HIV (Human Immunodeficiency Virus)

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is HIV (Human Immunodeficiency Virus)?

HIV (human immunodeficiency virus) is a viral infection which can lead to acquired immunodeficiency syndrome (AIDS). HIV specifically attacks CD4 cells, which are part of the body's immune system. With treatment, often called antiretroviral therapy (ART), HIV infection can be well-controlled.

Common symptoms reported by people with HIV (Human Immunodeficiency Virus)

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with HIV (Human Immunodeficiency Virus)

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Type
Prescription Drug
How many have tried
33
Check to add this treatment to your profile
Treatment name(s)

(Truvada)
Type
Prescription Drug
How many have tried
31
Check to add this treatment to your profile
Treatment name(s)

(Atripla)
Type
Prescription Drug
How many have tried
29
Check to add this treatment to your profile
Treatment name(s)

(Complera)
Type
Prescription Drug
How many have tried
26
Check to add this treatment to your profile
Treatment name(s)

(Sustiva)
Type
Prescription Drug
How many have tried
20
Check to add this treatment to your profile
Treatment name(s)

(Isentress)
Type
Prescription Drug
How many have tried
20
Check to add this treatment to your profile
Treatment name(s)

(Norvir)
Type
Prescription Drug
How many have tried
20
Check to add this treatment to your profile
Treatment name(s)

(Epzicom)
Type
Prescription Drug
How many have tried
16
Check to add this treatment to your profile
Treatment name(s)

(Prezista)
Type
Prescription Drug
How many have tried
12
Check to add this treatment to your profile
Treatment name(s)

(Tivicay)
Type
Prescription Drug
How many have tried
12

Data from patients with HIV (Human Immunodeficiency Virus), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with HIV (Human Immunodeficiency Virus)

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (13 evaluations)
Side effects
Diarrhea Flatulence 14 more
How many evaluations
14
Check to add this treatment to your profile
Treatment name(s)

(Truvada)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (14 evaluations)
Side effects
Diarrhea Chronic Diarrhea 10 more
How many evaluations
14
Check to add this treatment to your profile
Treatment name(s)

(Atripla)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (28 evaluations)
Side effects
Vivid dreams Dizziness 21 more
How many evaluations
28
Check to add this treatment to your profile
Treatment name(s)

(Complera)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (20 evaluations)
Side effects
Acid reflux Burning nerve pain in right foot 9 more
How many evaluations
20
Check to add this treatment to your profile
Treatment name(s)

(Sustiva)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (14 evaluations)
Side effects
Dizziness Dizziness and feeling faint 3 more
How many evaluations
14
Check to add this treatment to your profile
Treatment name(s)

(Isentress)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (11 evaluations)
Side effects
Decreased appetite Diarrhea 10 more
How many evaluations
11
Check to add this treatment to your profile
Treatment name(s)

(Norvir)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (10 evaluations)
Side effects
Diarrhea GI problems
How many evaluations
10
Check to add this treatment to your profile
Treatment name(s)

(Epzicom)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (9 evaluations)
Side effects
Nausea Abdominal cramps 1 more
How many evaluations
9
Check to add this treatment to your profile
Treatment name(s)

(Prezista)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (7 evaluations)
Side effects
Diarrhea GI problems
How many evaluations
7
Check to add this treatment to your profile
Treatment name(s)

(Tivicay)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (6 evaluations)
Side effects
How many evaluations
6

Data from patients with HIV (Human Immunodeficiency Virus), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has HIV (Human Immunodeficiency Virus) on PatientsLikeMe?


Age
Age Proportion # of patients
<20 6
20s 195
30s 614
40s 725
50s 743
60s 268
70+ 45

Sex

Distribution of sex

24% Female
76% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 23
20-29 years 194
30-39 years 194
40-49 years 90
50-59 years 28
60-69 years 2
70+ years 0

Types
Condition Types Proportion # of patients
HIV-1: Group M: CRF 92
HIV-1: Group M: Type A1 228
HIV-1: Group M: Type A2 18
HIV-1: Group M: Type B 111
HIV-1: Group M: Type C 11
HIV-1: Group M: Type D 9
HIV-1: Group M: Type F1 9
HIV-1: Group M: Type F2 5
HIV-1: Group M: Type G 5
HIV-1: Group M: Type H 4
HIV-1: Group M: Type J 1
HIV-1: Group M: Type K 3
HIV-1: Group N 6
HIV-1: Group O 34
HIV-2 25
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1,103
Not Diagnosed 41

These charts show data from HIV patients who have completed their condition history
Last updated: