Dercum's disease

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What is Dercum's disease?

Dercum’s disease, also known as adiposis dolorosa, is a rare disorder characterized by multiple, painful growths consisting of fatty tissue, called lipomas. They mainly occur on the trunk, the upper arms and upper legs and are found just below the skin.

Common symptoms reported by people with Dercum's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Dercum's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
2
Tried for
Dercum's disease (2) pain (1)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
2
Tried for
Dercum's disease (1) pain (1)
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
1
Tried for
Dercum's disease (1) pain (1)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1) depressed mood (1)
2 more
Treatment name(s)

(Nuvigil)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(CoQ10 Soft Gels)
Type
Supplement
How many have tried
1
Tried for
Dercum's disease (1) fatigue (1)
Treatment name(s)

(Advil)
Type
Over the Counter Drug
How many have tried
1
Tried for
Dercum's disease (1) pain (1)
Treatment name(s)

(Myofascial release)
Type
Physical Therapy
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Low Dose Naltrexone (LDN))
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Naprosyn)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with Dercum's disease, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with Dercum's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Adderall)
Perceived effectiveness
for Dercum's disease (1 evaluation)
Side effects
Total evaluations
1
Tried for
Dercum's disease (2) pain (1)
Treatment name(s)

(Lyrica)
Perceived effectiveness
for Dercum's disease (10 evaluations)
Side effects
anxious mood breathlessness 4 more
Total evaluations
10
Tried for
Dercum's disease (1) pain (1)
Treatment name(s)

(Tylenol)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Dercum's disease (1) pain (1)
Treatment name(s)

(Elavil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1) depressed mood (1)
2 more
Treatment name(s)

(Nuvigil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(CoQ10 Soft Gels)
Perceived effectiveness
for Dercum's disease (2 evaluations)
Side effects
low blood sugar (hypoglycemia)
Total evaluations
2
Tried for
Dercum's disease (1) fatigue (1)
Treatment name(s)

(Advil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Dercum's disease (1) pain (1)
Treatment name(s)

(Myofascial release)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Low Dose Naltrexone (LDN))
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Naprosyn)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Dercum's disease, who reported starting treatments within the last 5 years.
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Who has Dercum's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 3
30s 11
40s 23
50s 41
60s 22
70+ 8
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 14
20-29 years 9
30-39 years 10
40-49 years 11
50-59 years 1
60-69 years 2
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 10
Female 100

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 41
Not Diagnosed 19

These charts show data from Dercum's disease patients who have completed their condition history
Last updated: