Vestibular migraine

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is vestibular migraine?

Vestibular migraine is a neural condition characterized by recurrent vascular headache and may be accompanied by nausea, vomiting, and dizziness. For many, the dizziness is the more common symptom rather than the headache.

Common symptoms reported by people with vestibular migraine

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with vestibular migraine

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2) vestibular migraine (1)
Treatment name(s)
Type
Physical Therapy
How many have tried
2
Tried for
anxious mood (2) pain (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
2
Tried for
vestibular migraine (2)
Treatment name(s)

(Verapamil ER)
Type
Prescription Drug
How many have tried
2
Tried for
vestibular migraine (2)
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Type
Procedures
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
1
Tried for
vestibular migraine (1)
Treatment name(s)
Type
Surgery
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Botox)
Type
Prescription Drug
How many have tried
1
Tried for
vestibular migraine (1)

Data from patients with vestibular migraine, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with vestibular migraine

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Klonopin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (2) vestibular migraine (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (2) pain (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (3 evaluations)
Side effects
blurry vision vertigo
Total evaluations
3
Tried for
pain (2)
Treatment name(s)

(Topamax)
Perceived effectiveness
for vestibular migraine (1 evaluation)
Side effects
daytime sedation
Total evaluations
1
Tried for
vestibular migraine (2)
Treatment name(s)

(Verapamil ER)
Perceived effectiveness
for vestibular migraine (1 evaluation)
Side effects
lightheadedness
Total evaluations
1
Tried for
vestibular migraine (2)
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Perceived effectiveness
for pain (1 evaluation)
Side effects
bruising
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Xanax)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(Elavil)
Perceived effectiveness
for vestibular migraine (1 evaluation)
Side effects
gastroparesis increased anxiety
Total evaluations
1
Tried for
vestibular migraine (1)
Treatment name(s)
Perceived effectiveness
for pain (1 evaluation)
Side effects
spinal tap headaches
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Botox)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
vestibular migraine (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with vestibular migraine, who reported starting treatments within the last 5 years.
Last updated:

Who has vestibular migraine on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 5
30s 16
40s 42
50s 32
60s 16
70+ 4
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 13
20-29 years 8
30-39 years 8
40-49 years 16
50-59 years 8
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 15
Female 101

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 67
Not Diagnosed 4

These charts show data from vestibular migraine patients who have completed their condition history
Last updated: