HIV (Human Immunodeficiency Virus)

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is HIV (Human Immunodeficiency Virus)?

HIV infection refers to the spectrum of human immunodeficiency virus infections that range from asymptomatic seropositivity, thru AIDS-related complex (ARC), to acquired immunodeficiency syndrome (AIDS).

Common symptoms reported by people with HIV (Human Immunodeficiency Virus)

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with HIV (Human Immunodeficiency Virus)

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Truvada)
Type
Prescription Drug
How many have tried
75
Check to add this treatment to your profile
Treatment name(s)

(Atripla)
Type
Prescription Drug
How many have tried
74
Check to add this treatment to your profile
Treatment name(s)

(Norvir)
Type
Prescription Drug
How many have tried
57
Check to add this treatment to your profile
Treatment name(s)

(Isentress)
Type
Prescription Drug
How many have tried
51
Check to add this treatment to your profile
Treatment name(s)

(Prezista)
Type
Prescription Drug
How many have tried
34
Check to add this treatment to your profile
Treatment name(s)

(Sustiva)
Type
Prescription Drug
How many have tried
34
Check to add this treatment to your profile
Treatment name(s)

(Epzicom)
Type
Prescription Drug
How many have tried
29
Check to add this treatment to your profile
Treatment name(s)

(Reyataz)
Type
Prescription Drug
How many have tried
26
Check to add this treatment to your profile
Treatment name(s)

(Complera)
Type
Prescription Drug
How many have tried
23
Check to add this treatment to your profile
Treatment name(s)

(Viread)
Type
Prescription Drug
How many have tried
23

Data from patients with HIV (Human Immunodeficiency Virus), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with HIV (Human Immunodeficiency Virus)

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Truvada)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (39 evaluations)
Side effects
Diarrhea Fatigue 23 more
How many evaluations
39
Check to add this treatment to your profile
Treatment name(s)

(Atripla)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (58 evaluations)
Side effects
Vivid dreams Dizziness 37 more
How many evaluations
58
Check to add this treatment to your profile
Treatment name(s)

(Norvir)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (26 evaluations)
Side effects
Diarrhea Elevated liver enzymes 1 more
How many evaluations
26
Check to add this treatment to your profile
Treatment name(s)

(Isentress)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (21 evaluations)
Side effects
Headaches Chills 14 more
How many evaluations
23
Check to add this treatment to your profile
Treatment name(s)

(Prezista)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (13 evaluations)
Side effects
Diarrhea GI problems
How many evaluations
13
Check to add this treatment to your profile
Treatment name(s)

(Sustiva)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (16 evaluations)
Side effects
Dizziness Vivid dreams 4 more
How many evaluations
16
Check to add this treatment to your profile
Treatment name(s)

(Epzicom)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (11 evaluations)
Side effects
Abdominal cramps Fatigue 2 more
How many evaluations
11
Check to add this treatment to your profile
Treatment name(s)

(Reyataz)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (20 evaluations)
Side effects
yellow eyes Jaundice 6 more
How many evaluations
25
Check to add this treatment to your profile
Treatment name(s)

(Complera)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (16 evaluations)
Side effects
Burning nerve pain right foot Increased insomnia 4 more
How many evaluations
16
Check to add this treatment to your profile
Treatment name(s)

(Viread)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (6 evaluations)
Side effects
Diarrhea Flatulence 3 more
How many evaluations
6

Data from patients with HIV (Human Immunodeficiency Virus), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has HIV (Human Immunodeficiency Virus) on PatientsLikeMe?


Age
Age Proportion # of patients
<20 11
20s 243
30s 619
40s 694
50s 631
60s 203
70+ 26

Gender

Distribution of females vs. males

24% Females
76% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 21
20-29 years 168
30-39 years 166
40-49 years 80
50-59 years 28
60-69 years 2
70+ years 0

Types
Condition Types Proportion # of patients
HIV-1: Group M: CRF 83
HIV-1: Group M: Type A1 218
HIV-1: Group M: Type A2 16
HIV-1: Group M: Type B 104
HIV-1: Group M: Type C 10
HIV-1: Group M: Type D 6
HIV-1: Group M: Type F1 8
HIV-1: Group M: Type F2 3
HIV-1: Group M: Type G 5
HIV-1: Group M: Type H 3
HIV-1: Group M: Type J 1
HIV-1: Group M: Type K 2
HIV-1: Group N 6
HIV-1: Group O 32
HIV-2 22
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 993
Not Diagnosed 39

These charts show data from HIV patients who have completed their condition history
Last updated: