Human immunodeficiency virus (HIV)

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

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What is human immunodeficiency virus (HIV)?

HIV (human immunodeficiency virus) is a viral infection which can lead to acquired immunodeficiency syndrome (AIDS). HIV specifically attacks CD4 cells, which are part of the body's immune system. With treatment, often called antiretroviral therapy (ART), HIV infection can be well-controlled.

Common symptoms reported by people with human immunodeficiency virus (HIV)

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with human immunodeficiency virus (HIV)

Treatment name(s)
Type
How many have tried
Tried for
Type
Prescription Drug
How many have tried
27
Treatment name(s)

(Truvada)
Type
Prescription Drug
How many have tried
22
Treatment name(s)

(Atripla)
Type
Prescription Drug
How many have tried
20
Treatment name(s)

(Complera)
Type
Prescription Drug
How many have tried
20
Treatment name(s)

(Isentress)
Type
Prescription Drug
How many have tried
17
Treatment name(s)

(Tivicay)
Type
Prescription Drug
How many have tried
15
Treatment name(s)

(Sustiva)
Type
Prescription Drug
How many have tried
15
Treatment name(s)
Type
Prescription Drug
How many have tried
15
Treatment name(s)

(Epzicom)
Type
Prescription Drug
How many have tried
12
Treatment name(s)

(Norvir)
Type
Prescription Drug
How many have tried
12

Data from patients with human immunodeficiency virus (HIV), who reported starting treatments within the last 5 years.
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Compare treatments taken by people with human immunodeficiency virus (HIV)

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for human immunodeficiency virus (HIV) (11 evaluations)
Side effects
diarrhea flatulence 13 more
Total evaluations
12
Treatment name(s)

(Truvada)
Perceived effectiveness
for human immunodeficiency virus (HIV) (12 evaluations)
Side effects
diarrhea chronic diarrhea 10 more
Total evaluations
12
Treatment name(s)

(Atripla)
Perceived effectiveness
for human immunodeficiency virus (HIV) (17 evaluations)
Side effects
dizziness rashes (redness, swelling) 11 more
Total evaluations
17
Treatment name(s)

(Complera)
Perceived effectiveness
for human immunodeficiency virus (HIV) (17 evaluations)
Side effects
diarrhea acid reflux 9 more
Total evaluations
17
Treatment name(s)

(Isentress)
Perceived effectiveness
for human immunodeficiency virus (HIV) (9 evaluations)
Side effects
decreased appetite diarrhea 10 more
Total evaluations
9
Treatment name(s)

(Tivicay)
Perceived effectiveness
for human immunodeficiency virus (HIV) (7 evaluations)
Side effects
Total evaluations
7
Treatment name(s)

(Sustiva)
Perceived effectiveness
for human immunodeficiency virus (HIV) (13 evaluations)
Side effects
dizziness dizziness and feeling faint 3 more
Total evaluations
13
Treatment name(s)
Perceived effectiveness
for human immunodeficiency virus (HIV) (14 evaluations)
Side effects
decreased alcohol tolerance depressed mood 1 more
Total evaluations
14
Treatment name(s)

(Epzicom)
Perceived effectiveness
for human immunodeficiency virus (HIV) (8 evaluations)
Side effects
chronic diarrhea chronic kidney disease 2 more
Total evaluations
8
Treatment name(s)

(Norvir)
Perceived effectiveness
for human immunodeficiency virus (HIV) (7 evaluations)
Side effects
diarrhea GI problems
Total evaluations
7
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with human immunodeficiency virus (HIV), who reported starting treatments within the last 5 years.
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Who has human immunodeficiency virus (HIV) on PatientsLikeMe?


Age
Age Proportion # of patients
<20 6
20s 161
30s 631
40s 729
50s 801
60s 319
70+ 56
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 25
20-29 years 208
30-39 years 210
40-49 years 96
50-59 years 33
60-69 years 3
70+ years 0

Sex

Distribution of sex

25% Female
75% Male

Types
Condition Types Proportion # of patients
HIV-1: Group M: CRF 94
HIV-1: Group M: Type A1 232
HIV-1: Group M: Type A2 19
HIV-1: Group M: Type B 116
HIV-1: Group M: Type C 11
HIV-1: Group M: Type D 10
HIV-1: Group M: Type F1 9
HIV-1: Group M: Type F2 5
HIV-1: Group M: Type G 6
HIV-1: Group M: Type H 4
HIV-1: Group M: Type J 1
HIV-1: Group M: Type K 3
HIV-1: Group N 6
HIV-1: Group O 34
HIV-2 26
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1,152
Not Diagnosed 46

These charts show data from HIV patients who have completed their condition history
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