Sjogren's Syndrome

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What is Sjogren's Syndrome?

Sjogren’s syndrome also known as Mikulicz disease and Sicca syndrome, is a chronic inflammatory autoimmune disease characterized by dryness of mucous membranes, especially of the eyes and mouth and often associated with rheumatoid arthritis.

Common symptoms reported by people with Sjogren's Syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Sjogren's Syndrome

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Artificial Tears)
Type
Over the Counter Drug
How many have tried
69
Tried for
Sjogren's Syndrome (68) Dry eyes (2)
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Treatment name(s)
Type
Prescription Drug
How many have tried
42
Tried for
Sjogren's Syndrome (42) Dry eyes (8)
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Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
35
Tried for
Sjogren's Syndrome (34) Pain (1)
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Treatment name(s)

(Salagen)
Type
Prescription Drug
How many have tried
28
Tried for
Sjogren's Syndrome (28) Dry eyes (2)
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Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
28
Tried for
Pain (28) Fatigue (1)
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Treatment name(s)

(Vicodin)
Type
Prescription Drug
How many have tried
24
Tried for
Pain (24) Sjogren's Syndrome (1)
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Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
17
Tried for
Depressed mood (15) Pain (2)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Evoxac)
Type
Prescription Drug
How many have tried
15
Tried for
Sjogren's Syndrome (15)
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Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
14
Tried for
Pain (9) Insomnia (8)
2 more
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Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
12
Tried for
Pain (12)

Data from patients with Sjogren's Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Sjogren's Syndrome

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Artificial Tears)
Perceived effectiveness
for Sjogren's Syndrome (6 evaluations)
Side effects
Burning sensation
How many evaluations
6
Tried for
Sjogren's Syndrome (68) Dry eyes (2)
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Treatment name(s)
Perceived effectiveness
for Sjogren's Syndrome (7 evaluations)
Side effects
Burning sensation in eyes Blurry vision 2 more
How many evaluations
7
Tried for
Sjogren's Syndrome (42) Dry eyes (8)
Check to add this treatment to your profile
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for Sjogren's Syndrome (11 evaluations)
Side effects
Nausea Abdominal cramps 2 more
How many evaluations
12
Tried for
Sjogren's Syndrome (34) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Salagen)
Perceived effectiveness
for Sjogren's Syndrome (6 evaluations)
Side effects
Flu like symptoms Sweating increased
How many evaluations
8
Tried for
Sjogren's Syndrome (28) Dry eyes (2)
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (14 evaluations)
Side effects
Daytime sleepiness Difficulty urinating (dysuria) 5 more
How many evaluations
14
Tried for
Pain (28) Fatigue (1)
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Treatment name(s)

(Vicodin)
Perceived effectiveness
for Pain (9 evaluations)
Side effects
Brain fog Drowsiness 4 more
How many evaluations
9
Tried for
Pain (24) Sjogren's Syndrome (1)
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Depressed mood (7 evaluations)
Side effects
Dry eyes Dry mouth 1 more
How many evaluations
7
Tried for
Depressed mood (15) Pain (2)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Evoxac)
Perceived effectiveness
for Sjogren's Syndrome (5 evaluations)
Side effects
Flushing Migraine headaches 1 more
How many evaluations
5
Tried for
Sjogren's Syndrome (15)
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Pain (7 evaluations)
Side effects
Cognitive impairment Drugged feeling 6 more
How many evaluations
11
Tried for
Pain (9) Insomnia (8)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (4 evaluations)
Side effects
Dizziness and feeling faint Excessive sleeping (hypersomnia) 6 more
How many evaluations
5
Tried for
Pain (12)

Data from patients with Sjogren's Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Sjogren's Syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 43
30s 183
40s 354
50s 446
60s 225
70+ 37

Gender

Distribution of females vs. males

97% Females
3% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 81
20-29 years 143
30-39 years 250
40-49 years 242
50-59 years 130
60-69 years 25
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1,046
Not Diagnosed 61

These charts show data from Sjogren's Syndrome patients who have completed their condition history
Last updated: