Epiretinal membrane

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is epiretinal membrane?

An epiretinal membrane is characterized as scar tissue that grows on the inner surface of the retina, causing the retina to wrinkle. There may be a reduction in visual acuity and vision may become blurry and distorted.

Common symptoms reported by people with epiretinal membrane

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with epiretinal membrane

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cannabidiol oil)
Type
Other
How many have tried
1
Tried for
anxious mood (1) pain (1)
Treatment name(s)

(Tylenol with Codeine #3)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Type
Procedures
How many have tried
1
Tried for
pain (1)
Treatment name(s)
Type
Surgery
How many have tried
1
Tried for
epiretinal membrane (1)

Data from patients with epiretinal membrane, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with epiretinal membrane

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cannabidiol oil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1) pain (1)
Treatment name(s)

(Tylenol with Codeine #3)
Perceived effectiveness
for pain (3 evaluations)
Side effects
constipation
Total evaluations
3
Tried for
pain (1)
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Lexapro)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Ativan)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)
Perceived effectiveness
for epiretinal membrane (1 evaluation)
Side effects
Total evaluations
1
Tried for
epiretinal membrane (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with epiretinal membrane, who reported starting treatments within the last 5 years.
Last updated:

Who has epiretinal membrane on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 0
30s 0
40s 1
50s 2
60s 7
70+ 8
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 0
40-49 years 1
50-59 years 5
60-69 years 4
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 7
Female 13

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 15
Not Diagnosed 0

These charts show data from epiretinal membrane patients who have completed their condition history
Last updated: