HIV (Human Immunodeficiency Virus)

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is HIV (Human Immunodeficiency Virus)?

HIV (human immunodeficiency virus) is a viral infection which can lead to acquired immunodeficiency syndrome (AIDS). HIV specifically attacks CD4 cells, which are part of the body's immune system. With treatment, often called antiretroviral therapy (ART), HIV infection can be well-controlled.

Common symptoms reported by people with HIV (Human Immunodeficiency Virus)

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with HIV (Human Immunodeficiency Virus)

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Truvada)
Type
Prescription Drug
How many have tried
66
Check to add this treatment to your profile
Treatment name(s)

(Atripla)
Type
Prescription Drug
How many have tried
65
Check to add this treatment to your profile
Treatment name(s)

(Norvir)
Type
Prescription Drug
How many have tried
49
Check to add this treatment to your profile
Treatment name(s)

(Isentress)
Type
Prescription Drug
How many have tried
38
Check to add this treatment to your profile
Treatment name(s)

(Sustiva)
Type
Prescription Drug
How many have tried
32
Check to add this treatment to your profile
Treatment name(s)

(Epzicom)
Type
Prescription Drug
How many have tried
29
Check to add this treatment to your profile
Treatment name(s)

(Prezista)
Type
Prescription Drug
How many have tried
28
Check to add this treatment to your profile
Treatment name(s)
Type
Prescription Drug
How many have tried
27
Check to add this treatment to your profile
Treatment name(s)

(Reyataz)
Type
Prescription Drug
How many have tried
25
Check to add this treatment to your profile
Treatment name(s)

(Complera)
Type
Prescription Drug
How many have tried
24

Data from patients with HIV (Human Immunodeficiency Virus), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with HIV (Human Immunodeficiency Virus)

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Truvada)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (33 evaluations)
Side effects
Diarrhea Fatigue 21 more
How many evaluations
33
Check to add this treatment to your profile
Treatment name(s)

(Atripla)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (54 evaluations)
Side effects
Vivid dreams Dizziness 36 more
How many evaluations
54
Check to add this treatment to your profile
Treatment name(s)

(Norvir)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (24 evaluations)
Side effects
Diarrhea Elevated liver enzymes 1 more
How many evaluations
24
Check to add this treatment to your profile
Treatment name(s)

(Isentress)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (18 evaluations)
Side effects
Decreased appetite Diarrhea 12 more
How many evaluations
18
Check to add this treatment to your profile
Treatment name(s)

(Sustiva)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (15 evaluations)
Side effects
Dizziness Abdominal pain 4 more
How many evaluations
15
Check to add this treatment to your profile
Treatment name(s)

(Epzicom)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (11 evaluations)
Side effects
Abdominal cramps Fatigue 2 more
How many evaluations
11
Check to add this treatment to your profile
Treatment name(s)

(Prezista)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (12 evaluations)
Side effects
Diarrhea GI problems
How many evaluations
12
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (8 evaluations)
Side effects
Gas Abdominal bloating 4 more
How many evaluations
9
Check to add this treatment to your profile
Treatment name(s)

(Reyataz)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (17 evaluations)
Side effects
Jaundice yellow eyes 5 more
How many evaluations
22
Check to add this treatment to your profile
Treatment name(s)

(Complera)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (16 evaluations)
Side effects
Burning nerve pain right foot Increased insomnia 4 more
How many evaluations
16

Data from patients with HIV (Human Immunodeficiency Virus), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has HIV (Human Immunodeficiency Virus) on PatientsLikeMe?


Age
Age Proportion # of patients
<20 10
20s 237
30s 627
40s 704
50s 651
60s 216
70+ 30

Sex

Distribution of sex

24% Female
76% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 21
20-29 years 175
30-39 years 170
40-49 years 82
50-59 years 29
60-69 years 2
70+ years 0

Types
Condition Types Proportion # of patients
HIV-1: Group M: CRF 83
HIV-1: Group M: Type A1 222
HIV-1: Group M: Type A2 16
HIV-1: Group M: Type B 105
HIV-1: Group M: Type C 10
HIV-1: Group M: Type D 7
HIV-1: Group M: Type F1 8
HIV-1: Group M: Type F2 4
HIV-1: Group M: Type G 5
HIV-1: Group M: Type H 3
HIV-1: Group M: Type J 1
HIV-1: Group M: Type K 2
HIV-1: Group N 6
HIV-1: Group O 32
HIV-2 23
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1,026
Not Diagnosed 40

These charts show data from HIV patients who have completed their condition history
Last updated: