What is Ehlers-Danlos syndrome?

Ehlers-Danlos syndrome is a group of disorders that affect connective tissues, which are tissues that support the skin, bones, blood vessels, and other organs. All types of Ehler-Danlos syndrome affect the joints and many also affect the skin.

How do members experience Ehlers-Danlos syndrome?

Top 5 symptoms reported by people with Ehlers-Danlos syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Ehlers-Danlos syndrome*

Who has Ehlers-Danlos syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 27
20s 253
30s 370
40s 398
50s 347
60s 165
70+ 45

Distribution of sex

Sex

Sex Proportion # of patients
Male 120
Female 1,463