Spastic paraplegia of unknown origin

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What is spastic paraplegia of unknown origin?

Spastic paraplegia of unknown origin is a movement disorder in which there is progressive weakness and spasticity (stiffness) of the legs. The underlying cause is not known.

Common symptoms reported by people with spastic paraplegia of unknown origin

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with spastic paraplegia of unknown origin

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Drop foot brace)
Type
Equipment
How many have tried
1
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Botox)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Home Physical Therapy)
Type
Physical Therapy
How many have tried
1
Treatment name(s)
Type
Physical Therapy
How many have tried
1
Treatment name(s)
Type
Equipment
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Hand splint)
Type
Equipment
How many have tried
1
Treatment name(s)

(Permobil C300)
Type
Equipment
How many have tried
1
Tried for
fatigue (1)

Data from patients with spastic paraplegia of unknown origin, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with spastic paraplegia of unknown origin

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Drop foot brace)
Perceived effectiveness
for spastic paraplegia of unknown origin (1 evaluation)
Side effects
muscle fatigue
Total evaluations
1
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for spastic paraplegia of unknown origin (1 evaluation)
Side effects
brain fog forgetfulness 1 more
Total evaluations
1
Treatment name(s)

(Botox)
Perceived effectiveness
for spastic paraplegia of unknown origin (1 evaluation)
Side effects
Total evaluations
1
Treatment name(s)

(Home Physical Therapy)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)
Perceived effectiveness
for spastic paraplegia of unknown origin (1 evaluation)
Side effects
Total evaluations
1
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(Hand splint)
Perceived effectiveness
No evaluations
Side effects
increased spasticity in early morning
Total evaluations
1
Treatment name(s)

(Permobil C300)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with spastic paraplegia of unknown origin, who reported starting treatments within the last 5 years.
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Who has spastic paraplegia of unknown origin on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 1
30s 1
40s 7
50s 13
60s 5
70+ 5
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6
20-29 years 0
30-39 years 2
40-49 years 4
50-59 years 3
60-69 years 0
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 11
Female 25

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 19
Not Diagnosed 2

These charts show data from spastic paraplegia of unknown origin patients who have completed their condition history
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