Diabetes Type 1

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Diabetes Type 1?

Type 1 diabetes mellitus (DM), usually diagnosed in children and young adults, can occur at any age when the pancreas does not produce insulin, a hormone needed to control the body's blood sugar levels. It requires daily monitoring of blood sugar, insulin therapy, diet modification and exercise.

Common symptoms reported by people with Diabetes Type 1

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Diabetes Type 1

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Lantus)
Type
Prescription Drug
How many have tried
36
Tried for
Diabetes Type 1 (36)
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Treatment name(s)

(Novolog)
Type
Prescription Drug
How many have tried
30
Tried for
Diabetes Type 1 (30)
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Treatment name(s)

(Humalog)
Type
Prescription Drug
How many have tried
16
Tried for
Diabetes Type 1 (16)
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Treatment name(s)

(Levemir FlexPen)
Type
Prescription Drug
How many have tried
12
Tried for
Diabetes Type 1 (12)
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Treatment name(s)

(Apidra)
Type
Prescription Drug
How many have tried
9
Tried for
Diabetes Type 1 (9)
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Treatment name(s)

(Glucophage)
Type
Prescription Drug
How many have tried
8
Tried for
Diabetes Type 1 (8)
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Treatment name(s)

(Dexcom Continuous Glucose Monitor)
Type
Equipment
How many have tried
7
Tried for
Diabetes Type 1 (7)
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Treatment name(s)

(Humulin R)
Type
Prescription Drug
How many have tried
7
Tried for
Diabetes Type 1 (7)
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Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
6
Tried for
Depressed mood (6)
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Treatment name(s)

(Celexa)
Type
Prescription Drug
How many have tried
6
Tried for
Depressed mood (5) Insomnia (1)

Data from patients with Diabetes Type 1, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Diabetes Type 1

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Lantus)
Perceived effectiveness
for Diabetes Type 1 (6 evaluations)
Side effects
Elevated blood sugar (hyperglycemia) Reactive Hypoglycemia
How many evaluations
6
Tried for
Diabetes Type 1 (36)
Check to add this treatment to your profile
Treatment name(s)

(Novolog)
Perceived effectiveness
for Diabetes Type 1 (10 evaluations)
Side effects
Low blood sugar (hypoglycemia) Weight gain
How many evaluations
10
Tried for
Diabetes Type 1 (30)
Check to add this treatment to your profile
Treatment name(s)

(Humalog)
Perceived effectiveness
for Diabetes Type 1 (6 evaluations)
Side effects
Headaches Low blood sugar (hypoglycemia) 1 more
How many evaluations
6
Tried for
Diabetes Type 1 (16)
Check to add this treatment to your profile
Treatment name(s)

(Levemir FlexPen)
Perceived effectiveness
for Diabetes Type 1 (2 evaluations)
Side effects
Low blood sugar (hypoglycemia)
How many evaluations
3
Tried for
Diabetes Type 1 (12)
Check to add this treatment to your profile
Treatment name(s)

(Apidra)
Perceived effectiveness
for Diabetes Type 1 (4 evaluations)
Side effects
Low blood sugar (hypoglycemia) Weight gain
How many evaluations
4
Tried for
Diabetes Type 1 (9)
Check to add this treatment to your profile
Treatment name(s)

(Glucophage)
Perceived effectiveness
for Diabetes Type 1 (4 evaluations)
Side effects
Chronic Kidney Disease
How many evaluations
6
Tried for
Diabetes Type 1 (8)
Check to add this treatment to your profile
Treatment name(s)

(Dexcom Continuous Glucose Monitor)
Perceived effectiveness
for Diabetes Type 1 (5 evaluations)
Side effects
Hospitalization Skin irritation under patch 1 more
How many evaluations
5
Tried for
Diabetes Type 1 (7)
Check to add this treatment to your profile
Treatment name(s)

(Humulin R)
Perceived effectiveness
for Diabetes Type 1 (3 evaluations)
Side effects
How many evaluations
3
Tried for
Diabetes Type 1 (7)
Check to add this treatment to your profile
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
for Depressed mood (2 evaluations)
Side effects
Headaches
How many evaluations
2
Tried for
Depressed mood (6)
Check to add this treatment to your profile
Treatment name(s)

(Celexa)
Perceived effectiveness
No evaluations
Side effects
How many evaluations
1
Tried for
Depressed mood (5) Insomnia (1)

Data from patients with Diabetes Type 1, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Diabetes Type 1 on PatientsLikeMe?


Age
Age Proportion # of patients
<20 92
20s 465
30s 585
40s 586
50s 511
60s 215
70+ 51

Sex

Distribution of sex

61% Female
39% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 609
20-29 years 241
30-39 years 132
40-49 years 69
50-59 years 41
60-69 years 10
70+ years 1

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1,466
Not Diagnosed 78

These charts show data from Diabetes Type 1 patients who have completed their condition history
Last updated: