Sjogren's Syndrome

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What is Sjogren's Syndrome?

Sjogren’s syndrome also known as Mikulicz disease and Sicca syndrome, is a chronic inflammatory autoimmune disease characterized by dryness of mucous membranes, especially of the eyes and mouth and often associated with rheumatoid arthritis.

Common symptoms reported by people with Sjogren's Syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Sjogren's Syndrome

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
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Treatment name(s)

(Artificial Tears)
Type
Over the Counter Drug
How many have tried
56
Tried for
Sjogren's Syndrome (55) Dry eyes (3)
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Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
45
Tried for
Sjogren's Syndrome (44) Pain (1)
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Treatment name(s)

(Restasis)
Type
Prescription Drug
How many have tried
42
Tried for
Sjogren's Syndrome (40) Dry eyes (10)
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Treatment name(s)

(Salagen)
Type
Prescription Drug
How many have tried
34
Tried for
Sjogren's Syndrome (32) Dry mouth (3)
1 more
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Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
29
Tried for
Pain (29)
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Treatment name(s)

(Vicodin)
Type
Prescription Drug
How many have tried
22
Tried for
Pain (22) Sjogren's Syndrome (1)
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Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
19
Tried for
Depressed mood (17) Anxious mood (1)
2 more
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Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
14
Tried for
Insomnia (8) Pain (7)
1 more
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Treatment name(s)

(Evoxac)
Type
Prescription Drug
How many have tried
14
Tried for
Sjogren's Syndrome (14) Dry mouth (1)
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Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
14
Tried for
Pain (14)

Data from patients with Sjogren's Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Sjogren's Syndrome

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Artificial Tears)
Perceived effectiveness
for Sjogren's Syndrome (6 evaluations)
Side effects
Stinging sensation
How many evaluations
7
Tried for
Sjogren's Syndrome (55) Dry eyes (3)
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Treatment name(s)

(Plaquenil)
Perceived effectiveness
for Sjogren's Syndrome (20 evaluations)
Side effects
Nausea Diarrhea 5 more
How many evaluations
23
Tried for
Sjogren's Syndrome (44) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Restasis)
Perceived effectiveness
for Sjogren's Syndrome (12 evaluations)
Side effects
Burning sensation in eyes Blurry vision 1 more
How many evaluations
12
Tried for
Sjogren's Syndrome (40) Dry eyes (10)
Check to add this treatment to your profile
Treatment name(s)

(Salagen)
Perceived effectiveness
for Sjogren's Syndrome (13 evaluations)
Side effects
Sweating increased Flu like symptoms 1 more
How many evaluations
16
Tried for
Sjogren's Syndrome (32) Dry mouth (3)
1 more
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Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (13 evaluations)
Side effects
Daytime sleepiness Difficulty urinating (dysuria) 5 more
How many evaluations
13
Tried for
Pain (29)
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Treatment name(s)

(Vicodin)
Perceived effectiveness
for Pain (9 evaluations)
Side effects
Constipation Drowsiness 4 more
How many evaluations
9
Tried for
Pain (22) Sjogren's Syndrome (1)
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Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Depressed mood (9 evaluations)
Side effects
Anger Dry eyes 2 more
How many evaluations
9
Tried for
Depressed mood (17) Anxious mood (1)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (9 evaluations)
Side effects
Cognitive impairment Drugged feeling 9 more
How many evaluations
14
Tried for
Insomnia (8) Pain (7)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Evoxac)
Perceived effectiveness
for Sjogren's Syndrome (7 evaluations)
Side effects
Flushing Jittery feeling 2 more
How many evaluations
7
Tried for
Sjogren's Syndrome (14) Dry mouth (1)
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (9 evaluations)
Side effects
Dizziness and feeling faint Drowsiness 8 more
How many evaluations
9
Tried for
Pain (14)

Data from patients with Sjogren's Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Sjogren's Syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 60
30s 235
40s 508
50s 659
60s 340
70+ 68

Sex

Distribution of sex

97% Female
3% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 126
20-29 years 205
30-39 years 357
40-49 years 356
50-59 years 171
60-69 years 40
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1,505
Not Diagnosed 85

These charts show data from Sjogren's Syndrome patients who have completed their condition history
Last updated: