Sjogren's syndrome

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What is Sjogren's syndrome?

Sjogren’s syndrome also known as Mikulicz disease and Sicca syndrome, is a chronic inflammatory autoimmune disease characterized by dryness of mucous membranes, especially of the eyes and mouth and often associated with rheumatoid arthritis.

Common symptoms reported by people with Sjogren's syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Sjogren's syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
37
Tried for
Sjogren's syndrome (35) fatigue (1)
1 more
Treatment name(s)

(Artificial Tears)
Type
Over the Counter Drug
How many have tried
24
Tried for
Sjogren's syndrome (23) dry eyes (6)
Treatment name(s)

(Restasis)
Type
Prescription Drug
How many have tried
21
Tried for
Sjogren's syndrome (19) dry eyes (4)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
15
Tried for
pain (15)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
15
Tried for
pain (15)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
14
Tried for
pain (14)
Treatment name(s)

(Salagen)
Type
Prescription Drug
How many have tried
14
Tried for
Sjogren's syndrome (13) dry mouth (1)
Treatment name(s)

(Evoxac)
Type
Prescription Drug
How many have tried
12
Tried for
Sjogren's syndrome (12) dry mouth (2)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
9
Tried for
depressed mood (7) anxious mood (1)
2 more
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
7
Tried for
pain (7)

Data from patients with Sjogren's syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Sjogren's syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for Sjogren's syndrome (16 evaluations)
Side effects
nausea headaches 11 more
Total evaluations
19
Tried for
Sjogren's syndrome (35) fatigue (1)
1 more
Treatment name(s)

(Artificial Tears)
Perceived effectiveness
for Sjogren's syndrome (4 evaluations)
Side effects
burning sensation in eyes
Total evaluations
5
Tried for
Sjogren's syndrome (23) dry eyes (6)
Treatment name(s)

(Restasis)
Perceived effectiveness
for Sjogren's syndrome (7 evaluations)
Side effects
eyes stinging headaches
Total evaluations
8
Tried for
Sjogren's syndrome (19) dry eyes (4)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (5 evaluations)
Side effects
drowsiness burning sensation 2 more
Total evaluations
8
Tried for
pain (15)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (6 evaluations)
Side effects
tingling tiredness
Total evaluations
6
Tried for
pain (15)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (10 evaluations)
Side effects
drowsiness constipation
Total evaluations
10
Tried for
pain (14)
Treatment name(s)

(Salagen)
Perceived effectiveness
for Sjogren's syndrome (5 evaluations)
Side effects
dizziness enlarged or swollen parotid gland 2 more
Total evaluations
5
Tried for
Sjogren's syndrome (13) dry mouth (1)
Treatment name(s)

(Evoxac)
Perceived effectiveness
for Sjogren's syndrome (10 evaluations)
Side effects
diarrhea excessive sinus drainage 2 more
Total evaluations
10
Tried for
Sjogren's syndrome (12) dry mouth (2)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (2 evaluations)
Side effects
drowsiness dry mouth
Total evaluations
4
Tried for
depressed mood (7) anxious mood (1)
2 more
Treatment name(s)

(Tylenol)
Perceived effectiveness
for pain (3 evaluations)
Side effects
Total evaluations
3
Tried for
pain (7)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Sjogren's syndrome, who reported starting treatments within the last 5 years.
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Who has Sjogren's syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 96
30s 407
40s 1001
50s 1401
60s 893
70+ 287
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 206
20-29 years 342
30-39 years 659
40-49 years 662
50-59 years 361
60-69 years 79
70+ years 7

Distribution of sex

Sex
Sex Proportion # of patients
Male 139
Female 3987

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3100
Not Diagnosed 116

These charts show data from Sjogren's syndrome patients who have completed their condition history
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