Raynaud's disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Raynaud's disease?

Raynaud's disease is a vascular disorder characterized by ischemic attacks called, Raynaud's phenomenon, in the fingers, toes, ears, or nose, associated with pain and pallor. The attacks occur during exposure to cold temperatures or stress.

Common symptoms reported by people with Raynaud's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Raynaud's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Norvasc)
Type
Prescription Drug
How many have tried
28
Tried for
Raynaud's disease (28)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
23
Tried for
Pain (23)
Treatment name(s)

(Procardia XL)
Type
Prescription Drug
How many have tried
21
Tried for
Raynaud's disease (21)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
16
Tried for
Pain (15) Raynaud's disease (1)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
15
Tried for
Insomnia (13) Pain (9)
2 more
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
12
Tried for
Depressed mood (11) Pain (2)
1 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
11
Tried for
Pain (10) Insomnia (1)
Treatment name(s)

(Oxycodone IR)
Type
Prescription Drug
How many have tried
11
Tried for
Pain (11)
Treatment name(s)

(Desyrel)
Type
Prescription Drug
How many have tried
11
Tried for
Insomnia (11)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
10
Tried for
Depressed mood (10) Fatigue (2)

Data from patients with Raynaud's disease, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with Raynaud's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Norvasc)
Perceived effectiveness
for Raynaud's disease (11 evaluations)
Side effects
Swelling in legs, feet and ankles Dizziness 3 more
Total evaluations
13
Tried for
Raynaud's disease (28)
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (16 evaluations)
Side effects
Sleepiness Brain fog 11 more
Total evaluations
17
Tried for
Pain (23)
Treatment name(s)

(Procardia XL)
Perceived effectiveness
for Raynaud's disease (5 evaluations)
Side effects
Dizziness Flushing 1 more
Total evaluations
5
Tried for
Raynaud's disease (21)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (4 evaluations)
Side effects
Abdominal bloating Abdominal pain 4 more
Total evaluations
4
Tried for
Pain (15) Raynaud's disease (1)
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (9 evaluations)
Side effects
Dry mouth at night Groggy in morning 5 more
Total evaluations
12
Tried for
Insomnia (13) Pain (9)
2 more
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Depressed mood (18 evaluations)
Side effects
Constant tiredness Decreased sex drive (libido) 3 more
Total evaluations
18
Tried for
Depressed mood (11) Pain (2)
1 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
for Pain (11 evaluations)
Side effects
Drowsiness Excessive daytime sleepiness (somnolence) 1 more
Total evaluations
10
Tried for
Pain (10) Insomnia (1)
Treatment name(s)

(Oxycodone IR)
Perceived effectiveness
for Pain (3 evaluations)
Side effects
Drowsiness Withdrawal effects
Total evaluations
3
Tried for
Pain (11)
Treatment name(s)

(Desyrel)
Perceived effectiveness
for Insomnia (7 evaluations)
Side effects
Dizziness Acute hearing 9 more
Total evaluations
7
Tried for
Insomnia (11)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
for Depressed mood (6 evaluations)
Side effects
Constant brain fog Drowsy in a.m. 5 more
Total evaluations
7
Tried for
Depressed mood (10) Fatigue (2)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Raynaud's disease, who reported starting treatments within the last 5 years.
Last updated:

Who has Raynaud's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 10
20s 120
30s 339
40s 578
50s 535
60s 257
70+ 55
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 304
20-29 years 257
30-39 years 358
40-49 years 242
50-59 years 106
60-69 years 23
70+ years 4

Sex

Distribution of sex

94% Female
6% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1,483
Not Diagnosed 94

These charts show data from Raynaud's disease patients who have completed their condition history
Last updated: