Macular degeneration

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

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What is macular degeneration?

Macular degeneration (MD) usually affects older adults and results in a loss of vision in the center of the visual field (the macula) because of damage to the retina. The dry form of MD occurs as a result of retinal atrophy; the wet form is due to leakage of blood or protein below the macula.



Common symptoms reported by people with macular degeneration

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for macular degeneration

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Avastin)
Type
Prescription Drug
How many have tried
35
Tried for
macular degeneration (1)

Data from patients with macular degeneration, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with macular degeneration

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Avastin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
macular degeneration (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with macular degeneration, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has macular degeneration on PatientsLikeMe?

  • 2 new patients joined this month
  • 185 say macular degeneration is their primary condition

Age
Age Proportion # of patients
<20 2
20s 4
30s 20
40s 34
50s 65
60s 105
70+ 186
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5
20-29 years 5
30-39 years 11
40-49 years 22
50-59 years 35
60-69 years 28
70+ years 13

Distribution of sex

Sex
Sex Proportion # of patients
Male 126
Female 288

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 185
Not Diagnosed 14

These charts show data from macular degeneration patients who have completed their condition history
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