Phantosmia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is phantosmia?

Phantosmia, or olfactory hallucinations, involves smelling odors that are not derived from any physical stimulus. The odors detected in phantosmia vary from person to person and may be foul or pleasant.

Common symptoms reported by people with phantosmia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for phantosmia

Let’s build this page together! When you share what it’s like to have phantosmia through your profile, those stories and data appear here too.

Got a question about living with phantosmia? Members in the forum might have the answers.

Compare treatments taken by people with phantosmia

Let’s build this page together! When you share what it’s like to have phantosmia through your profile, those stories and data appear here too.

Got a question about living with phantosmia? Members in the forum might have the answers.

Who has phantosmia on PatientsLikeMe?

  • 2 new patients joined this month
  • 79 say phantosmia is their primary condition

Age
Age Proportion # of patients
<20 0
20s 5
30s 9
40s 17
50s 30
60s 26
70+ 12
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 3
30-39 years 3
40-49 years 4
50-59 years 9
60-69 years 2
70+ years 3

Distribution of sex

Sex
Sex Proportion # of patients
Male 24
Female 78

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 13
Not Diagnosed 14

These charts show data from phantosmia patients who have completed their condition history
Last updated: