Lichen sclerosus

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What is lichen sclerosus?

Lichen sclerosus is an uncommon autoimmune condition that creates patchy, white skin that's thinner than normal. Lichen sclerosus may affect skin on any part of your body, but most often involves skin of the vulva, foreskin of the penis or skin around the anus.

Common symptoms reported by people with lichen sclerosus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for lichen sclerosus

Let’s build this page together! When you share what it’s like to have lichen sclerosus through your profile, those stories and data appear here too.

Got a question about living with lichen sclerosus? Members in the forum might have the answers.

Compare treatments taken by people with lichen sclerosus

Let’s build this page together! When you share what it’s like to have lichen sclerosus through your profile, those stories and data appear here too.

Got a question about living with lichen sclerosus? Members in the forum might have the answers.

Who has lichen sclerosus on PatientsLikeMe?

  • 0 new patients joined this month
  • 173 say lichen sclerosus is their primary condition

Age
Age Proportion # of patients
<20 1
20s 12
30s 35
40s 40
50s 76
60s 79
70+ 34
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 11
20-29 years 9
30-39 years 19
40-49 years 26
50-59 years 24
60-69 years 6
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 20
Female 261

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 120
Not Diagnosed 7

These charts show data from lichen sclerosus patients who have completed their condition history
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