Sjogren's syndrome

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What is Sjogren's syndrome?

Sjogren’s syndrome also known as Mikulicz disease and Sicca syndrome, is a chronic inflammatory autoimmune disease characterized by dryness of mucous membranes, especially of the eyes and mouth and often associated with rheumatoid arthritis.

Common symptoms reported by people with Sjogren's syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Sjogren's syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
41
Tried for
Sjogren's syndrome (40) fatigue (1)
Treatment name(s)

(Artificial Tears)
Type
Over the Counter Drug
How many have tried
38
Tried for
Sjogren's syndrome (35) dry eyes (9)
Treatment name(s)

(Restasis)
Type
Prescription Drug
How many have tried
31
Tried for
Sjogren's syndrome (29) dry eyes (6)
Treatment name(s)

(Salagen)
Type
Prescription Drug
How many have tried
28
Tried for
Sjogren's syndrome (27) dry mouth (2)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
22
Tried for
pain (22)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
18
Tried for
pain (18)
Treatment name(s)

(Evoxac)
Type
Prescription Drug
How many have tried
16
Tried for
Sjogren's syndrome (16) dry mouth (1)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
15
Tried for
depressed mood (13) anxious mood (1)
2 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
15
Tried for
pain (15)
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
10
Tried for
Sjogren's syndrome (9) pain (1)

Data from patients with Sjogren's syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Sjogren's syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for Sjogren's syndrome (21 evaluations)
Side effects
headaches nausea 13 more
Total evaluations
24
Tried for
Sjogren's syndrome (40) fatigue (1)
Treatment name(s)

(Artificial Tears)
Perceived effectiveness
for Sjogren's syndrome (5 evaluations)
Side effects
burning sensation in eyes
Total evaluations
8
Tried for
Sjogren's syndrome (35) dry eyes (9)
Treatment name(s)

(Restasis)
Perceived effectiveness
for Sjogren's syndrome (10 evaluations)
Side effects
eyes stinging burning sensation 1 more
Total evaluations
11
Tried for
Sjogren's syndrome (29) dry eyes (6)
Treatment name(s)

(Salagen)
Perceived effectiveness
for Sjogren's syndrome (15 evaluations)
Side effects
nausea sweating increased 4 more
Total evaluations
16
Tried for
Sjogren's syndrome (27) dry mouth (2)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (9 evaluations)
Side effects
drowsiness weight gain 4 more
Total evaluations
11
Tried for
pain (22)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (9 evaluations)
Side effects
difficulty urinating (dysuria) itching 3 more
Total evaluations
9
Tried for
pain (18)
Treatment name(s)

(Evoxac)
Perceived effectiveness
for Sjogren's syndrome (11 evaluations)
Side effects
diarrhea excessive sinus drainage 4 more
Total evaluations
11
Tried for
Sjogren's syndrome (16) dry mouth (1)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (7 evaluations)
Side effects
dry mouth anger 2 more
Total evaluations
11
Tried for
depressed mood (13) anxious mood (1)
2 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (8 evaluations)
Side effects
drowsiness constipation 1 more
Total evaluations
8
Tried for
pain (15)
Treatment name(s)

(Deltasone)
Perceived effectiveness
for Sjogren's syndrome (6 evaluations)
Side effects
weight gain abdominal bloating 4 more
Total evaluations
7
Tried for
Sjogren's syndrome (9) pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Sjogren's syndrome, who reported starting treatments within the last 5 years.
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Who has Sjogren's syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 96
30s 422
40s 985
50s 1312
60s 773
70+ 211
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 197
20-29 years 334
30-39 years 648
40-49 years 654
50-59 years 350
60-69 years 77
70+ years 7

Distribution of sex

Sex
Sex Proportion # of patients
Male 124
Female 3705

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3019
Not Diagnosed 113

These charts show data from Sjogren's syndrome patients who have completed their condition history
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