Human immunodeficiency virus (HIV)

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is human immunodeficiency virus (HIV)?

HIV (human immunodeficiency virus) is a viral infection which can lead to acquired immunodeficiency syndrome (AIDS). HIV specifically attacks CD4 cells, which are part of the body's immune system. With treatment, often called antiretroviral therapy (ART), HIV infection can be well-controlled.

Common symptoms reported by people with human immunodeficiency virus (HIV)

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with human immunodeficiency virus (HIV)

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Prescription Drug
How many have tried
18
Type
Prescription Drug
How many have tried
17
Treatment name(s)

(Tivicay)
Type
Prescription Drug
How many have tried
17
Type
Prescription Drug
How many have tried
15
Treatment name(s)

(Truvada)
Type
Prescription Drug
How many have tried
15
Treatment name(s)

(Complera)
Type
Prescription Drug
How many have tried
14
Treatment name(s)

(Descovy)
Type
Prescription Drug
How many have tried
8
Treatment name(s)

(Isentress)
Type
Prescription Drug
How many have tried
8
Treatment name(s)

(Norvir)
Type
Prescription Drug
How many have tried
8
Treatment name(s)

(Epzicom)
Type
Prescription Drug
How many have tried
7

Data from patients with human immunodeficiency virus (HIV), who reported starting treatments within the last 5 years.
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Compare treatments taken by people with human immunodeficiency virus (HIV)

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
for human immunodeficiency virus (HIV) (19 evaluations)
Side effects
decreased alcohol tolerance depressed mood 3 more
Total evaluations
19
Perceived effectiveness
for human immunodeficiency virus (HIV) (8 evaluations)
Side effects
nausea abdominal bloating 14 more
Total evaluations
9
Treatment name(s)

(Tivicay)
Perceived effectiveness
for human immunodeficiency virus (HIV) (7 evaluations)
Side effects
Total evaluations
7
Perceived effectiveness
for human immunodeficiency virus (HIV) (6 evaluations)
Side effects
chronic kidney disease diarrhea 1 more
Total evaluations
6
Treatment name(s)

(Truvada)
Perceived effectiveness
for human immunodeficiency virus (HIV) (8 evaluations)
Side effects
chronic diarrhea sleep problems
Total evaluations
8
Treatment name(s)

(Complera)
Perceived effectiveness
for human immunodeficiency virus (HIV) (10 evaluations)
Side effects
acid reflux decreased appetite 3 more
Total evaluations
10
Treatment name(s)

(Descovy)
Perceived effectiveness
for human immunodeficiency virus (HIV) (3 evaluations)
Side effects
excessive thirst (polydipsia) dizziness 5 more
Total evaluations
3
Treatment name(s)

(Isentress)
Perceived effectiveness
for human immunodeficiency virus (HIV) (4 evaluations)
Side effects
inability to sleep
Total evaluations
4
Treatment name(s)

(Norvir)
Perceived effectiveness
for human immunodeficiency virus (HIV) (5 evaluations)
Side effects
diarrhea
Total evaluations
5
Treatment name(s)

(Epzicom)
Perceived effectiveness
for human immunodeficiency virus (HIV) (5 evaluations)
Side effects
chronic diarrhea chronic kidney disease 2 more
Total evaluations
5
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with human immunodeficiency virus (HIV), who reported starting treatments within the last 5 years.
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Who has human immunodeficiency virus (HIV) on PatientsLikeMe?


Age
Age Proportion # of patients
<20 6
20s 135
30s 604
40s 744
50s 865
60s 370
70+ 71
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 26
20-29 years 213
30-39 years 217
40-49 years 100
50-59 years 35
60-69 years 3
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 2098
Female 717

Types
Condition Types Proportion # of patients
HIV-1: Group M: CRF 98
HIV-1: Group M: Type A1 236
HIV-1: Group M: Type A2 19
HIV-1: Group M: Type B 119
HIV-1: Group M: Type C 12
HIV-1: Group M: Type D 10
HIV-1: Group M: Type F1 11
HIV-1: Group M: Type F2 5
HIV-1: Group M: Type G 6
HIV-1: Group M: Type H 4
HIV-1: Group M: Type J 1
HIV-1: Group M: Type K 3
HIV-1: Group N 6
HIV-1: Group O 35
HIV-2 29
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1209
Not Diagnosed 47

These charts show data from HIV patients who have completed their condition history
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