Sjogren's syndrome

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What is Sjogren's syndrome?

Sjogren’s syndrome also known as Mikulicz disease and Sicca syndrome, is a chronic inflammatory autoimmune disease characterized by dryness of mucous membranes, especially of the eyes and mouth and often associated with rheumatoid arthritis.

Common symptoms reported by people with Sjogren's syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Sjogren's syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
41
Tried for
Sjogren's syndrome (40) fatigue (1)
Treatment name(s)

(Artificial Tears)
Type
Over the Counter Drug
How many have tried
35
Tried for
Sjogren's syndrome (33) dry eyes (8)
Treatment name(s)

(Restasis)
Type
Prescription Drug
How many have tried
32
Tried for
Sjogren's syndrome (30) dry eyes (6)
Treatment name(s)

(Salagen)
Type
Prescription Drug
How many have tried
25
Tried for
Sjogren's syndrome (23) dry mouth (3)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
20
Tried for
pain (20)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
18
Tried for
pain (18)
Treatment name(s)

(Evoxac)
Type
Prescription Drug
How many have tried
17
Tried for
Sjogren's syndrome (17) dry mouth (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
15
Tried for
pain (15)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
14
Tried for
depressed mood (12) anxious mood (1)
2 more
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
9
Tried for
anxious mood (9) pain (1)

Data from patients with Sjogren's syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Sjogren's syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for Sjogren's syndrome (17 evaluations)
Side effects
headaches nausea 12 more
Total evaluations
20
Tried for
Sjogren's syndrome (40) fatigue (1)
Treatment name(s)

(Artificial Tears)
Perceived effectiveness
for Sjogren's syndrome (5 evaluations)
Side effects
burning sensation in eyes
Total evaluations
8
Tried for
Sjogren's syndrome (33) dry eyes (8)
Treatment name(s)

(Restasis)
Perceived effectiveness
for Sjogren's syndrome (10 evaluations)
Side effects
eyes stinging burning sensation 1 more
Total evaluations
11
Tried for
Sjogren's syndrome (30) dry eyes (6)
Treatment name(s)

(Salagen)
Perceived effectiveness
for Sjogren's syndrome (13 evaluations)
Side effects
nausea blurry vision 4 more
Total evaluations
14
Tried for
Sjogren's syndrome (23) dry mouth (3)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (7 evaluations)
Side effects
drowsiness weight gain 3 more
Total evaluations
9
Tried for
pain (20)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (7 evaluations)
Side effects
serotonin syndrome tingling 1 more
Total evaluations
7
Tried for
pain (18)
Treatment name(s)

(Evoxac)
Perceived effectiveness
for Sjogren's syndrome (11 evaluations)
Side effects
diarrhea excessive sinus drainage 4 more
Total evaluations
11
Tried for
Sjogren's syndrome (17) dry mouth (1)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (11 evaluations)
Side effects
drowsiness constipation
Total evaluations
11
Tried for
pain (15)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (6 evaluations)
Side effects
dry mouth anger 2 more
Total evaluations
10
Tried for
depressed mood (12) anxious mood (1)
2 more
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (5 evaluations)
Side effects
drowsiness grogginess
Total evaluations
5
Tried for
anxious mood (9) pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Sjogren's syndrome, who reported starting treatments within the last 5 years.
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Who has Sjogren's syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 99
30s 416
40s 1008
50s 1371
60s 812
70+ 230
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 201
20-29 years 340
30-39 years 655
40-49 years 664
50-59 years 360
60-69 years 79
70+ years 7

Distribution of sex

Sex
Sex Proportion # of patients
Male 132
Female 3836

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3078
Not Diagnosed 116

These charts show data from Sjogren's syndrome patients who have completed their condition history
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