HIV (Human Immunodeficiency Virus)

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is HIV (Human Immunodeficiency Virus)?

HIV (human immunodeficiency virus) is a viral infection which can lead to acquired immunodeficiency syndrome (AIDS). HIV specifically attacks CD4 cells, which are part of the body's immune system. With treatment, often called antiretroviral therapy (ART), HIV infection can be well-controlled.

Common symptoms reported by people with HIV (Human Immunodeficiency Virus)

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with HIV (Human Immunodeficiency Virus)

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Type
Prescription Drug
How many have tried
33
Check to add this treatment to your profile
Treatment name(s)

(Truvada)
Type
Prescription Drug
How many have tried
28
Check to add this treatment to your profile
Treatment name(s)

(Atripla)
Type
Prescription Drug
How many have tried
25
Check to add this treatment to your profile
Treatment name(s)

(Complera)
Type
Prescription Drug
How many have tried
24
Check to add this treatment to your profile
Treatment name(s)

(Sustiva)
Type
Prescription Drug
How many have tried
19
Check to add this treatment to your profile
Treatment name(s)

(Isentress)
Type
Prescription Drug
How many have tried
19
Check to add this treatment to your profile
Treatment name(s)

(Norvir)
Type
Prescription Drug
How many have tried
18
Check to add this treatment to your profile
Treatment name(s)

(Epzicom)
Type
Prescription Drug
How many have tried
17
Check to add this treatment to your profile
Treatment name(s)

(Prezista)
Type
Prescription Drug
How many have tried
13
Check to add this treatment to your profile
Treatment name(s)

(Tivicay)
Type
Prescription Drug
How many have tried
13

Data from patients with HIV (Human Immunodeficiency Virus), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with HIV (Human Immunodeficiency Virus)

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Check to add this treatment to your profile
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (13 evaluations)
Side effects
Diarrhea Flatulence 14 more
Total evaluations
14
Check to add this treatment to your profile
Treatment name(s)

(Truvada)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (14 evaluations)
Side effects
Diarrhea Chronic Diarrhea 10 more
Total evaluations
14
Check to add this treatment to your profile
Treatment name(s)

(Atripla)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (24 evaluations)
Side effects
Vivid dreams Dizziness 18 more
Total evaluations
24
Check to add this treatment to your profile
Treatment name(s)

(Complera)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (17 evaluations)
Side effects
Acid reflux Burning nerve pain in right foot 9 more
Total evaluations
17
Check to add this treatment to your profile
Treatment name(s)

(Sustiva)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (14 evaluations)
Side effects
Dizziness Dizziness and feeling faint 3 more
Total evaluations
14
Check to add this treatment to your profile
Treatment name(s)

(Isentress)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (11 evaluations)
Side effects
Decreased appetite Diarrhea 10 more
Total evaluations
11
Check to add this treatment to your profile
Treatment name(s)

(Norvir)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (12 evaluations)
Side effects
Diarrhea GI problems
Total evaluations
12
Check to add this treatment to your profile
Treatment name(s)

(Epzicom)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (10 evaluations)
Side effects
Nausea Abdominal cramps 4 more
Total evaluations
10
Check to add this treatment to your profile
Treatment name(s)

(Prezista)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (10 evaluations)
Side effects
Diarrhea GI problems 3 more
Total evaluations
10
Check to add this treatment to your profile
Treatment name(s)

(Tivicay)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (6 evaluations)
Side effects
Total evaluations
6
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with HIV (Human Immunodeficiency Virus), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Who has HIV (Human Immunodeficiency Virus) on PatientsLikeMe?


Age
Age Proportion # of patients
<20 6
20s 184
30s 624
40s 731
50s 750
60s 285
70+ 49
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 24
20-29 years 201
30-39 years 197
40-49 years 93
50-59 years 29
60-69 years 3
70+ years 0

Sex

Distribution of sex

24% Female
76% Male

Types
Condition Types Proportion # of patients
HIV-1: Group M: CRF 93
HIV-1: Group M: Type A1 231
HIV-1: Group M: Type A2 18
HIV-1: Group M: Type B 113
HIV-1: Group M: Type C 11
HIV-1: Group M: Type D 9
HIV-1: Group M: Type F1 9
HIV-1: Group M: Type F2 5
HIV-1: Group M: Type G 6
HIV-1: Group M: Type H 4
HIV-1: Group M: Type J 1
HIV-1: Group M: Type K 3
HIV-1: Group N 6
HIV-1: Group O 34
HIV-2 25
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1,121
Not Diagnosed 42

These charts show data from HIV patients who have completed their condition history
Last updated: