Hearing loss

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is hearing loss?

Hearing loss can be classified as conductive, sensorineural, or both (mixed loss). Nearly 10% of people in the US have some degree of hearing loss. Some hearing losses are congenital (present at birth) and others are acquired disorders.

Common symptoms reported by people with hearing loss

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with hearing loss

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
10
Tried for
Pain (10)
Treatment name(s)
Type
Equipment
How many have tried
9
Tried for
hearing loss (9)
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
6
Tried for
Pain (6)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
6
Tried for
Pain (5) Fatigue (1)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
5
Tried for
Pain (4) Insomnia (2)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
5
Tried for
Depressed mood (4) Pain (1)
Treatment name(s)
Type
Equipment
How many have tried
4
Tried for
hearing loss (4)
Treatment name(s)

(Tylenol with Codeine #3)
Type
Prescription Drug
How many have tried
4
Tried for
Pain (4)
Treatment name(s)

(Oxycodone IR)
Type
Prescription Drug
How many have tried
4
Tried for
Pain (4)
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Type
Procedures
How many have tried
3
Tried for
Pain (3) Anxious mood (1)
1 more

Data from patients with hearing loss, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with hearing loss

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (6 evaluations)
Side effects
Cold sweat Dizziness and feeling faint 4 more
Total evaluations
8
Tried for
Pain (10)
Treatment name(s)
Perceived effectiveness
for hearing loss (18 evaluations)
Side effects
Pain in ear Ringing in ears (Tinnitus) 3 more
Total evaluations
18
Tried for
hearing loss (9)
Treatment name(s)

(Tylenol)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
Pain (6)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (5 evaluations)
Side effects
Anxious mood Drowsiness 1 more
Total evaluations
6
Tried for
Pain (5) Fatigue (1)
Treatment name(s)

(Elavil)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Crying easily Jerky movements (dyskinesia) of arms 3 more
Total evaluations
2
Tried for
Pain (4) Insomnia (2)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Depressed mood (3 evaluations)
Side effects
Brain fog
Total evaluations
3
Tried for
Depressed mood (4) Pain (1)
Treatment name(s)
Perceived effectiveness
for hearing loss (3 evaluations)
Side effects
Hospitalization Loss of sense of smell (anosmia) 1 more
Total evaluations
3
Tried for
hearing loss (4)
Treatment name(s)

(Tylenol with Codeine #3)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (4)
Treatment name(s)

(Oxycodone IR)
Perceived effectiveness
for Pain (4 evaluations)
Side effects
Chronic constipation Withdrawal effects
Total evaluations
4
Tried for
Pain (4)
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
Pain (3) Anxious mood (1)
1 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with hearing loss, who reported starting treatments within the last 5 years.
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Who has hearing loss on PatientsLikeMe?


Age
Age Proportion # of patients
<20 23
20s 61
30s 105
40s 136
50s 178
60s 138
70+ 55
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 147
20-29 years 52
30-39 years 64
40-49 years 71
50-59 years 42
60-69 years 12
70+ years 2

Sex

Distribution of sex

69% Female
31% Male

Types
Condition Types Proportion # of patients
Conductive hearing loss 7
Mixed hearing loss 3
Sensorineural hearing loss 116
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 472
Not Diagnosed 51

These charts show data from hearing loss patients who have completed their condition history
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