Sjogren's Syndrome

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What is Sjogren's Syndrome?

Sjogren’s syndrome also known as Mikulicz disease and Sicca syndrome, is a chronic inflammatory autoimmune disease characterized by dryness of mucous membranes, especially of the eyes and mouth and often associated with rheumatoid arthritis.

Common symptoms reported by people with Sjogren's Syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Sjogren's Syndrome

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Artificial Tears)
Type
Over the Counter Drug
How many have tried
50
Tried for
Sjogren's Syndrome (47) Dry eyes (6)
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Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
42
Tried for
Sjogren's Syndrome (41) Pain (1)
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Treatment name(s)

(Restasis)
Type
Prescription Drug
How many have tried
40
Tried for
Sjogren's Syndrome (37) Dry eyes (9)
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Treatment name(s)

(Salagen)
Type
Prescription Drug
How many have tried
32
Tried for
Sjogren's Syndrome (31) Dry mouth (4)
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Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
23
Tried for
Pain (23)
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Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
17
Tried for
Pain (17)
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Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
17
Tried for
Pain (17) Sjogren's Syndrome (1)
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Treatment name(s)

(Evoxac)
Type
Prescription Drug
How many have tried
15
Tried for
Sjogren's Syndrome (15) Dry mouth (1)
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Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
13
Tried for
Depressed mood (13)
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Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
12
Tried for
Anxious mood (12) Insomnia (1)
1 more

Data from patients with Sjogren's Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Sjogren's Syndrome

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Artificial Tears)
Perceived effectiveness
for Sjogren's Syndrome (9 evaluations)
Side effects
Stinging sensation
Total evaluations
11
Tried for
Sjogren's Syndrome (47) Dry eyes (6)
Check to add this treatment to your profile
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for Sjogren's Syndrome (23 evaluations)
Side effects
Nausea Abdominal cramps 4 more
Total evaluations
27
Tried for
Sjogren's Syndrome (41) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Restasis)
Perceived effectiveness
for Sjogren's Syndrome (16 evaluations)
Side effects
Burning sensation in eyes Blurry vision 1 more
Total evaluations
16
Tried for
Sjogren's Syndrome (37) Dry eyes (9)
Check to add this treatment to your profile
Treatment name(s)

(Salagen)
Perceived effectiveness
for Sjogren's Syndrome (18 evaluations)
Side effects
Sweating increased Blurry vision 3 more
Total evaluations
19
Tried for
Sjogren's Syndrome (31) Dry mouth (4)
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (13 evaluations)
Side effects
Daytime sleepiness Difficulty urinating (dysuria) 5 more
Total evaluations
13
Tried for
Pain (23)
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (8 evaluations)
Side effects
Blurry vision Drowsiness 3 more
Total evaluations
8
Tried for
Pain (17)
Check to add this treatment to your profile
Treatment name(s)

(Norco)
Perceived effectiveness
for Pain (9 evaluations)
Side effects
Constipation Drowsiness 2 more
Total evaluations
9
Tried for
Pain (17) Sjogren's Syndrome (1)
Check to add this treatment to your profile
Treatment name(s)

(Evoxac)
Perceived effectiveness
for Sjogren's Syndrome (8 evaluations)
Side effects
Heavy sensation in legs Sweating increased
Total evaluations
8
Tried for
Sjogren's Syndrome (15) Dry mouth (1)
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Depressed mood (8 evaluations)
Side effects
Anger
Total evaluations
8
Tried for
Depressed mood (13)
Check to add this treatment to your profile
Treatment name(s)

(Xanax)
Perceived effectiveness
for Anxious mood (7 evaluations)
Side effects
Drowsiness Drug dependence 1 more
Total evaluations
7
Tried for
Anxious mood (12) Insomnia (1)
1 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Sjogren's Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Who has Sjogren's Syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 57
30s 252
40s 567
50s 767
60s 436
70+ 90
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 144
20-29 years 214
30-39 years 411
40-49 years 396
50-59 years 196
60-69 years 43
70+ years 1

Sex

Distribution of sex

97% Female
3% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1,657
Not Diagnosed 96

These charts show data from Sjogren's Syndrome patients who have completed their condition history
Last updated: