Sjogren's syndrome

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What is Sjogren's syndrome?

Sjogren’s syndrome also known as Mikulicz disease and Sicca syndrome, is a chronic inflammatory autoimmune disease characterized by dryness of mucous membranes, especially of the eyes and mouth and often associated with rheumatoid arthritis.

Common symptoms reported by people with Sjogren's syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Sjogren's syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Artificial Tears)
Type
Over the Counter Drug
How many have tried
51
Tried for
Sjogren's syndrome (48) dry eyes (11)
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
41
Tried for
Sjogren's syndrome (40) fatigue (1)
Treatment name(s)

(Restasis)
Type
Prescription Drug
How many have tried
39
Tried for
Sjogren's syndrome (36) dry eyes (7)
Treatment name(s)

(Salagen)
Type
Prescription Drug
How many have tried
27
Tried for
Sjogren's syndrome (26) dry mouth (2)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
22
Tried for
pain (22)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
22
Tried for
pain (22)
Treatment name(s)

(Evoxac)
Type
Prescription Drug
How many have tried
16
Tried for
Sjogren's syndrome (16) dry mouth (1)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
16
Tried for
depressed mood (14) anxious mood (1)
2 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
15
Tried for
pain (15) Sjogren's syndrome (1)
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
11
Tried for
pain (10) Sjogren's syndrome (1)

Data from patients with Sjogren's syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Sjogren's syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Artificial Tears)
Perceived effectiveness
for Sjogren's syndrome (12 evaluations)
Side effects
burning sensation in eyes stinging sensation
Total evaluations
15
Tried for
Sjogren's syndrome (48) dry eyes (11)
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for Sjogren's syndrome (22 evaluations)
Side effects
headaches nausea 12 more
Total evaluations
25
Tried for
Sjogren's syndrome (40) fatigue (1)
Treatment name(s)

(Restasis)
Perceived effectiveness
for Sjogren's syndrome (17 evaluations)
Side effects
burning sensation in eyes eyes stinging 1 more
Total evaluations
18
Tried for
Sjogren's syndrome (36) dry eyes (7)
Treatment name(s)

(Salagen)
Perceived effectiveness
for Sjogren's syndrome (15 evaluations)
Side effects
nausea sweating increased 4 more
Total evaluations
16
Tried for
Sjogren's syndrome (26) dry mouth (2)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (9 evaluations)
Side effects
drowsiness weight gain 4 more
Total evaluations
10
Tried for
pain (22)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (9 evaluations)
Side effects
difficulty urinating (dysuria) insomnia 3 more
Total evaluations
9
Tried for
pain (22)
Treatment name(s)

(Evoxac)
Perceived effectiveness
for Sjogren's syndrome (10 evaluations)
Side effects
excessive sinus drainage excessive sweating 3 more
Total evaluations
10
Tried for
Sjogren's syndrome (16) dry mouth (1)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (12 evaluations)
Side effects
dry mouth anger 3 more
Total evaluations
16
Tried for
depressed mood (14) anxious mood (1)
2 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (10 evaluations)
Side effects
drowsiness constipation 2 more
Total evaluations
10
Tried for
pain (15) Sjogren's syndrome (1)
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
2
Tried for
pain (10) Sjogren's syndrome (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Sjogren's syndrome, who reported starting treatments within the last 5 years.
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Who has Sjogren's syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 86
30s 371
40s 859
50s 1,176
60s 680
70+ 183
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 182
20-29 years 308
30-39 years 584
40-49 years 602
50-59 years 321
60-69 years 73
70+ years 8

Distribution of sex

Sex
Sex Proportion # of patients
Male 109
Female 3,275

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2,678
Not Diagnosed 103

These charts show data from Sjogren's syndrome patients who have completed their condition history
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