Sjogren's Syndrome

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What is Sjogren's Syndrome?

Sjogren’s syndrome also known as Mikulicz disease and Sicca syndrome, is a chronic inflammatory autoimmune disease characterized by dryness of mucous membranes, especially of the eyes and mouth and often associated with rheumatoid arthritis.

What is it like to have Sjogren's Syndrome?

Common symptoms How bad it is What people are taking for it
Zolpidem, Trazodone, Amitriptyline
Rest, Armodafinil, Amphetamine-Dextroamphetamine
Biotene Mouth Spray, Biotene Toothpaste, Biotene Oral Balance
Hydrocodone-Acetaminophen, Tramadol, Gabapentin
Lubricant Eye Drops, Systane Eye Drops, Restasis
Duloxetine, Bupropion, Venlafaxine
Alprazolam, Clonazepam, Lorazepam

What do patients take to treat Sjogren's Syndrome and its symptoms?

Treatments reported by members Perceived effectiveness Overall rating of side effects # of Evaluations

(Tears Naturale II Polyquad Lubricant Eye Drops, Redness Relief Eye Drops, Tears Again, Optive Sensitive)

11

(Salagen)

11

(Apo-hydroxyquine, Oxiklorin, Quensyl, Plaquenil)

9
8
5

These charts show data from Sjogren's Syndrome patients’ latest treatment evaluations
Last updated:

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Sjogren's Syndrome on PatientsLikeMe?

  • 1,082 patients have this condition
  • 12 new patients joined this month
  • 279 say Sjogren's Syndrome is their primary condition

Age
Age Proportion # of patients
<20 1
20s 39
30s 158
40s 287
50s 356
60s 141
70+ 22

Gender

Distribution of females vs. males

97% Females
3% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 67
20-29 years 114
30-39 years 201
40-49 years 189
50-59 years 98
60-69 years 18
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 846
Not Diagnosed 45

These charts show data from Sjogren's Syndrome patients who have completed their condition history
Last updated: