HIV (Human Immunodeficiency Virus)

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is HIV (Human Immunodeficiency Virus)?

HIV (human immunodeficiency virus) is a viral infection which can lead to acquired immunodeficiency syndrome (AIDS). HIV specifically attacks CD4 cells, which are part of the body's immune system. With treatment, often called antiretroviral therapy (ART), HIV infection can be well-controlled.

Common symptoms reported by people with HIV (Human Immunodeficiency Virus)

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with HIV (Human Immunodeficiency Virus)

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Atripla)
Type
Prescription Drug
How many have tried
71
Check to add this treatment to your profile
Treatment name(s)

(Truvada)
Type
Prescription Drug
How many have tried
69
Check to add this treatment to your profile
Treatment name(s)

(Norvir)
Type
Prescription Drug
How many have tried
51
Check to add this treatment to your profile
Treatment name(s)

(Isentress)
Type
Prescription Drug
How many have tried
41
Check to add this treatment to your profile
Treatment name(s)

(Sustiva)
Type
Prescription Drug
How many have tried
33
Check to add this treatment to your profile
Treatment name(s)

(Prezista)
Type
Prescription Drug
How many have tried
30
Check to add this treatment to your profile
Treatment name(s)

(Epzicom)
Type
Prescription Drug
How many have tried
28
Check to add this treatment to your profile
Treatment name(s)

(Reyataz)
Type
Prescription Drug
How many have tried
26
Check to add this treatment to your profile
Treatment name(s)

(Complera)
Type
Prescription Drug
How many have tried
24
Check to add this treatment to your profile
Treatment name(s)
Type
Prescription Drug
How many have tried
24

Data from patients with HIV (Human Immunodeficiency Virus), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with HIV (Human Immunodeficiency Virus)

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Atripla)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (57 evaluations)
Side effects
Vivid dreams Dizziness 37 more
How many evaluations
57
Check to add this treatment to your profile
Treatment name(s)

(Truvada)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (34 evaluations)
Side effects
Diarrhea Fatigue 21 more
How many evaluations
34
Check to add this treatment to your profile
Treatment name(s)

(Norvir)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (24 evaluations)
Side effects
Diarrhea Elevated liver enzymes 1 more
How many evaluations
24
Check to add this treatment to your profile
Treatment name(s)

(Isentress)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (19 evaluations)
Side effects
Decreased appetite Diarrhea 13 more
How many evaluations
19
Check to add this treatment to your profile
Treatment name(s)

(Sustiva)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (16 evaluations)
Side effects
Dizziness Vivid dreams 4 more
How many evaluations
16
Check to add this treatment to your profile
Treatment name(s)

(Prezista)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (13 evaluations)
Side effects
Diarrhea GI problems
How many evaluations
13
Check to add this treatment to your profile
Treatment name(s)

(Epzicom)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (11 evaluations)
Side effects
Abdominal cramps Fatigue 2 more
How many evaluations
11
Check to add this treatment to your profile
Treatment name(s)

(Reyataz)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (19 evaluations)
Side effects
yellow eyes Jaundice 5 more
How many evaluations
24
Check to add this treatment to your profile
Treatment name(s)

(Complera)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (16 evaluations)
Side effects
Burning nerve pain right foot Increased insomnia 4 more
How many evaluations
16
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (7 evaluations)
Side effects
Abdominal bloating Gas 3 more
How many evaluations
8

Data from patients with HIV (Human Immunodeficiency Virus), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has HIV (Human Immunodeficiency Virus) on PatientsLikeMe?


Age
Age Proportion # of patients
<20 9
20s 240
30s 626
40s 702
50s 641
60s 211
70+ 27

Sex

Distribution of sex

24% Female
76% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 21
20-29 years 173
30-39 years 168
40-49 years 81
50-59 years 28
60-69 years 2
70+ years 0

Types
Condition Types Proportion # of patients
HIV-1: Group M: CRF 82
HIV-1: Group M: Type A1 221
HIV-1: Group M: Type A2 16
HIV-1: Group M: Type B 104
HIV-1: Group M: Type C 10
HIV-1: Group M: Type D 7
HIV-1: Group M: Type F1 8
HIV-1: Group M: Type F2 3
HIV-1: Group M: Type G 5
HIV-1: Group M: Type H 3
HIV-1: Group M: Type J 1
HIV-1: Group M: Type K 2
HIV-1: Group N 6
HIV-1: Group O 32
HIV-2 23
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1,011
Not Diagnosed 39

These charts show data from HIV patients who have completed their condition history
Last updated: