Granulomatosis with polyangiitis (Wegener's)

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What is granulomatosis with polyangiitis (Wegener's)?

Granulomatosis with Polyangiitis (Wegener's) is a rare automimmune disorder that causes inflammation of small and medium sized blood vessels (vasculitis) primarily in the lungs and kidneys.

Common symptoms reported by people with granulomatosis with polyangiitis (Wegener's)

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with granulomatosis with polyangiitis (Wegener's)

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Solu-Medrol Infusion)
Type
Prescription Drug
How many have tried
2
Treatment name(s)

(Rituxan)
Type
Prescription Drug
How many have tried
2
Treatment name(s)

(Mepron)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Cytoxan)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
1

Data from patients with granulomatosis with polyangiitis (Wegener's), who reported starting treatments within the last 5 years.
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Compare treatments taken by people with granulomatosis with polyangiitis (Wegener's)

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Solu-Medrol Infusion)
Perceived effectiveness
for granulomatosis with polyangiitis (Wegener's) (2 evaluations)
Side effects
candida (fungal) infection fatigue 4 more
Total evaluations
2
Treatment name(s)

(Rituxan)
Perceived effectiveness
for granulomatosis with polyangiitis (Wegener's) (2 evaluations)
Side effects
fatigue fatigue post infusion
Total evaluations
2
Treatment name(s)

(Mepron)
Perceived effectiveness
for granulomatosis with polyangiitis (Wegener's) (1 evaluation)
Side effects
stomach pain
Total evaluations
1
Treatment name(s)

(Cytoxan)
Perceived effectiveness
for granulomatosis with polyangiitis (Wegener's) (1 evaluation)
Side effects
fatigue nausea
Total evaluations
1
Treatment name(s)

(Deltasone)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with granulomatosis with polyangiitis (Wegener's), who reported starting treatments within the last 5 years.
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Who has granulomatosis with polyangiitis (Wegener's) on PatientsLikeMe?

  • 1 new patients joined this month
  • 116 say granulomatosis with polyangiitis (Wegener's) is their primary condition

Age
Age Proportion # of patients
<20 1
20s 9
30s 19
40s 26
50s 49
60s 21
70+ 22
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 12
20-29 years 9
30-39 years 8
40-49 years 10
50-59 years 8
60-69 years 3
70+ years 2

Distribution of sex

Sex
Sex Proportion # of patients
Male 45
Female 103

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 65
Not Diagnosed 2

These charts show data from granulomatosis with polyangiitis (Wegener's) patients who have completed their condition history
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