Diabetes type 1

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is diabetes type 1?

Type 1 diabetes, usually diagnosed in children and young adults, can occur at any age when the pancreas does not produce insulin, a hormone needed to control the body's blood sugar levels. It requires daily monitoring of blood sugar, insulin therapy, diet modification and exercise.

Common symptoms reported by people with diabetes type 1

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for diabetes type 1

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Lantus)
Type
Prescription Drug
How many have tried
1284
Tried for
diabetes type 1 (6)
Treatment name(s)

(Humalog)
Type
Prescription Drug
How many have tried
1171
Tried for
diabetes type 1 (4)
Treatment name(s)

(Novolog)
Type
Prescription Drug
How many have tried
1245
Tried for
diabetes type 1 (3)
Treatment name(s)

(Humulin R)
Type
Prescription Drug
How many have tried
725
Tried for
diabetes type 1 (1)

Data from patients with diabetes type 1, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with diabetes type 1

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Lantus)
Perceived effectiveness
for diabetes type 1 (5 evaluations)
Side effects
acidic taste in mouth nausea
Total evaluations
5
Tried for
diabetes type 1 (6)
Treatment name(s)

(Humalog)
Perceived effectiveness
for diabetes type 1 (4 evaluations)
Side effects
elevated blood sugar (hyperglycemia) low blood sugar (hypoglycemia)
Total evaluations
4
Tried for
diabetes type 1 (4)
Treatment name(s)

(Novolog)
Perceived effectiveness
for diabetes type 1 (1 evaluation)
Side effects
low blood sugar (hypoglycemia)
Total evaluations
1
Tried for
diabetes type 1 (3)
Treatment name(s)

(Humulin R)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
diabetes type 1 (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with diabetes type 1, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has diabetes type 1 on PatientsLikeMe?

  • 8 new patients joined this month
  • 3170 say diabetes type 1 is their primary condition

Age
Age Proportion # of patients
<20 68
20s 388
30s 794
40s 846
50s 979
60s 541
70+ 192
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 711
20-29 years 289
30-39 years 163
40-49 years 97
50-59 years 66
60-69 years 16
70+ years 2

Distribution of sex

Sex
Sex Proportion # of patients
Male 1376
Female 2478

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1820
Not Diagnosed 83

These charts show data from diabetes type 1 patients who have completed their condition history
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