condition characterized by recurrent headache and may be accompanied by nausea, noise sensitivity, and photophobia, sometimes preceded by sensory disturbances (aura).  Triggers of migraine episodes vary widely and may include allergic reactions, diet, alcohol, and bright lights.

Common symptoms reported by people with migraine

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with migraine

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
123
Tried for
migraine headaches (111) migraine (13)
5 more
Treatment name(s)

(Imitrex)
Type
Prescription Drug
How many have tried
116
Tried for
migraine (88) migraine headaches (49)
3 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
70
Tried for
pain (54) migraine (12)
3 more
Treatment name(s)

(Ibuprofen Prescription)
Type
Over the Counter Drug
How many have tried
56
Tried for
migraine (35) pain (34)
1 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
55
Tried for
migraine headaches (19) pain (19)
3 more
Treatment name(s)

(Inderal)
Type
Prescription Drug
How many have tried
55
Tried for
migraine headaches (47) anxious mood (11)
1 more
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
51
Tried for
migraine (30) pain (30)
1 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
50
Tried for
pain (45) migraine headaches (6)
1 more
Treatment name(s)

(Maxalt)
Type
Prescription Drug
How many have tried
48
Tried for
migraine (35) migraine headaches (23)
Treatment name(s)

(Naproxen Prescription)
Type
Over the Counter Drug
How many have tried
45
Tried for
migraine (35) pain (12)
2 more

Data from patients with migraine, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with migraine

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Topamax)
Perceived effectiveness
for migraine headaches (77 evaluations)
Side effects
decreased appetite weight loss 86 more
Total evaluations
86
Tried for
migraine headaches (111) migraine (13)
5 more
Treatment name(s)

(Imitrex)
Perceived effectiveness
for migraine (38 evaluations)
Side effects
fatigue burning sensation 43 more
Total evaluations
56
Tried for
migraine (88) migraine headaches (49)
3 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (33 evaluations)
Side effects
fatigue weight gain 20 more
Total evaluations
40
Tried for
pain (54) migraine (12)
3 more
Treatment name(s)

(Ibuprofen Prescription)
Perceived effectiveness
for migraine (24 evaluations)
Side effects
acid reflux chronic kidney disease 4 more
Total evaluations
41
Tried for
migraine (35) pain (34)
1 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for migraine headaches (11 evaluations)
Side effects
drowsiness dry mouth 21 more
Total evaluations
49
Tried for
migraine headaches (19) pain (19)
3 more
Treatment name(s)

(Inderal)
Perceived effectiveness
for migraine headaches (25 evaluations)
Side effects
dizziness anxious mood 22 more
Total evaluations
29
Tried for
migraine headaches (47) anxious mood (11)
1 more
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
for migraine (21 evaluations)
Side effects
acid reflux deep itching 11 more
Total evaluations
35
Tried for
migraine (30) pain (30)
1 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (27 evaluations)
Side effects
nausea constipation 12 more
Total evaluations
31
Tried for
pain (45) migraine headaches (6)
1 more
Treatment name(s)

(Maxalt)
Perceived effectiveness
for migraine (18 evaluations)
Side effects
nausea dizziness 12 more
Total evaluations
28
Tried for
migraine (35) migraine headaches (23)
Treatment name(s)

(Naproxen Prescription)
Perceived effectiveness
for migraine (11 evaluations)
Side effects
allergic reaction bruising 5 more
Total evaluations
20
Tried for
migraine (35) pain (12)
2 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with migraine, who reported starting treatments within the last 5 years.
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Who has migraine on PatientsLikeMe?


Age
Age Proportion # of patients
<20 43
20s 762
30s 2192
40s 3476
50s 3009
60s 1357
70+ 237
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3162
20-29 years 1265
30-39 years 704
40-49 years 350
50-59 years 81
60-69 years 11
70+ years 3

Distribution of sex

Sex
Sex Proportion # of patients
Male 1132
Female 9990

Types
Condition Types Proportion # of patients
Chronic migraine (>15 migraines/month) 192
Complex confusional migraine 30
Complex migraine 66
Hemiplegic migraine 30
Menstrual migraine 68
Migraine with brainstem aura (basilar migraine) 56
Mixed tension migraine 86
Ocular migraine 61
Silent migraine 30
Vestibular migraine 27
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6613
Not Diagnosed 421

These charts show data from migraine patients who have completed their condition history
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