10 patient evaluations for Cyclophosphamide
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Oct 22, 2016 (Started Jun 30, 2008)
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EffectivenessSlight (for CNS lupus)
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Side effectsMild (for Overall) (bone marrow suppression)
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AdherenceUsually
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BurdenNot at all hard to take
Advice & Tips:
This is a muscle relaxer and theoretically should have no effect on nerve pain, but when I went off of it for a short time because my insurance wanted me to try a different drug, I immediately started having worse nerve pain in my feet. Now I've been back on it for about a week and I think the pain is better. Of course, it could be placebo effect, but that doesn't matter to me, does it?
Cost:
< $25 monthly
Oct 14, 2016 (Started Jun 30, 2008)
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EffectivenessMajor (for CNS lupus)
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Side effectsSevere (for Overall) (bone marrow suppression)
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AdherenceNever taken as prescribed
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BurdenVery hard to take
Advice & Tips:
This is Cytoxen, a chemotherapy drug. I had monthly treatments for nine months, became so anemic that I got dehydrated from low blood volume and went into renal failure twice. It did stop my seizures, episodes of amnesia and other neuropsychiatric symptoms for a long time. It was worth the risks.
Cost:
$200+ monthly
- 0 helpful marks
Apr 30, 2011 (Started Jan 07, 2010)
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EffectivenessMajor (for used to kill immune system)
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EffectivenessModerate (for multiple sclerosis)
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Side effectsModerate (for Overall) (brain fog)
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AdherenceAlways
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BurdenSomewhat hard to take
Dosage:
2 g
Monthly
Advice & Tips:
it worked wonderfully for we'll over a year! My disease then started to take over again.
Taking this drug for my MS was one thing, taking it to kill my immune system to prepare me for my transplant was another completely.
Cost:
< $25 monthly
- 0 helpful marks
Dec 11, 2011 (Started Dec 16, 2011)
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EffectivenessCan't tell (for multiple sclerosis)
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Side effectsNone (for Overall)
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AdherenceNever taken as prescribed
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BurdenNot at all hard to take
Advice & Tips:
I put this treatment in as a mistake
Cost:
< $25 monthly
- 0 helpful marks
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