Optic neuritis

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What is optic neuritis?

Optic neuritis is the inflammation of the optic nerve that may cause a complete or partial loss of vision. It is classified as either intraocular, affecting the part of the nerve within the eyeball, or retrobulbar, affecting the portion behind the eyeball.

Common symptoms reported by people with optic neuritis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with optic neuritis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Nuvigil)
Type
Prescription Drug
How many have tried
2
Tried for
fatigue (2)
Treatment name(s)

(Ibuprofen Prescription)
Type
Over the Counter Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Solu-Medrol Infusion)
Type
Prescription Drug
How many have tried
2
Tried for
optic neuritis (2)
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
2
Tried for
fatigue (2)
Treatment name(s)

(Paxil)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)
Type
Supplement
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Cannabidiol CBD oil)
Type
Other
How many have tried
1
Tried for
anxious mood (1) optic neuritis (1)
1 more
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
1
Tried for
anxious mood (1) pain (1)
Treatment name(s)
Type
Procedures
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Celexa)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)

Data from patients with optic neuritis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with optic neuritis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Nuvigil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (2)
Treatment name(s)

(Ibuprofen Prescription)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (2)
Treatment name(s)

(Solu-Medrol Infusion)
Perceived effectiveness
for optic neuritis (3 evaluations)
Side effects
dry skin Hospitalization
Total evaluations
3
Tried for
optic neuritis (2)
Treatment name(s)

(Provigil)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
tachycardia (fast heart rate)
Total evaluations
1
Tried for
fatigue (2)
Treatment name(s)

(Paxil)
Perceived effectiveness
for anxious mood (4 evaluations)
Side effects
mood swings sweating
Total evaluations
4
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)
Perceived effectiveness
for fatigue (5 evaluations)
Side effects
constipation feet tingling 1 more
Total evaluations
5
Tried for
fatigue (1)
Treatment name(s)

(Cannabidiol CBD oil)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
bad taste in mouth
Total evaluations
3
Tried for
anxious mood (1) optic neuritis (1)
1 more
Treatment name(s)

(Marijuana)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1) pain (1)
Treatment name(s)
Perceived effectiveness
for pain (1 evaluation)
Side effects
pain
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Celexa)
Perceived effectiveness
for anxious mood (3 evaluations)
Side effects
weight gain
Total evaluations
3
Tried for
anxious mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with optic neuritis, who reported starting treatments within the last 5 years.
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Who has optic neuritis on PatientsLikeMe?

  • 0 new patients joined this month
  • 55 say optic neuritis is their primary condition

Age
Age Proportion # of patients
<20 2
20s 11
30s 94
40s 97
50s 108
60s 48
70+ 11
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 21
20-29 years 59
30-39 years 58
40-49 years 55
50-59 years 12
60-69 years 3
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 54
Female 322

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 266
Not Diagnosed 5

These charts show data from optic neuritis patients who have completed their condition history
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