Early onset dementia

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What is early onset dementia?

Early onset dementia is the term used when Alzheimer's disease is diagnosed before the age of 65. Approximately half of the cases of early onset Alzheimer's disease are Familial Alzheimer's disease, where a genetic predisposition leads to the disease.

Common symptoms reported by people with early onset dementia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for early onset dementia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Aricept)
Type
Prescription Drug
How many have tried
47
Tried for
early onset dementia (2)
Treatment name(s)

(Exelon Patch)
Type
Prescription Drug
How many have tried
14
Tried for
early onset dementia (1)

Data from patients with early onset dementia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with early onset dementia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Aricept)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
early onset dementia (2)
Treatment name(s)

(Exelon Patch)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
early onset dementia (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with early onset dementia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has early onset dementia on PatientsLikeMe?

  • 0 new patients joined this month
  • 132 say early onset dementia is their primary condition

Age
Age Proportion # of patients
<20 1
20s 7
30s 8
40s 24
50s 44
60s 61
70+ 54
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 7
30-39 years 10
40-49 years 14
50-59 years 26
60-69 years 9
70+ years 2

Distribution of sex

Sex
Sex Proportion # of patients
Male 76
Female 126

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 65
Not Diagnosed 20

These charts show data from early onset dementia patients who have completed their condition history
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