Raynaud's disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Raynaud's disease?

Raynaud's disease is a vascular disorder characterized by ischemic attacks called, Raynaud's phenomenon, in the fingers, toes, ears, or nose, associated with pain and pallor. The attacks occur during exposure to cold temperatures or stress.

Common symptoms reported by people with Raynaud's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for Raynaud's disease

Let’s build this page together! When you share what it’s like to have Raynaud's disease through your profile, those stories and data appear here too.

Got a question about living with Raynaud's disease? Members in the forum might have the answers.

Compare treatments taken by people with Raynaud's disease

Let’s build this page together! When you share what it’s like to have Raynaud's disease through your profile, those stories and data appear here too.

Got a question about living with Raynaud's disease? Members in the forum might have the answers.

Who has Raynaud's disease on PatientsLikeMe?

  • 5 new patients joined this month
  • 247 say Raynaud's disease is their primary condition

Age
Age Proportion # of patients
<20 1
20s 89
30s 309
40s 615
50s 806
60s 520
70+ 182
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 339
20-29 years 285
30-39 years 398
40-49 years 270
50-59 years 117
60-69 years 26
70+ years 5

Distribution of sex

Sex
Sex Proportion # of patients
Male 138
Female 2387

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1822
Not Diagnosed 104

These charts show data from Raynaud's disease patients who have completed their condition history
Last updated: