Macular degeneration
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- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is macular degeneration?
Macular degeneration (MD) usually affects older adults and results in a loss of vision in the center of the visual field (the macula) because of damage to the retina. The dry form of MD occurs as a result of retinal atrophy; the wet form is due to leakage of blood or protein below the macula.
Common symptoms reported by people with macular degeneration
Common symptoms
How bad it is
What people are taking for it
Common symptom
Loss of peripheral vision
How bad it is
What people are taking for it
Nothing reported yet
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for macular degeneration
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with macular degeneration, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with macular degeneration
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
macular degeneration
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with macular degeneration, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has macular degeneration on PatientsLikeMe?
- 2 new patients joined this month
- 185 say macular degeneration is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 2 | |
| 20s | 4 | |
| 30s | 20 | |
| 40s | 34 | |
| 50s | 65 | |
| 60s | 105 | |
| 70+ | 186 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 5 | |
| 20-29 years | 5 | |
| 30-39 years | 11 | |
| 40-49 years | 22 | |
| 50-59 years | 35 | |
| 60-69 years | 28 | |
| 70+ years | 13 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 126 | |
| Female | 288 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 185 | |
| Not Diagnosed | 14 |
These charts show data from macular degeneration patients who have completed their condition history
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