Human immunodeficiency virus (HIV)

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is human immunodeficiency virus (HIV)?

HIV (human immunodeficiency virus) is a viral infection which can lead to acquired immunodeficiency syndrome (AIDS). HIV specifically attacks CD4 cells, which are part of the body's immune system. With treatment, often called antiretroviral therapy (ART), HIV infection can be well-controlled.

Common symptoms reported by people with human immunodeficiency virus (HIV)

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with human immunodeficiency virus (HIV)

Treatment name(s)
Type
How many have tried
Tried for
Type
Prescription Drug
How many have tried
17
Treatment name(s)
Type
Prescription Drug
How many have tried
12
Treatment name(s)

(Tivicay)
Type
Prescription Drug
How many have tried
9
Treatment name(s)

(Descovy)
Type
Prescription Drug
How many have tried
7
Type
Prescription Drug
How many have tried
6
Treatment name(s)

(Truvada)
Type
Prescription Drug
How many have tried
6
Treatment name(s)

(Prezista)
Type
Prescription Drug
How many have tried
5
Type
Prescription Drug
How many have tried
4
Type
Prescription Drug
How many have tried
3
Treatment name(s)

(Norvir)
Type
Prescription Drug
How many have tried
3

Data from patients with human immunodeficiency virus (HIV), who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with human immunodeficiency virus (HIV)

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for human immunodeficiency virus (HIV) (9 evaluations)
Side effects
anxious dreams diarrhea 2 more
Total evaluations
9
Treatment name(s)
Perceived effectiveness
for human immunodeficiency virus (HIV) (21 evaluations)
Side effects
decreased alcohol tolerance depressed mood 3 more
Total evaluations
21
Treatment name(s)

(Tivicay)
Perceived effectiveness
for human immunodeficiency virus (HIV) (4 evaluations)
Side effects
stomach distention
Total evaluations
4
Treatment name(s)

(Descovy)
Perceived effectiveness
for human immunodeficiency virus (HIV) (3 evaluations)
Side effects
excessive thirst (polydipsia) dizziness 5 more
Total evaluations
3
Perceived effectiveness
for human immunodeficiency virus (HIV) (10 evaluations)
Side effects
headaches weight gain 3 more
Total evaluations
10
Treatment name(s)

(Truvada)
Perceived effectiveness
for human immunodeficiency virus (HIV) (4 evaluations)
Side effects
skin eruptions
Total evaluations
4
Treatment name(s)

(Prezista)
Perceived effectiveness
for human immunodeficiency virus (HIV) (6 evaluations)
Side effects
itching rash or skin problems 1 more
Total evaluations
6
Perceived effectiveness
for human immunodeficiency virus (HIV) (3 evaluations)
Side effects
chronic diarrhea decreased appetite 9 more
Total evaluations
3
Perceived effectiveness
for human immunodeficiency virus (HIV) (3 evaluations)
Side effects
diarrhea
Total evaluations
3
Treatment name(s)

(Norvir)
Perceived effectiveness
for human immunodeficiency virus (HIV) (1 evaluation)
Side effects
acid reflux
Total evaluations
1
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with human immunodeficiency virus (HIV), who reported starting treatments within the last 5 years.
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Who has human immunodeficiency virus (HIV) on PatientsLikeMe?

  • 2 new patients joined this month
  • 3826 say HIV is their primary condition

Age
Age Proportion # of patients
<20 5
20s 111
30s 554
40s 770
50s 896
60s 437
70+ 101
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 26
20-29 years 214
30-39 years 220
40-49 years 101
50-59 years 35
60-69 years 3
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 2148
Female 745

Types
Condition Types Proportion # of patients
HIV-1: Group M: CRF 102
HIV-1: Group M: Type A1 242
HIV-1: Group M: Type A2 19
HIV-1: Group M: Type A3 0
HIV-1: Group M: Type A4 3
HIV-1: Group M: Type A6 0
HIV-1: Group M: Type B 120
HIV-1: Group M: Type C 14
HIV-1: Group M: Type D 10
HIV-1: Group M: Type F1 11
HIV-1: Group M: Type F2 5
HIV-1: Group M: Type G 6
HIV-1: Group M: Type H 5
HIV-1: Group M: Type J 1
HIV-1: Group M: Type K 3
HIV-1: Group N 6
HIV-1: Group O 35
HIV-1: Group P 1
HIV-2 30
HIV subtype not listed 6
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1206
Not Diagnosed 47

These charts show data from HIV patients who have completed their condition history
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