Diabetes type 1

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is diabetes type 1?

Type 1 diabetes mellitus (DM), usually diagnosed in children and young adults, can occur at any age when the pancreas does not produce insulin, a hormone needed to control the body's blood sugar levels. It requires daily monitoring of blood sugar, insulin therapy, diet modification and exercise.

Common symptoms reported by people with diabetes type 1

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with diabetes type 1

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Lantus)
Type
Prescription Drug
How many have tried
28
Tried for
diabetes type 1 (28)
Treatment name(s)

(Novolog)
Type
Prescription Drug
How many have tried
24
Tried for
diabetes type 1 (24)
Treatment name(s)

(Humalog)
Type
Prescription Drug
How many have tried
13
Tried for
diabetes type 1 (13)
Treatment name(s)

(Levemir FlexPen)
Type
Prescription Drug
How many have tried
10
Tried for
diabetes type 1 (10)
Treatment name(s)

(Novolog Insulin Pump)
Type
Equipment
How many have tried
9
Tried for
diabetes type 1 (9)
Treatment name(s)

(Glucophage)
Type
Prescription Drug
How many have tried
8
Tried for
diabetes type 1 (8)
Treatment name(s)

(Dexcom Continuous Glucose Monitor)
Type
Equipment
How many have tried
6
Tried for
diabetes type 1 (6)
Treatment name(s)

(Tresiba)
Type
Prescription Drug
How many have tried
6
Tried for
diabetes type 1 (6)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
4
Tried for
pain (4)
Treatment name(s)

(Apidra)
Type
Prescription Drug
How many have tried
4
Tried for
diabetes type 1 (4)

Data from patients with diabetes type 1, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with diabetes type 1

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Lantus)
Perceived effectiveness
for diabetes type 1 (8 evaluations)
Side effects
acidic taste in mouth nausea 2 more
Total evaluations
8
Tried for
diabetes type 1 (28)
Treatment name(s)

(Novolog)
Perceived effectiveness
for diabetes type 1 (10 evaluations)
Side effects
low blood sugar (hypoglycemia) weight gain
Total evaluations
10
Tried for
diabetes type 1 (24)
Treatment name(s)

(Humalog)
Perceived effectiveness
for diabetes type 1 (8 evaluations)
Side effects
low blood sugar (hypoglycemia) elevated blood sugar (hyperglycemia) 2 more
Total evaluations
8
Tried for
diabetes type 1 (13)
Treatment name(s)

(Levemir FlexPen)
Perceived effectiveness
for diabetes type 1 (2 evaluations)
Side effects
low blood sugar (hypoglycemia)
Total evaluations
3
Tried for
diabetes type 1 (10)
Treatment name(s)

(Novolog Insulin Pump)
Perceived effectiveness
for diabetes type 1 (6 evaluations)
Side effects
low blood sugar (hypoglycemia) weight gain
Total evaluations
6
Tried for
diabetes type 1 (9)
Treatment name(s)

(Glucophage)
Perceived effectiveness
for diabetes type 1 (4 evaluations)
Side effects
chronic kidney disease
Total evaluations
6
Tried for
diabetes type 1 (8)
Treatment name(s)

(Dexcom Continuous Glucose Monitor)
Perceived effectiveness
for diabetes type 1 (4 evaluations)
Side effects
skin irritation under patch
Total evaluations
4
Tried for
diabetes type 1 (6)
Treatment name(s)

(Tresiba)
Perceived effectiveness
for diabetes type 1 (2 evaluations)
Side effects
Total evaluations
2
Tried for
diabetes type 1 (6)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (4)
Treatment name(s)

(Apidra)
Perceived effectiveness
for diabetes type 1 (1 evaluation)
Side effects
Total evaluations
1
Tried for
diabetes type 1 (4)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with diabetes type 1, who reported starting treatments within the last 5 years.
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Who has diabetes type 1 on PatientsLikeMe?


Age
Age Proportion # of patients
<20 86
20s 458
30s 674
40s 704
50s 635
60s 287
70+ 81
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 682
20-29 years 279
30-39 years 160
40-49 years 90
50-59 years 57
60-69 years 14
70+ years 2

Distribution of sex

Sex
Sex Proportion # of patients
Male 1,092
Female 1,856

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1,726
Not Diagnosed 81

These charts show data from diabetes type 1 patients who have completed their condition history
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