HIV (Human Immunodeficiency Virus)

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is HIV (Human Immunodeficiency Virus)?

HIV (human immunodeficiency virus) is a viral infection which can lead to acquired immunodeficiency syndrome (AIDS). HIV specifically attacks CD4 cells, which are part of the body's immune system. With treatment, often called antiretroviral therapy (ART), HIV infection can be well-controlled.

Common symptoms reported by people with HIV (Human Immunodeficiency Virus)

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with HIV (Human Immunodeficiency Virus)

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Truvada)
Type
Prescription Drug
How many have tried
35
Check to add this treatment to your profile
Treatment name(s)

(Atripla)
Type
Prescription Drug
How many have tried
34
Check to add this treatment to your profile
Treatment name(s)
Type
Prescription Drug
How many have tried
33
Check to add this treatment to your profile
Treatment name(s)

(Complera)
Type
Prescription Drug
How many have tried
26
Check to add this treatment to your profile
Treatment name(s)

(Norvir)
Type
Prescription Drug
How many have tried
24
Check to add this treatment to your profile
Treatment name(s)

(Sustiva)
Type
Prescription Drug
How many have tried
22
Check to add this treatment to your profile
Treatment name(s)

(Isentress)
Type
Prescription Drug
How many have tried
20
Check to add this treatment to your profile
Treatment name(s)

(Epzicom)
Type
Prescription Drug
How many have tried
17
Check to add this treatment to your profile
Treatment name(s)

(Prezista)
Type
Prescription Drug
How many have tried
15
Check to add this treatment to your profile
Treatment name(s)

(Tivicay)
Type
Prescription Drug
How many have tried
12

Data from patients with HIV (Human Immunodeficiency Virus), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with HIV (Human Immunodeficiency Virus)

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Truvada)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (17 evaluations)
Side effects
Diarrhea Fatigue 15 more
How many evaluations
17
Check to add this treatment to your profile
Treatment name(s)

(Atripla)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (27 evaluations)
Side effects
Vivid dreams Dizziness 19 more
How many evaluations
27
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (13 evaluations)
Side effects
Diarrhea Flatulence 14 more
How many evaluations
14
Check to add this treatment to your profile
Treatment name(s)

(Complera)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (19 evaluations)
Side effects
Acid reflux Burning nerve pain right foot 9 more
How many evaluations
19
Check to add this treatment to your profile
Treatment name(s)

(Norvir)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (11 evaluations)
Side effects
Diarrhea GI problems
How many evaluations
11
Check to add this treatment to your profile
Treatment name(s)

(Sustiva)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (15 evaluations)
Side effects
Dizziness Abdominal pain 4 more
How many evaluations
15
Check to add this treatment to your profile
Treatment name(s)

(Isentress)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (11 evaluations)
Side effects
Decreased appetite Diarrhea 10 more
How many evaluations
11
Check to add this treatment to your profile
Treatment name(s)

(Epzicom)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (9 evaluations)
Side effects
Nausea Abdominal cramps 1 more
How many evaluations
9
Check to add this treatment to your profile
Treatment name(s)

(Prezista)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (8 evaluations)
Side effects
Diarrhea GI problems
How many evaluations
8
Check to add this treatment to your profile
Treatment name(s)

(Tivicay)
Perceived effectiveness
for HIV (Human Immunodeficiency Virus) (6 evaluations)
Side effects
How many evaluations
6

Data from patients with HIV (Human Immunodeficiency Virus), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has HIV (Human Immunodeficiency Virus) on PatientsLikeMe?


Age
Age Proportion # of patients
<20 7
20s 204
30s 611
40s 717
50s 737
60s 256
70+ 45

Sex

Distribution of sex

24% Female
76% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 23
20-29 years 189
30-39 years 190
40-49 years 90
50-59 years 29
60-69 years 2
70+ years 0

Types
Condition Types Proportion # of patients
HIV-1: Group M: CRF 91
HIV-1: Group M: Type A1 227
HIV-1: Group M: Type A2 17
HIV-1: Group M: Type B 111
HIV-1: Group M: Type C 10
HIV-1: Group M: Type D 9
HIV-1: Group M: Type F1 9
HIV-1: Group M: Type F2 5
HIV-1: Group M: Type G 5
HIV-1: Group M: Type H 3
HIV-1: Group M: Type J 1
HIV-1: Group M: Type K 3
HIV-1: Group N 6
HIV-1: Group O 33
HIV-2 24
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1,090
Not Diagnosed 42

These charts show data from HIV patients who have completed their condition history
Last updated: