Sjogren's syndrome

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What is Sjogren's syndrome?

Sjogren’s syndrome also known as Mikulicz disease and Sicca syndrome, is a chronic inflammatory autoimmune disease characterized by dryness of mucous membranes, especially of the eyes and mouth and often associated with rheumatoid arthritis.

Common symptoms reported by people with Sjogren's syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for Sjogren's syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Salagen)
Type
Prescription Drug
How many have tried
328
Tried for
Sjogren's syndrome (10)

Data from patients with Sjogren's syndrome, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with Sjogren's syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Salagen)
Perceived effectiveness
for Sjogren's syndrome (6 evaluations)
Side effects
dizziness enlarged or swollen parotid gland 2 more
Total evaluations
6
Tried for
Sjogren's syndrome (10)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Sjogren's syndrome, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has Sjogren's syndrome on PatientsLikeMe?

  • 6 new patients joined this month
  • 1083 say Sjogren's syndrome is their primary condition

Age
Age Proportion # of patients
<20 3
20s 80
30s 380
40s 965
50s 1420
60s 982
70+ 328
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 206
20-29 years 341
30-39 years 660
40-49 years 669
50-59 years 367
60-69 years 80
70+ years 7

Distribution of sex

Sex
Sex Proportion # of patients
Male 142
Female 4055

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3117
Not Diagnosed 116

These charts show data from Sjogren's syndrome patients who have completed their condition history
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