Sjogren's syndrome

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Sjogren's syndrome?

Sjogren’s syndrome also known as Mikulicz disease and Sicca syndrome, is a chronic inflammatory autoimmune disease characterized by dryness of mucous membranes, especially of the eyes and mouth and often associated with rheumatoid arthritis.

Common symptoms reported by people with Sjogren's syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Sjogren's syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Artificial Tears)
Type
Over the Counter Drug
How many have tried
46
Tried for
Sjogren's syndrome (43) dry eyes (9)
Treatment name(s)

(Restasis)
Type
Prescription Drug
How many have tried
38
Tried for
Sjogren's syndrome (35) dry eyes (8)
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
38
Tried for
Sjogren's syndrome (37) fatigue (1)
Treatment name(s)

(Salagen)
Type
Prescription Drug
How many have tried
28
Tried for
Sjogren's syndrome (27) dry mouth (3)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
21
Tried for
pain (21)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
21
Tried for
pain (21)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
16
Tried for
pain (16) Sjogren's syndrome (1)
Treatment name(s)

(Evoxac)
Type
Prescription Drug
How many have tried
15
Tried for
Sjogren's syndrome (15) dry mouth (1)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
15
Tried for
depressed mood (14) Sjogren's syndrome (1)
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
13
Tried for
pain (12) Sjogren's syndrome (1)

Data from patients with Sjogren's syndrome, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with Sjogren's syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Artificial Tears)
Perceived effectiveness
for Sjogren's syndrome (10 evaluations)
Side effects
stinging sensation
Total evaluations
12
Tried for
Sjogren's syndrome (43) dry eyes (9)
Treatment name(s)

(Restasis)
Perceived effectiveness
for Sjogren's syndrome (16 evaluations)
Side effects
burning sensation in eyes burning sensation 1 more
Total evaluations
16
Tried for
Sjogren's syndrome (35) dry eyes (8)
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for Sjogren's syndrome (21 evaluations)
Side effects
headaches nausea 9 more
Total evaluations
25
Tried for
Sjogren's syndrome (37) fatigue (1)
Treatment name(s)

(Salagen)
Perceived effectiveness
for Sjogren's syndrome (17 evaluations)
Side effects
sweating increased blurry vision 3 more
Total evaluations
18
Tried for
Sjogren's syndrome (27) dry mouth (3)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (10 evaluations)
Side effects
drowsiness weight gain 4 more
Total evaluations
11
Tried for
pain (21)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (10 evaluations)
Side effects
daytime sleepiness difficulty urinating (dysuria) 4 more
Total evaluations
10
Tried for
pain (21)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (11 evaluations)
Side effects
drowsiness constipation 2 more
Total evaluations
11
Tried for
pain (16) Sjogren's syndrome (1)
Treatment name(s)

(Evoxac)
Perceived effectiveness
for Sjogren's syndrome (9 evaluations)
Side effects
excessive sweating excess saliva 2 more
Total evaluations
9
Tried for
Sjogren's syndrome (15) dry mouth (1)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (12 evaluations)
Side effects
dry mouth anger 3 more
Total evaluations
16
Tried for
depressed mood (14) Sjogren's syndrome (1)
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
for pain (1 evaluation)
Side effects
chronic kidney disease
Total evaluations
3
Tried for
pain (12) Sjogren's syndrome (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Sjogren's syndrome, who reported starting treatments within the last 5 years.
Last updated:

Who has Sjogren's syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 84
30s 324
40s 783
50s 1,083
60s 629
70+ 164
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 171
20-29 years 285
30-39 years 544
40-49 years 569
50-59 years 314
60-69 years 68
70+ years 8

Sex

Distribution of sex

97% Female
3% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2,240
Not Diagnosed 119

These charts show data from Sjogren's syndrome patients who have completed their condition history
Last updated: