What is primary sclerosing cholangitis?

Primary sclerosing cholangitis is a chronic, autoimmune inflammatory liver disorder characterized by narrowing and scarring of the lumen of the bile ducts. It is often seen in patients with ulcerative colitis.

How do members experience primary sclerosing cholangitis?

Top 5 symptoms reported by people with primary sclerosing cholangitis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for primary sclerosing cholangitis*

Who has primary sclerosing cholangitis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 7
30s 24
40s 42
50s 34
60s 27
70+ 16

Distribution of sex

Sex

Sex Proportion # of patients
Male 65
Female 85