Sjogren's Syndrome

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What is Sjogren's Syndrome?

Sjogren’s syndrome also known as Mikulicz disease and Sicca syndrome, is a chronic inflammatory autoimmune disease characterized by dryness of mucous membranes, especially of the eyes and mouth and often associated with rheumatoid arthritis.

Common symptoms reported by people with Sjogren's Syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Sjogren's Syndrome

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Artificial Tears)
Type
Over the Counter Drug
How many have tried
57
Tried for
Sjogren's Syndrome (54) Dry eyes (5)
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Treatment name(s)

(Restasis)
Type
Prescription Drug
How many have tried
42
Tried for
Sjogren's Syndrome (40) Dry eyes (10)
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Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
42
Tried for
Sjogren's Syndrome (41) Pain (1)
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Treatment name(s)

(Salagen)
Type
Prescription Drug
How many have tried
34
Tried for
Sjogren's Syndrome (32) Dry mouth (3)
1 more
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Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
29
Tried for
Pain (29)
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Treatment name(s)

(Vicodin)
Type
Prescription Drug
How many have tried
22
Tried for
Pain (22) Sjogren's Syndrome (1)
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Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
18
Tried for
Depressed mood (17) Fatigue (1)
1 more
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Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
15
Tried for
Insomnia (9) Pain (7)
1 more
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Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
14
Tried for
Pain (14)
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Treatment name(s)

(Evoxac)
Type
Prescription Drug
How many have tried
13
Tried for
Sjogren's Syndrome (13) Dry mouth (1)

Data from patients with Sjogren's Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Sjogren's Syndrome

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Artificial Tears)
Perceived effectiveness
for Sjogren's Syndrome (6 evaluations)
Side effects
Stinging sensation
How many evaluations
8
Tried for
Sjogren's Syndrome (54) Dry eyes (5)
Check to add this treatment to your profile
Treatment name(s)

(Restasis)
Perceived effectiveness
for Sjogren's Syndrome (12 evaluations)
Side effects
Burning sensation in eyes Blurry vision 1 more
How many evaluations
12
Tried for
Sjogren's Syndrome (40) Dry eyes (10)
Check to add this treatment to your profile
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for Sjogren's Syndrome (18 evaluations)
Side effects
Nausea Diarrhea 5 more
How many evaluations
21
Tried for
Sjogren's Syndrome (41) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Salagen)
Perceived effectiveness
for Sjogren's Syndrome (14 evaluations)
Side effects
Sweating increased Flu like symptoms 1 more
How many evaluations
17
Tried for
Sjogren's Syndrome (32) Dry mouth (3)
1 more
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Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (13 evaluations)
Side effects
Daytime sleepiness Difficulty urinating (dysuria) 5 more
How many evaluations
13
Tried for
Pain (29)
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Perceived effectiveness
for Pain (10 evaluations)
Side effects
Constipation Drowsiness 4 more
How many evaluations
10
Tried for
Pain (22) Sjogren's Syndrome (1)
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Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Depressed mood (9 evaluations)
Side effects
Anger Dry eyes 2 more
How many evaluations
9
Tried for
Depressed mood (17) Fatigue (1)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (10 evaluations)
Side effects
Cognitive impairment Drugged feeling 9 more
How many evaluations
15
Tried for
Insomnia (9) Pain (7)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (9 evaluations)
Side effects
Dizziness and feeling faint Drowsiness 8 more
How many evaluations
9
Tried for
Pain (14)
Check to add this treatment to your profile
Treatment name(s)

(Evoxac)
Perceived effectiveness
for Sjogren's Syndrome (6 evaluations)
Side effects
Flushing Migraine headaches 1 more
How many evaluations
6
Tried for
Sjogren's Syndrome (13) Dry mouth (1)

Data from patients with Sjogren's Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Sjogren's Syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 61
30s 233
40s 504
50s 667
60s 348
70+ 69

Sex

Distribution of sex

97% Female
3% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 126
20-29 years 207
30-39 years 359
40-49 years 360
50-59 years 172
60-69 years 40
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1,513
Not Diagnosed 87

These charts show data from Sjogren's Syndrome patients who have completed their condition history
Last updated: