Fibromuscular dysplasia
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is fibromuscular dysplasia?
Fibromuscular Dysplasia is an abnormal cluster of cells growing in the wall of the blood vessel. This cluster causes narrowing, restricting blood flow which can cause damage to the organs. It looks like a “string of beads” pattern caused by the alternating narrowing and enlarging of the artery.
Common symptoms reported by people with fibromuscular dysplasia
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with fibromuscular dysplasia
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with fibromuscular dysplasia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with fibromuscular dysplasia
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fibromuscular dysplasia
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with fibromuscular dysplasia, who reported starting treatments within the last 5 years.
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Who has fibromuscular dysplasia on PatientsLikeMe?
- 43 patients have this condition
- 0 new patients joined this month
- 26 say fibromuscular dysplasia is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 0 | |
| 30s | 2 | |
| 40s | 10 | |
| 50s | 9 | |
| 60s | 14 | |
| 70+ | 5 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 2 | |
| 20-29 years | 1 | |
| 30-39 years | 2 | |
| 40-49 years | 3 | |
| 50-59 years | 5 | |
| 60-69 years | 1 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 2 | |
| Female | 39 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 20 | |
| Not Diagnosed | 1 |
These charts show data from fibromuscular dysplasia patients who have completed their condition history
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