Antiphospholipid antibody syndrome

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What is antiphospholipid antibody syndrome?

Antiphospholipid syndrome, Hughes syndrome, or antiphospholipid antibody syndrome is a disorder that causes blood clots (thrombosis) to form in the arteries, veins, and vital organs.

Common symptoms reported by people with antiphospholipid antibody syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for antiphospholipid antibody syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Aspirin Low Dose)
Type
Over the Counter Drug
How many have tried
234
Treatment name(s)

(Coumadin)
Type
Prescription Drug
How many have tried
323
Treatment name(s)

(Lovenox)
Type
Prescription Drug
How many have tried
126

Data from patients with antiphospholipid antibody syndrome, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with antiphospholipid antibody syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Aspirin Low Dose)
Perceived effectiveness
for antiphospholipid antibody syndrome (1 evaluation)
Side effects
Total evaluations
1
Treatment name(s)

(Coumadin)
Perceived effectiveness
for antiphospholipid antibody syndrome (2 evaluations)
Side effects
change in taste unintentional weight loss 1 more
Total evaluations
2
Treatment name(s)

(Lovenox)
Perceived effectiveness
for antiphospholipid antibody syndrome (2 evaluations)
Side effects
bruising excessive bleeding
Total evaluations
2
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with antiphospholipid antibody syndrome, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has antiphospholipid antibody syndrome on PatientsLikeMe?

  • 4 new patients joined this month
  • 356 say antiphospholipid antibody syndrome is their primary condition

Age
Age Proportion # of patients
<20 1
20s 35
30s 111
40s 203
50s 231
60s 111
70+ 33
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 53
20-29 years 104
30-39 years 95
40-49 years 52
50-59 years 16
60-69 years 6
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 67
Female 668

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 458
Not Diagnosed 14

These charts show data from antiphospholipid antibody syndrome patients who have completed their condition history
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