What is primary sclerosing cholangitis?
Primary sclerosing cholangitis is a chronic, autoimmune inflammatory liver disorder characterized by narrowing and scarring of the lumen of the bile ducts. It is often seen in patients with ulcerative colitis.
How do members experience primary sclerosing cholangitis?
Top 5 symptoms reported by people with primary sclerosing cholangitis*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Common symptom
Anxious mood
How bad it is
What people are taking for it
Common symptom
Depressed mood
How bad it is
What people are taking for it
Common symptom
Pain
How bad it is
What people are taking for it
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for primary sclerosing cholangitis*
Treatment
Type
How many have tried
Tried for
Type
Prescription Drug
How many have tried
25
Tried for
primary sclerosing cholangitis
(1)
*Data from patients with primary sclerosing cholangitis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Compare treatments taken by people with primary sclerosing cholangitis*
Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for primary sclerosing cholangitis (1 evaluation)
Side effects
Total evaluations
1
Tried for
primary sclerosing cholangitis
(1)
*Data from patients with primary sclerosing cholangitis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Who has primary sclerosing cholangitis on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 9 | |
| 30s | 23 | |
| 40s | 41 | |
| 50s | 38 | |
| 60s | 31 | |
| 70+ | 22 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 70 | |
| Female | 92 |