Degenerative myopia

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is degenerative myopia?

Degenerative myopia is a rare, severe amount of nearsightedness in which the eyeball continues to grow, becoming longer than it should be. This may lead to profound vision loss.

Common symptoms reported by people with degenerative myopia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with degenerative myopia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(BuTrans patch)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Celebrex)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Deplin)
Type
Supplement
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Percocet)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Occipital nerve radiofrequency ablation)
Type
Procedures
How many have tried
1
Tried for
pain (1)
Treatment name(s)
Type
Equipment
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Leg brace)
Type
Equipment
How many have tried
1
Tried for
pain (1)

Data from patients with degenerative myopia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with degenerative myopia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for pain (2 evaluations)
Side effects
sleepiness
Total evaluations
2
Tried for
pain (1)
Treatment name(s)

(BuTrans patch)
Perceived effectiveness
for pain (3 evaluations)
Side effects
allergic reaction to patch adhesive
Total evaluations
3
Tried for
pain (1)
Treatment name(s)

(Celebrex)
Perceived effectiveness
No evaluations
Side effects
abdominal pain indigestion
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (2 evaluations)
Side effects
insomnia
Total evaluations
2
Tried for
pain (1)
Treatment name(s)

(Vistaril)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(Deplin)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
food allergy
Total evaluations
1
Tried for
depressed mood (1)
Treatment name(s)

(Percocet)
Perceived effectiveness
for pain (1 evaluation)
Side effects
decreased appetite itching 1 more
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Occipital nerve radiofrequency ablation)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Leg brace)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with degenerative myopia, who reported starting treatments within the last 5 years.
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Who has degenerative myopia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 3
30s 4
40s 5
50s 2
60s 1
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3
20-29 years 1
30-39 years 1
40-49 years 1
50-59 years 1
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 4
Female 11

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9
Not Diagnosed 1

These charts show data from degenerative myopia patients who have completed their condition history
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