Human immunodeficiency virus (HIV)

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is human immunodeficiency virus (HIV)?

HIV (human immunodeficiency virus) is a viral infection which can lead to acquired immunodeficiency syndrome (AIDS). HIV specifically attacks CD4 cells, which are part of the body's immune system. With treatment, often called antiretroviral therapy (ART), HIV infection can be well-controlled.

Common symptoms reported by people with human immunodeficiency virus (HIV)

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with human immunodeficiency virus (HIV)

Treatment name(s)
Type
How many have tried
Tried for
Type
Prescription Drug
How many have tried
19
Treatment name(s)
Type
Prescription Drug
How many have tried
17
Treatment name(s)

(Tivicay)
Type
Prescription Drug
How many have tried
16
Treatment name(s)

(Truvada)
Type
Prescription Drug
How many have tried
16
Type
Prescription Drug
How many have tried
15
Treatment name(s)

(Complera)
Type
Prescription Drug
How many have tried
15
Treatment name(s)

(Isentress)
Type
Prescription Drug
How many have tried
11
Treatment name(s)

(Norvir)
Type
Prescription Drug
How many have tried
10
Treatment name(s)

(Prezista)
Type
Prescription Drug
How many have tried
9
Treatment name(s)

(Descovy)
Type
Prescription Drug
How many have tried
8

Data from patients with human immunodeficiency virus (HIV), who reported starting treatments within the last 5 years.
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Compare treatments taken by people with human immunodeficiency virus (HIV)

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for human immunodeficiency virus (HIV) (8 evaluations)
Side effects
nausea abdominal bloating 14 more
Total evaluations
9
Treatment name(s)
Perceived effectiveness
for human immunodeficiency virus (HIV) (17 evaluations)
Side effects
decreased alcohol tolerance depressed mood 3 more
Total evaluations
17
Treatment name(s)

(Tivicay)
Perceived effectiveness
for human immunodeficiency virus (HIV) (7 evaluations)
Side effects
Total evaluations
7
Treatment name(s)

(Truvada)
Perceived effectiveness
for human immunodeficiency virus (HIV) (8 evaluations)
Side effects
chronic diarrhea sleep problems
Total evaluations
8
Perceived effectiveness
for human immunodeficiency virus (HIV) (6 evaluations)
Side effects
chronic kidney disease diarrhea 1 more
Total evaluations
6
Treatment name(s)

(Complera)
Perceived effectiveness
for human immunodeficiency virus (HIV) (11 evaluations)
Side effects
acid reflux decreased appetite 3 more
Total evaluations
11
Treatment name(s)

(Isentress)
Perceived effectiveness
for human immunodeficiency virus (HIV) (5 evaluations)
Side effects
inability to sleep
Total evaluations
5
Treatment name(s)

(Norvir)
Perceived effectiveness
for human immunodeficiency virus (HIV) (7 evaluations)
Side effects
diarrhea GI problems
Total evaluations
7
Treatment name(s)

(Prezista)
Perceived effectiveness
for human immunodeficiency virus (HIV) (8 evaluations)
Side effects
diarrhea GI problems 3 more
Total evaluations
8
Treatment name(s)

(Descovy)
Perceived effectiveness
for human immunodeficiency virus (HIV) (3 evaluations)
Side effects
excessive thirst (polydipsia) dizziness 5 more
Total evaluations
3
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with human immunodeficiency virus (HIV), who reported starting treatments within the last 5 years.
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Who has human immunodeficiency virus (HIV) on PatientsLikeMe?


Age
Age Proportion # of patients
<20 6
20s 141
30s 610
40s 742
50s 845
60s 356
70+ 70
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 26
20-29 years 212
30-39 years 215
40-49 years 98
50-59 years 34
60-69 years 3
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 2,082
Female 708

Types
Condition Types Proportion # of patients
HIV-1: Group M: CRF 98
HIV-1: Group M: Type A1 234
HIV-1: Group M: Type A2 19
HIV-1: Group M: Type B 118
HIV-1: Group M: Type C 12
HIV-1: Group M: Type D 10
HIV-1: Group M: Type F1 10
HIV-1: Group M: Type F2 5
HIV-1: Group M: Type G 6
HIV-1: Group M: Type H 4
HIV-1: Group M: Type J 1
HIV-1: Group M: Type K 3
HIV-1: Group N 6
HIV-1: Group O 35
HIV-2 29
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1,202
Not Diagnosed 47

These charts show data from HIV patients who have completed their condition history
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