HIV (Human Immunodeficiency Virus)

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is HIV (Human Immunodeficiency Virus)?

HIV (human immunodeficiency virus) is a viral infection which can lead to acquired immunodeficiency syndrome (AIDS). HIV specifically attacks CD4 cells, which are part of the body's immune system. With treatment, often called antiretroviral therapy (ART), HIV infection can be well-controlled.

Common symptoms reported by people with HIV (Human Immunodeficiency Virus)

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with HIV (Human Immunodeficiency Virus)

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Truvada)
Type
Prescription Drug
How many have tried
56
Check to add this treatment to your profile
Treatment name(s)

(Atripla)
Type
Prescription Drug
How many have tried
51
Check to add this treatment to your profile
Treatment name(s)

(Norvir)
Type
Prescription Drug
How many have tried
38
Check to add this treatment to your profile
Treatment name(s)
Type
Prescription Drug
How many have tried
31
Check to add this treatment to your profile
Treatment name(s)

(Isentress)
Type
Prescription Drug
How many have tried
29
Check to add this treatment to your profile
Treatment name(s)

(Complera)
Type
Prescription Drug
How many have tried
28
Check to add this treatment to your profile
Treatment name(s)

(Sustiva)
Type
Prescription Drug
How many have tried
27
Check to add this treatment to your profile
Treatment name(s)

(Epzicom)
Type
Prescription Drug
How many have tried
24
Check to add this treatment to your profile
Treatment name(s)

(Prezista)
Type
Prescription Drug
How many have tried
20
Check to add this treatment to your profile
Treatment name(s)

(Reyataz)
Type
Prescription Drug
How many have tried
18

Data from patients with HIV (Human Immunodeficiency Virus), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with HIV (Human Immunodeficiency Virus)

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Truvada)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (33 evaluations)
Side effects
Diarrhea Fatigue 21 more
How many evaluations
33
Check to add this treatment to your profile
Treatment name(s)

(Atripla)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (37 evaluations)
Side effects
Vivid dreams Dizziness 20 more
How many evaluations
37
Check to add this treatment to your profile
Treatment name(s)

(Norvir)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (21 evaluations)
Side effects
Diarrhea Elevated liver enzymes 1 more
How many evaluations
21
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (11 evaluations)
Side effects
Diarrhea Gas 8 more
How many evaluations
12
Check to add this treatment to your profile
Treatment name(s)

(Isentress)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (15 evaluations)
Side effects
Decreased appetite Diarrhea 12 more
How many evaluations
15
Check to add this treatment to your profile
Treatment name(s)

(Complera)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (18 evaluations)
Side effects
Acid reflux Burning nerve pain right foot 7 more
How many evaluations
18
Check to add this treatment to your profile
Treatment name(s)

(Sustiva)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (13 evaluations)
Side effects
Dizziness Abdominal pain 4 more
How many evaluations
13
Check to add this treatment to your profile
Treatment name(s)

(Epzicom)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (10 evaluations)
Side effects
Abdominal cramps Fatigue 2 more
How many evaluations
10
Check to add this treatment to your profile
Treatment name(s)

(Prezista)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (9 evaluations)
Side effects
Diarrhea GI problems
How many evaluations
9
Check to add this treatment to your profile
Treatment name(s)

(Reyataz)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (15 evaluations)
Side effects
Jaundice yellow eyes 5 more
How many evaluations
20

Data from patients with HIV (Human Immunodeficiency Virus), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has HIV (Human Immunodeficiency Virus) on PatientsLikeMe?


Age
Age Proportion # of patients
<20 10
20s 224
30s 625
40s 706
50s 688
60s 229
70+ 36

Sex

Distribution of sex

24% Female
76% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 22
20-29 years 183
30-39 years 180
40-49 years 86
50-59 years 30
60-69 years 2
70+ years 0

Types
Condition Types Proportion # of patients
HIV-1: Group M: CRF 90
HIV-1: Group M: Type A1 222
HIV-1: Group M: Type A2 17
HIV-1: Group M: Type B 109
HIV-1: Group M: Type C 10
HIV-1: Group M: Type D 8
HIV-1: Group M: Type F1 8
HIV-1: Group M: Type F2 4
HIV-1: Group M: Type G 5
HIV-1: Group M: Type H 3
HIV-1: Group M: Type J 1
HIV-1: Group M: Type K 2
HIV-1: Group N 6
HIV-1: Group O 32
HIV-2 24
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1,058
Not Diagnosed 41

These charts show data from HIV patients who have completed their condition history
Last updated: