Sjogren's syndrome

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What is Sjogren's syndrome?

Sjogren’s syndrome also known as Mikulicz disease and Sicca syndrome, is a chronic inflammatory autoimmune disease characterized by dryness of mucous membranes, especially of the eyes and mouth and often associated with rheumatoid arthritis.

Common symptoms reported by people with Sjogren's syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Sjogren's syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
37
Tried for
Sjogren's syndrome (36) fatigue (1)
Treatment name(s)

(Artificial Tears)
Type
Over the Counter Drug
How many have tried
26
Tried for
Sjogren's syndrome (25) dry eyes (6)
Treatment name(s)

(Restasis)
Type
Prescription Drug
How many have tried
23
Tried for
Sjogren's syndrome (21) dry eyes (5)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
17
Tried for
pain (17)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
15
Tried for
pain (15)
Treatment name(s)

(Salagen)
Type
Prescription Drug
How many have tried
15
Tried for
Sjogren's syndrome (14) dry mouth (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
14
Tried for
pain (14)
Treatment name(s)

(Evoxac)
Type
Prescription Drug
How many have tried
13
Tried for
Sjogren's syndrome (13) dry mouth (2)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
9
Tried for
depressed mood (7) anxious mood (1)
2 more
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
7
Tried for
pain (7)

Data from patients with Sjogren's syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Sjogren's syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for Sjogren's syndrome (16 evaluations)
Side effects
nausea headaches 11 more
Total evaluations
19
Tried for
Sjogren's syndrome (36) fatigue (1)
Treatment name(s)

(Artificial Tears)
Perceived effectiveness
for Sjogren's syndrome (4 evaluations)
Side effects
burning sensation in eyes
Total evaluations
5
Tried for
Sjogren's syndrome (25) dry eyes (6)
Treatment name(s)

(Restasis)
Perceived effectiveness
for Sjogren's syndrome (9 evaluations)
Side effects
eyes stinging burning sensation 1 more
Total evaluations
10
Tried for
Sjogren's syndrome (21) dry eyes (5)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (8 evaluations)
Side effects
serotonin syndrome tingling 1 more
Total evaluations
8
Tried for
pain (17)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (5 evaluations)
Side effects
drowsiness burning sensation 2 more
Total evaluations
8
Tried for
pain (15)
Treatment name(s)

(Salagen)
Perceived effectiveness
for Sjogren's syndrome (6 evaluations)
Side effects
dizziness enlarged or swollen parotid gland 3 more
Total evaluations
6
Tried for
Sjogren's syndrome (14) dry mouth (1)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (10 evaluations)
Side effects
drowsiness constipation
Total evaluations
10
Tried for
pain (14)
Treatment name(s)

(Evoxac)
Perceived effectiveness
for Sjogren's syndrome (10 evaluations)
Side effects
diarrhea excessive sinus drainage 2 more
Total evaluations
10
Tried for
Sjogren's syndrome (13) dry mouth (2)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (2 evaluations)
Side effects
drowsiness dry mouth
Total evaluations
4
Tried for
depressed mood (7) anxious mood (1)
2 more
Treatment name(s)

(Tylenol)
Perceived effectiveness
for pain (3 evaluations)
Side effects
Total evaluations
3
Tried for
pain (7)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Sjogren's syndrome, who reported starting treatments within the last 5 years.
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Who has Sjogren's syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 97
30s 419
40s 993
50s 1384
60s 880
70+ 271
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 205
20-29 years 341
30-39 years 659
40-49 years 658
50-59 years 359
60-69 years 79
70+ years 7

Distribution of sex

Sex
Sex Proportion # of patients
Male 138
Female 3946

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3087
Not Diagnosed 116

These charts show data from Sjogren's syndrome patients who have completed their condition history
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