Sjogren's syndrome

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What is Sjogren's syndrome?

Sjogren’s syndrome also known as Mikulicz disease and Sicca syndrome, is a chronic inflammatory autoimmune disease characterized by dryness of mucous membranes, especially of the eyes and mouth and often associated with rheumatoid arthritis.

Common symptoms reported by people with Sjogren's syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Sjogren's syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
32
Tried for
Sjogren's syndrome (30) fatigue (1)
1 more
Treatment name(s)

(Artificial Tears)
Type
Over the Counter Drug
How many have tried
16
Tried for
Sjogren's syndrome (15) dry eyes (5)
Treatment name(s)

(Restasis)
Type
Prescription Drug
How many have tried
15
Tried for
Sjogren's syndrome (14) dry eyes (2)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
13
Tried for
pain (13)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
12
Tried for
pain (12)
Treatment name(s)

(Evoxac)
Type
Prescription Drug
How many have tried
11
Tried for
Sjogren's syndrome (11) dry mouth (2)
Treatment name(s)

(Salagen)
Type
Prescription Drug
How many have tried
11
Tried for
Sjogren's syndrome (10) dry mouth (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
9
Tried for
pain (9)
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
7
Tried for
pain (7)
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
6
Tried for
anxious mood (5) depressed mood (3)

Data from patients with Sjogren's syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Sjogren's syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for Sjogren's syndrome (13 evaluations)
Side effects
diarrhea headaches 11 more
Total evaluations
16
Tried for
Sjogren's syndrome (30) fatigue (1)
1 more
Treatment name(s)

(Artificial Tears)
Perceived effectiveness
for Sjogren's syndrome (4 evaluations)
Side effects
burning sensation in eyes
Total evaluations
5
Tried for
Sjogren's syndrome (15) dry eyes (5)
Treatment name(s)

(Restasis)
Perceived effectiveness
for Sjogren's syndrome (6 evaluations)
Side effects
eyes stinging headaches
Total evaluations
7
Tried for
Sjogren's syndrome (14) dry eyes (2)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (3 evaluations)
Side effects
burning sensation drowsiness 2 more
Total evaluations
7
Tried for
pain (13)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (6 evaluations)
Side effects
tingling tiredness
Total evaluations
6
Tried for
pain (12)
Treatment name(s)

(Evoxac)
Perceived effectiveness
for Sjogren's syndrome (10 evaluations)
Side effects
diarrhea excessive sinus drainage 2 more
Total evaluations
10
Tried for
Sjogren's syndrome (11) dry mouth (2)
Treatment name(s)

(Salagen)
Perceived effectiveness
for Sjogren's syndrome (6 evaluations)
Side effects
dizziness enlarged or swollen parotid gland 2 more
Total evaluations
6
Tried for
Sjogren's syndrome (10) dry mouth (1)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (5 evaluations)
Side effects
drowsiness
Total evaluations
5
Tried for
pain (9)
Treatment name(s)

(Tylenol)
Perceived effectiveness
for pain (3 evaluations)
Side effects
Total evaluations
3
Tried for
pain (7)
Treatment name(s)

(BuSpar)
Perceived effectiveness
for anxious mood (3 evaluations)
Side effects
Total evaluations
3
Tried for
anxious mood (5) depressed mood (3)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Sjogren's syndrome, who reported starting treatments within the last 5 years.
Last updated:

Who has Sjogren's syndrome on PatientsLikeMe?

  • 10 new patients joined this month
  • 1072 say Sjogren's syndrome is their primary condition

Age
Age Proportion # of patients
<20 2
20s 85
30s 385
40s 973
50s 1413
60s 965
70+ 315
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 206
20-29 years 342
30-39 years 659
40-49 years 668
50-59 years 365
60-69 years 80
70+ years 7

Distribution of sex

Sex
Sex Proportion # of patients
Male 141
Female 4036

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3113
Not Diagnosed 115

These charts show data from Sjogren's syndrome patients who have completed their condition history
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